Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now?

rachbomb

By rachbomb
in Coping with Celiac Disease

Recommended Posts

rachbomb Rookie
rachbomb
Posted

Hi everyone,

I'm hoping for some "veteran" advice here. I have been gluten free since Jan. and dairy and soy free since Feb. After making slow progress I added probiotics (per my doc) and by May was starting to feel about 80-90%. The past few weeks have been bad - and seem to be different than my gluten symptoms. Over a week ago I got some moderate gas pain on the right side for a few days and then about a week of D. Then for the last 4 days I haven't had a bowel movement but have a lot of gas. WHAT IS GOING ON? I called my doc after the first few days of D (because that is an unusual symptom for me) and he had me switch probiotics and said to wait it out a week or two. I just want to feel normal again. I don't care about what I can't eat but if I have to avoid my favorite foods I just want to feel good.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


organicmama Contributor
organicmama
Posted

Are you sure the probiotics are dairy free?

Marilyn R Community Regular
Marilyn R
Posted

What are you eating besides the suspected probiotics?

rachbomb Rookie
rachbomb
Posted
  • Author

They are definitely dairy free (I made that mistake a few months ago). I am eating the exact same that I have been eating for the past few months - very little processed food and I don't eat out besides the occasional trip to Chipotle.

  • 2 weeks later...
rachbomb Rookie
rachbomb
Posted
  • Author

Does anyone have any ideas? I just went to see my Doc and she said "well, you might have IBS too". ARG! I'm willing to do another elimination diet if needed but I barely even know where to start. Plus, I need to stop losing weight (I was finally stabalizing after 4-5 months of being gluten-free but the past month has been bad again).

Reba32 Rookie
Reba32
Posted

did the new symptoms start immediately after starting the pro-biotics, or sometime after?

It could be additional food intolerances, or it could be a virus, or it could be a low grade bacterial food poisoning even. Something you're eating is not agreeing with you. Take a good look at everything, re-read labels, and maybe initially just stay away from the "usual suspects" like dairy, soy, peanuts and nuts for about a week and see what happens.

notme Experienced
notme
Posted

are the probiotics in a capsule? i have to empty the contents of my blood pressure meds out of the capsule when i take them b/c i get a reaction from the capsule - it's made from 'starch' (unspecified) and it contains dye. something in that capsule makes me sick, though. that was a tough one to figure out :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
    2. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    3. trents
      - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    4. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application. And yes, giving the gluten-free diet 110%. Very careful...
    5. trents
      - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,250
    • Most Online (within 30 mins)
      7,748
    goody33
    Newest Member
    goody33
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.