Tracking Your Recovery With Blood Tests

[Kim69]

Hi. I liked to see a trend townwards towards normality in my blood work. These are my results. I still feel crappy but that's another issue!

I have recently had tests done 1 yr post dx on a gluten-free diet.

AGA IgG <10 (less than 20 is negative on this test) so happy days

T-glutaminase <5 (less than 5 is negative)

So both are negative. Over the past year I have had these tests a few times and they have shown a steady decline.

In November last year I had the following results:

Anti gliadin IgA <10 (0-20)

Anti gliadin IgG 22 (0-42)

Endomysial antibodies negative

T transglutaminase IgA <5

And in may 2010 just after I was biopsy dx Coeliac:

AGA IgA 10 (0-20)

AGA IgG 84 H (0-42) positive

Endomysial Ab positive

T transglutiminase >100 very positive!

I found it encouraging to get these test results, showing that I am not getting at least a severe reaction from cc. Has anyone else got results to share?

[Mack the Knife]

I have results but they are not encouraging.

I've been on a very strict gluten free diet for 18 months now. I don't cheat ever and I am really careful about cc. However, my blood tests are still coming back strongly positive for Coeliac disease. So that's not good.

I don't get really sick but I do feel low-level crap quite a lot of the time.

I have to go in for another biopsy soon to see if my intestines are healing at all.

I'm starting to get a bit worried.

[anabananakins]

I was actually going to come and post about this because I was so excited with my results after seeing the doctor this morning.

I tested negative for celiac, but I'm being treated for insulin resistance. Since the medication (Metformin) is known to cause B12 levels to drop, they keep an eye on it, but I hadn't had any problems since I started taking it 2 years ago. I always hovered around the high 300s (reference range: 145-637).

Anyway, in May 2010, I was at 383. I went gluten free a month later. The results in mid July 2010 - an increase to 424. Today's results - 703!! I'm not taking B12.

My vit D went from a very low 22 (reference range: 51-140) to 107. I do take vit D tablets.

I find the increase in B12 really interesting. I tested negative in blood tests, and didn't have the genes they usually identify, so my doctor didn't go further with the testing. But if my B12 has increased so much since I went gluten free, even though I'm on a medication known to cause it to lower, surely that indicates that there were problems with my villi and absorption? I've never really understood how non-celiac gluten intolerance compares to celiac when it comes to what's happening on the inside.

Or (and this is how I mostly feel about it ) I do have celiac but the testing hasn't caught up to how mine manifests.

[Gemini]

Hi. I liked to see a trend townwards towards normality in my blood work. These are my results. I still feel crappy but that's another issue!

I have recently had tests done 1 yr post dx on a gluten-free diet.

AGA IgG <10 (less than 20 is negative on this test) so happy days

T-glutaminase <5 (less than 5 is negative)

So both are negative. Over the past year I have had these tests a few times and they have shown a steady decline.

In November last year I had the following results:

Anti gliadin IgA <10 (0-20)

Anti gliadin IgG 22 (0-42)

Endomysial antibodies negative

T transglutaminase IgA <5

And in may 2010 just after I was biopsy dx Coeliac:

AGA IgA 10 (0-20)

AGA IgG 84 H (0-42) positive

Endomysial Ab positive

T transglutiminase >100 very positive!

I found it encouraging to get these test results, showing that I am not getting at least a severe reaction from cc. Has anyone else got results to share?

I have had great results on my blood work after starting the gluten-free diet. At diagnosis, my tTg was 200,I had a positive EMA, and all my other tests failed by high numbers. I never went back to the doctor for a year because I had issues with the way they handled the whole situation and figured it would be a waste of time to re-do blood work that soon.

One year later and my AGA IgA/IgG were at 3 from a high of around 50. Normal is anything under 5. My tTg was still in the high normal range but I have 4 autoimmune diseases total and it took awhile for that to normalize to a good level. I just had my levels checked again at the 6 year mark and my AGA IgA/IgG came in at 1.2. That's as good as it gets for a celiac and I am happy with those numbers. The longer you live gluten-free, the easier it becomes and now it is second nature to me.

[Kim69]

I have results but they are not encouraging.

I've been on a very strict gluten free diet for 18 months now. I don't cheat ever and I am really careful about cc. However, my blood tests are still coming back strongly positive for Coeliac disease. So that's not good.

I don't get really sick but I do feel low-level crap quite a lot of the time.

I have to go in for another biopsy soon to see if my intestines are healing at all.

I'm starting to get a bit worried.

Hi Mack the knife. No it's not good if your tests are still strongly positive. It's certainly discouraging for you. I still feel crappy but at least my dr is happy with the blood tests.

A repeat gastroscopy is s good idea. I am having one on Wednesday. Oh are you deficient in any of the usual suspects still? Like vit d or zinc, iron, b12?

[Mack the Knife]

Hi Mack the knife. No it's not good if your tests are still strongly positive. It's certainly discouraging for you. I still feel crappy but at least my dr is happy with the blood tests.

A repeat gastroscopy is s good idea. I am having one on Wednesday. Oh are you deficient in any of the usual suspects still? Like vit d or zinc, iron, b12?

My Ferrtin levels and vitamin D are very low. I'm taking supplements and have had iron injections but they're not improving.