Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Progression Of Untreated Celiac


Sammyj

Recommended Posts

Sammyj Apprentice

An asymptomatic celiac can develop internal problems not associated with celiac by general doctors. Depression, Diabetics, Cancer and others also.

Can this asymptomatic celiac progress until he shows the classic signs of celiac.

I have to wonder now, how many other problems I might NOT have had I always been gluten free.

I am reading "Dangerous Grains" and it really been a good book.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes it can progress. I am a case in point. I have been celiac since childhood when I developed DH. Neuro issues came next and then fatigue and arthritis and eventually the intestinal issues became more prominent. When most folks think of asymptomatic celiac they are talking about celiac without severe gut issues but even without the gut issues other organs can be severely impacted.

I know it must be hard to be gluten free when folks don't have the severe symptoms that keep many of us strict on the diet but they still need to be strictly gluten free.

Bubba's Mom Enthusiast

I just got a book that someone here recommended..Recognizing Celiac Disease..Signs, Symptoms, Associated Disorders and Complications by Cleo J. Libonati.

In this book it tells all sorts of other things that can be "Atypical" symptoms and side effects. It's really quite amazing how gluten can affect every part of your body.

The book has charts that you can look up a symptom and it tells if it's Celiac related, or malabsorption related, and what vitamins/minerals to offset it. I highly recommend the book!

IrishHeart Veteran

I just got a book that someone here recommended..Recognizing Celiac Disease..Signs, Symptoms, Associated Disorders and Complications by Cleo J. Libonati.

In this book it tells all sorts of other things that can be "Atypical" symptoms and side effects. It's really quite amazing how gluten can affect every part of your body.

The book has charts that you can look up a symptom and it tells if it's Celiac related, or malabsorption related, and what vitamins/minerals to offset it. I highly recommend the book!

I think that may have been me. :lol: I send the link to that site and that book to everyone I can think of ---because when I was very ill and kept "googling" my many symptoms in a desparate attempt to figure it all out, I started to see the connection to gluten and celiac.

Like Ravenwood, I had dozens of conditions (before and after gastro stuff) develop in my life that make sense NOW. (gall bladder, arthritis, miscarriages, anemia, neuropathy, joint/bone pain, burning nerve pain, weak muscles, massive weight loss, insomnia, etc....) My life may have been VERY different had I known about celiac disease/gluten as a child.

Reading about the "atypical" symptoms saved my life and my sanity. I was finally DXed (after I got genetic testing) went gluten-free and started healing. It was all the atypical symptoms that perplexed the doctors and left me to suffer for many years. So, this book made sense of all the debilitating, bizarre, crippling symptoms I developed because of celiac disease and vitamin/mineral deficiencies from malabsorption.

Here is the link--take a look!

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Laura Q's topic in Related Issues & Disorders
      7

      Newly diagnosed

    2. - plumbago replied to Laura Q's topic in Related Issues & Disorders
      7

      Newly diagnosed

    3. - Bronwyn W replied to Laura Q's topic in Related Issues & Disorders
      7

      Newly diagnosed

    4. - Scott Adams replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      20

      Still unsure.....

    5. - knitty kitty replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      4 Years and very little progress


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,820
    • Most Online (within 30 mins)
      7,748

    bell412kid
    Newest Member
    bell412kid
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
    • knitty kitty
      @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide).  My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies.  I studied nutrition before earning a degree in Microbiology because I wanted to know what vitamins were doing inside the body.  My doctors just prescribed pharmaceuticals to cover the symptoms of poor health due to malabsorption of nutrients. We need more thiamine when we're physically ill, physically active, emotionally stressed and work outside in hot weather.  Thiamine works in concert with the other B vitamins, so all should be supplemented together.  Vitamin D needs to be activated by thiamine.  Vitamin D helps regulate the immune system.   Don't take Thiamine Mononitrate because it is not bioavailable.  The body has difficulty absorbing and utilizing it.   Do keep us posted on your progress!
×
×
  • Create New...