Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Have Done The Gluten Challenged And


ferb

Recommended Posts

ferb Newbie

I realize that these results may be skewed since this is a celiac forum and most of the people have here have stuck around because they have some kind of gluten sensitivity. I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissyinnj Apprentice

Could be tied to a different food. Perhaps you could start a food diary and see if there is a certain type of food you eat before your symptoms appear. or do an elimination diet.

love2travel Mentor

I realize that these results may be skewed since this is a celiac forum and most of the people have here have stuck around because they have some kind of gluten sensitivity. I

Darn210 Enthusiast

I've had mild joint pain for a while. Summers seem to be worse . . . is it the weather or is it because I'm more active (yard work?) My daugher has Celiac. I was tested and it came out negative. I did a 6 month gluten free trial diet and noticed no difference. I went back on gluten and noticed no difference.

I know nightshades can be behind joint pain but I have not tried eliminating those . . . yet. (I find that more difficult than gluten free :ph34r: )

October3 Explorer

I have been on and off gluten 2 or 3 different times and not noticed any difference. I have some mild IBS-type symptoms and also episodic joint pain and I think for me milk and possibly soy is a bigger trigger than gluten.

My son, who has moderately elevated tTG with negative scope, had no obvious change when we eliminated gluten for 2 months and then put it back in, and no change at all on his iron levels which was where we were hoping to see a difference. But he is only 6 and I'm not sure he knows what to report to us. He's made some comments about having tummy aches in the mornings and feeling like he's going to throw up and he thinks everyone feels that way every morning. So he doesn't think to tell me. So I can't be sure there was really no change for him. I think we may need to try again when he's a bit older if we can't figure it out through lab tests.

My other son has no antibodies to gluten but seemed to improve with his stools (less gassiness, fewer floaties) off gluten. Now that he's been back on for almost 3 weeks things remain good. So my theory is that it might have been more of a yeast issue fed by gluten than gluten itself.

ferb Newbie

OK, thanks for the feedback. It is good to know that there are some people who don't seem to be affected either way by gluten. I will give this gluten-free diet a shot, then start eating it again and see if I notice any change. If not, I guess I will move on and try eliminating something else from my diet... dairy, nightshades, or soy maybe.

How long should I stick with the gluten-free diet before doing the "challenge?" 4 weeks? 6 weeks?

curlyfries Contributor

My adult daughter went gluten free for a while, but eventually started cheating. When she didn't notice a difference, she went back on gluten. A couple of years later symptoms returned and she is now gluten free again and feeling good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marz Enthusiast

Yup, symptoms can take a while to reappear - when you're doing the gluten challenge, eat at least three meals with gluten in it, for a week or longer. And make sure you've been properly off gluten for at least a month before you do so - your body can take a while to heal, and if you don't give yourself long enough, you may not notice a difference in the challenge.

When I did my challenge, I didn't get the stomach pain/massive d symptoms I expected, I was just getting this very weird anxiety/freaked out feeling. The D and pain only started a few days in.

Best of luck :)

cahill Collaborator

OK, thanks for the feedback. It is good to know that there are some people who don't seem to be affected either way by gluten. I will give this gluten-free diet a shot, then start eating it again and see if I notice any change. If not, I guess I will move on and try eliminating something else from my diet... dairy, nightshades, or soy maybe.

How long should I stick with the gluten-free diet before doing the "challenge?" 4 weeks? 6 weeks?

I would suggest at least 8 weeks gluten free before doing a challenge. If you have withdraw symptoms it can take 6 to 8 weeks for the withdraw to end.

For me soy is as much of an issue ,,if not more,, as gluten. I have digestive issues with gluten but major neurological issues with soy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,947
    • Most Online (within 30 mins)
      7,748

    Sinch23
    Newest Member
    Sinch23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.