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Hi I'm New

james-12

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james-12 Newbie
james-12
Posted

hi to all i wish to say hello.

i was told i had celiac disease about two years ago.I am still getting used to the diet but the doctors in hospital, could not agree that i was a celiac as i had a false positive result finally they told me that i was a celiac my bloods kept coming back high as was my older sister (r.i.p)

i have a question my hair is thinning and is bugging me i have heard on this site, that there is gluten in shampoo if so does any one know which ones. my doctor says that it is just natural most men lose there hair.

what do you think?

thanks

James

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kareng Grand Master
kareng
Posted

Welcome James!

We have the shampoo discussion alot. In the upper right corner of your screen, we have a google search of this forum. Just search shampoo. Watch the dates because products change. But I know we have had some mentioned in the last few months.

Snugbuggin Newbie
Snugbuggin
Posted

hi to all i wish to say hello.

i was told i had celiac disease about two years ago.I am still getting used to the diet but the doctors in hospital, could not agree that i was a celiac as i had a false positive result finally they told me that i was a celiac my bloods kept coming back high as was my older sister (r.i.p)

i have a question my hair is thinning and is bugging me i have heard on this site, that there is gluten in shampoo if so does any one know which ones. my doctor says that it is just natural most men lose there hair.

what do you think?

thanks

James

Hi, Nice to meet you. I am pretty new too. I used these forums for all kinds of quick lookups before joining. :)

In my effort to find gluten-free Shampoo and Conditioner, I found this company. Not only is it gluten-free, but they also say their products help with hair loss. I bought their stuff, but it was not what I was looking for in a haircare system. I had long hair and wanted typical shampoos and conditoners, this stuff is not typical. It is all about scalp cleansing, detoxing, and hair growth. So if you are interested, here is their link:

Open Original Shared Link

Hope it helps and good luck!

ravenwoodglass Mentor
ravenwoodglass
Posted

Suave, Dove and Garneir all will clearly label gluten ingredients. If you prefer organic Himalaya makes some great stuff and label their gluten free items and I think Giovanni and Shikai also label well.

However if you are not strict with the diet it may be what is going into you not onto you that is contributing to the hair loss. Do your best to be strict with the diet. If you need help with that we are here to answer any questions you may have and welcome to the board.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hello!

I'm pretty new here too..I just wanted to welcome you.

I hope you find some answers as to the cause of your hair loss. Checking your hair care products sounds like a great way to start?

Also, have you had your thyroid checked? If it's acting up it can cause hair loss too..just a thought?

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    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      Are Lindt chocolate balls gluten free?

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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