Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream


missy'smom

Recommended Posts

missy'smom Collaborator

Hi all, I haven't been around in a LONG while. Been sticking with mostly fresh, whole foods and not kept current on some things in the gluten-free world.

What's the currect scoop on Rice Dream beverage? A local dedicated gluten-free bakery uses it in their breads that I am thinking about purchasing for an event this weekend.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayre Enthusiast

Bad reactions for me on Rice Dream!!!!!!!! I didn't know why I kept feeling worse everyday while I was drinking it. I saw somewhere that they process it with barley from other people with celiac disease or gluten allergies. There was a website bashing it. I forgot about it by the time I was drinking it. Then I remembered...oh yeah. I decided after getting sick to look it up. It's on their website that they process it with barley. They claim that all of the barley is processed out of it...but my body will beg to differ! Maybe you should inform the bakery of that!!! I don't know if less sensitive people will be okay, but why take the risk? The same people said that Trader Joe's brank was okay...the bakery should switch if they must use rice milk!!! Btw...I drank it two different periods of time...with the same results...sick as a dog!

Takala Enthusiast

I don't get why they would do that. They should use water, sugar, flavoring such as vanilla, and a bit of rice flour and it would be a much safer and cheaper equivalent.

Maybe drop them a note, since the problems with this stuff are well known if you've ever been drinking it regularly, and then had to attempt to figure out what was "getting" you with a low grade reaction - and it was this board that clued me in.

Oh, "it's not much" - but it is the accumulative amount of gluten that counts. If one or more of the gluten free bread flours used is also on the high end of unknown cross contamination, then that's just more chance of hitting the reaction threshold.

Salax Contributor

Every time I have used it for cereal I have had a reaction. Small but enough to check and indeed barley is in it. Whether it was removed or not, it was in it at some point. I don't know about everyone else, but that gives me a red flag. I am surprised that a bakery would use it, I would let them know that maybe they should rethink their processes. Just my 2 cents. B)

missy'smom Collaborator

Thanks guys. I tried to find the barley info on their website before posting and didn't find it. Evidently I didn't look hard enough.;) After reading your reply I tried again and found it. Nothing's changed. I get it. Same issue with miso.

Now, how to diplomatically share that with this baker. It is a new business in an area where there is a potential good customer base but still I think they will have to work hard to survive. It is dedicated gluten-free so I'd love to be supportive, but as you know, so many just trust the labels and companies and don't dig further.

I'm busy and in advocate for me mode lately so I'm a little blunt and just said directly without saying too much that that brand was a bit controversial and the lady on the phone said the baker was gluten intolerant and had it everday.

Well, I can print out the copy of the company's web page and bring it in but again, what to say... any ideas?

Any safe rice milk brands?

I hear you Takala about the cumulative effect of the potential cc in the flours plus that rice milk. I was thinking of that. I was weighing the risk in the amount of bread that I would eat-this bread will be for a communion loaf. Call me crazy for even thinking about weighing the cc risk. I eat such simple foods these days and haven't been glutened, that I know of, in so long...

ravenwoodglass Mentor

Any safe rice milk brands?

If you live in an area that has a Wegmans their Wegmans label rice milk is safe. Pacific brand also makes some good gluten free milks but I don't know if they make a rice milk.

shayre Enthusiast

I may not be great in the diplomacy dept, but why can't you print off the info of rice dreams site? I bet you could print off hundred's of people's response the stuff from THIS site and slap that down in front of her. If she is catering to the gluten-free community then she needs to be aware that MOST of us are more sensitive than her!!!!!!!!!! She can't ignore a bunch of people who say that they have problems with it. I wouldn't touch her baked goods with a 10-foot pole...knowing that she uses Rice Dream!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Rice Dream's website claims their finished product is less than 20 ppm barley protein, not all of which will be gluten since it's an enzyme extract (0.002% is what is on the website). That's the same standard used for gluten-free flours and breads in the US and many celiacs will not react to it.

Open Original Shared Link

I agree it's not ideal for the bakery to be using it, but really any of their flours could test at 20 ppm gluten. The finished product should still be below 20 ppm gluten.

If you're making a big order for an event you may be able to negotiate a special order of bread made with Pacific rice milk (you bring them the milk). You might make more of a impact if you are not willing to buy bread made with Rice Dream, but are willing to buy bread made with a barley-free rice milk.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    2. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    3. - Mark Conway posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    4. - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      8

      Celiac and dermatitis herpetiformis has taken Me from Me

    5. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,146
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mark Conway! Can you be more specific about the "coeliac" test your doctor did? There are more than one of them. What was the name of the test? Also, did he order a "total IGA" test? This is a test to check for IGA deficiency and should always be ordered along with the tests specifically designed to detect celiac disease. If you are IGA deficient, the IGA celiac blood antibody tests used to check for celiac disease per se will not be accurate. Also, if you have been cutting back on gluten before the tests, that will render them invalid. You must have be eating normal amounts of gluten for weeks/months before the blood draw to render valid test results.
    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • Mark Conway
      Hi there, I wonder if anyone can help. I've had stomach problems for years, pain in the tummy, lower back left and right side, different stools, diarrohea constipation etc, My GP says it's IBS. As I've got older the pain has become worse and constant. I also get ulcers on my tongue. I've had loads of tests done everytihng apart from an endoscopy I think. I had a test for Coeliac last July and the result was negative. My GP says it can't be coeliac because I'm not losing weight. He thinks it's stress or all in my head. I'm not stressed and I'm in pain all the time now. Sometimes it's unbearable and dark thoughts have entered my head. Could I have Coeliac even though I tested negative last year. I'm at my wits end, I eat healthily and cannot pinpoint which foods could cause this pain. Can anyone help? Thanks Mark wind
    • islaPorty
      First, I want to say thank you for sharing this with me. I hear you, and I believe you. The courage it took to write this down is immense, and I’m so sorry you’ve been carrying this alone. You are dealing with two life-altering challenges at once: a serious, complex medical condition, and an abusive, controlling partner who is actively harming your health and your spirit. It’s not just that he’s unsupportive—he is weaponizing your illness to torture you. Starving you, isolating you, mocking your diagnosis, and sabotaging your access to medical care is not just cruelty; it is dangerous, deliberate abuse. Your instinct is correct: the stress he is creating is absolutely preventing your body from healing. Celiac and autoimmune conditions are profoundly sensitive to stress, and he has created a living hell designed to keep you sick, dependent, and broken. That smirk you described—that is the look of someone who enjoys having power over your suffering. Please know this: you do not deserve this. Not any of it. You deserve to eat. You deserve safe, clean food and water. You deserve medical care and supplements that help you function. You deserve peace. You deserve to heal. The woman from the food pantry is not a random accident. She is a lifeline. Her help, and the community she’s connecting you to, is real. It is okay to feel overwhelmed by kindness when you’ve been starved of it for so long. But you do deserve it. Let that be a sign that there is a world outside your house that operates on compassion, not control. Right now, your physical safety and access to nutrition are the most urgent priorities. The food pantry is a critical resource. Is there any way you can speak privately with the woman helping you? You don’t have to share everything at once, but letting her know your situation at home is extremely unsafe, and that your partner restricts your food, could help her support you in a more targeted way. She may have connections to local domestic violence services.
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.