Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Survived Camping!

notme

By notme
in Coping with Celiac Disease

Recommended Posts

notme Experienced
notme
Posted

and didn't get glutened or anything! very very happy with this - last time (memorial day weekend) we camped out and i got sooo sick. i had to come home and eat, etc. i had no idea what i did wrong but i had a couple of ideas for making changes:

1. no more shared ice chest/cooler! i thought if everything was sealed up and packaged/labeled that everything would be ok in a cooler that had *regular* stuff in it. not so. got myself a dedicated one - LOL i thought i would have to put a lock on it but it turns out putting GLUTEN FREE on it is enough to scare anybody off. i don't think anyone even opened it!

2. no more hand sanitizer! walked the extra distance to running water n soap. even after wiping down things with clorox wipes, i went and washed my hands with water water water :)

3. anything i was remotely planning on eating was cooked on my dedicated grill also when reheating things, that way everybody knew not to "oops i stuck the gluten spoon into your food because it was right there with everything else" i separated out my salads and stuff before we went and all leftovers (for me) went right into my trusty cooler.

4. breakfast was home-made cereal bars (chex/cashews/craisins/choc chip/peanut butter) and greek yogurt instead of trying to eat a gluten-free version of what everybody else was having.

5. brought my own sugar for my tea! my kitchen is mainly gluten-free but when it wasn't i didn't think twice about sticking a spoon in the sugar that 'just had flour on it' - also brought my own lactaid (which is considered as horrid as gluten-free food evidently lol)

6. i had my own box for all the other stuff i didn't have to refrigerate and it contained ONLY gluten-free stuff and was well away from all the other rolls/breads/cookies, etc

anyway - the weekend went great and i don't have to be sick all week :) husband smoked some fish that was to *die* for - i marinated it in butter/lemon/fresh thyme salt n pepper. smoked with apple chips it was absolutely delicious. nom nom nommm i think that might be my Fourth Meal tonite. get it: 4th meal :D

i hope everybody had a safe and happy 4th!! if anybody has any good camping tips please DO share - thanx - after the last experience i was so nervous about this weekend.

arlene

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

That is great! Sounds like you did an excellent job of planning and preparing for this trip and your tips are so helpful to the rest of us. Thanks!

JoyVertz Rookie
JoyVertz
Posted

awesome! your planning paid off. :)

love2travel Mentor
love2travel
Posted

Great job! Now that you have that tackled I bet you will feel more confident with other situations, too! Things like that are truly empowering.

notme Experienced
notme
Posted
  • Author

Great job! Now that you have that tackled I bet you will feel more confident with other situations, too! Things like that are truly empowering.

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

RL2011 Rookie
RL2011
Posted

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

Good for you! Glad to see you have not let your dietary issues restrict your lifestyle.

love2travel Mentor
love2travel
Posted

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

See? That is wonderful! We went to Croatia/Italy in May without any celiac mishaps. Sure, the smells from the bakeries were insanely good but I did it! Trips can really give you a gigantic sense of accomplishment, can't they?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

LMAO :) "Gluten free is enough to scare anybody off I don't think anybody even opened it" with the cooler !

dws Contributor
dws
Posted

and didn't get glutened or anything! very very happy with this - last time (memorial day weekend) we camped out and i got sooo sick. i had to come home and eat, etc. i had no idea what i did wrong but i had a couple of ideas for making changes:

1. no more shared ice chest/cooler! i thought if everything was sealed up and packaged/labeled that everything would be ok in a cooler that had *regular* stuff in it. not so. got myself a dedicated one - LOL i thought i would have to put a lock on it but it turns out putting GLUTEN FREE on it is enough to scare anybody off. i don't think anyone even opened it!

2. no more hand sanitizer! walked the extra distance to running water n soap. even after wiping down things with clorox wipes, i went and washed my hands with water water water :)

3. anything i was remotely planning on eating was cooked on my dedicated grill also when reheating things, that way everybody knew not to "oops i stuck the gluten spoon into your food because it was right there with everything else" i separated out my salads and stuff before we went and all leftovers (for me) went right into my trusty cooler.

4. breakfast was home-made cereal bars (chex/cashews/craisins/choc chip/peanut butter) and greek yogurt instead of trying to eat a gluten-free version of what everybody else was having.

5. brought my own sugar for my tea! my kitchen is mainly gluten-free but when it wasn't i didn't think twice about sticking a spoon in the sugar that 'just had flour on it' - also brought my own lactaid (which is considered as horrid as gluten-free food evidently lol)

6. i had my own box for all the other stuff i didn't have to refrigerate and it contained ONLY gluten-free stuff and was well away from all the other rolls/breads/cookies, etc

anyway - the weekend went great and i don't have to be sick all week :) husband smoked some fish that was to *die* for - i marinated it in butter/lemon/fresh thyme salt n pepper. smoked with apple chips it was absolutely delicious. nom nom nommm i think that might be my Fourth Meal tonite. get it: 4th meal :D

i hope everybody had a safe and happy 4th!! if anybody has any good camping tips please DO share - thanx - after the last experience i was so nervous about this weekend.

arlene

I actually accidentally figured out some cc issues when I went camping for the first time in many years. I felt a lot better while camping and upon my return, tightened up on precautions in our gluten filled kitchen at home.
notme Experienced
notme
Posted
  • Author

Good for you! Glad to see you have not let your dietary issues restrict your lifestyle.

richard: the dietary issues, i am realizing more and more, are the *easy* part of celiac! because i can control this 'junk' body lol :D as my symptoms go away (YES it's really taking this long!!) my 'restrictions' are peeling away like layers. ie: we have a piece of property on the river we are planning to build a house on eventually. we have been camping there for a good 10 years and the cove is shallow water until you get out to the channel. a good place to float :) i never wanted to float very far from shore (just in case! keep that bathroom in sight!) never realized i was even doing that - sticking close - until this sunday when one of the two year olds wanted to swim ALL THE WAY ACROSS (he has little floaties and i was not three feet from him) and i just smiled and went along with him. very far from shore!

i think there are going to be alot more realizations like this - either deliberately or subconciously i have restricted myself.

notme Experienced
notme
Posted
  • Author

See? That is wonderful! We went to Croatia/Italy in May without any celiac mishaps. Sure, the smells from the bakeries were insanely good but I did it! Trips can really give you a gigantic sense of accomplishment, can't they?

you are gonna make me google 'croatia' lol i have no idea where that is. but i'ma find out :)

love2travel: i always love your posts! i love to cook, too, so you are very inspiring - i will never think of lemongrass again without thinking of you ;)

notme Experienced
notme
Posted
  • Author

LMAO :) "Gluten free is enough to scare anybody off I don't think anybody even opened it" with the cooler !

lol i'm thinking of marketing the phrase as a theft deterrent <sp? or smuggling diamonds hahahaha

notme Experienced
notme
Posted
  • Author

I actually accidentally figured out some cc issues when I went camping for the first time in many years. I felt a lot better while camping and upon my return, tightened up on precautions in our gluten filled kitchen at home.

if you have more advice, please do share!!

ugh. the first time was a *nightmare* - i honestly felt, by the end of the weekend, that there was NOTHING i could eat there at all. i went home because i was hungry and sick :(

love2travel Mentor
love2travel
Posted

you are gonna make me google 'croatia' lol i have no idea where that is. but i'ma find out :)

love2travel: i always love your posts! i love to cook, too, so you are very inspiring - i will never think of lemongrass again without thinking of you ;)

Croatia is on the Mediterranean. The province where our house is called Istria which is a peninsula shaped like a cluster of grapes right across from Venice (2 1/2 hours by ferry or car). The country is very oddly shaped - probably the weirdest shape in the world. Much of it is very long and skinny - you must go through Slovenia when you drive from Italy and you go through a part of Bosnia further south. A incredibly beautiful country - parts remind me of Italy (it was under Venetian rule years ago) so many people in Istria speak Italian. Further south it hugs the coast for hundreds of miles (the skinny part of the country). So you get your ancient hilltop villages, tons of Roman ruins (i.e. an amphitheatre that was built the same time as the Coliseum in Rome), lovely coast and sea, tons of forest, gorgeous climate...I could go on for hours but won't. The people are amongst the friendliest I've encountered in any country. The culture and history are fascinating and the language is interesting (trying to learn it).

Thanks for the sweet words! I'm glad you'll never think of lemongrass the same. Speaking of which, I looked for it this morning and there was none. Darn it - will have to re-think a dessert. We are having company for the weekend.

notme Experienced
notme
Posted
  • Author

it looks very beautiful!! naturally, part of it borders hungary (i should know this stuff, my grammy was full on hungarian - just about born on the boat to america lol) hope to visit that area one day :)

love2travel Mentor
love2travel
Posted

it looks very beautiful!! naturally, part of it borders hungary (i should know this stuff, my grammy was full on hungarian - just about born on the boat to america lol) hope to visit that area one day :)

It is simply stunning. You're right - it does border Hungary as well. As we go 2-3 times per year I think our next May trip will include a week in Hungary first. I truly do hope you are able to visit there, too! I could not begin to explain how wonderful most of Europe is - it defies words.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    2. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    3. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    4. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
    5. Scott Adams
      - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748
    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.