Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Testing


Sam81

Recommended Posts

Sam81 Apprentice

I was just wondering if any one knows if a colonoscopy can confirm/disprove celiac DH (dermatitis herpetiformis)??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Yes, I do, and no, it cannot. The intestinal damage caused by celiac disease is in the small intestine, not the colon.

kareng Grand Master

No. DH is a skin problem. A Dermatologist biopsies next to the "pimple" & it is sent to the pathologist for a microscopic look.

An endoscopy is used to diagnosis the small intestine damage from Celiac. Multiple Biopsies are taken of the small intestine & looked at microscopically. A colonoscopy is the large intestine so your confused doctor is looking in the wrong places.

Sam81 Apprentice

Ok, thank you. Mr Dr is convinced I do not have celiac - despite ticking all boxes bar 1. I'm in the UK and have heard of a test you can by over the counter - "Biocard Celiac Test - Gluten Sensitivity test kit". Has anyone bought and tried this? Does it work and does it hold any weight with Dr's??

It really isn't that I want to have Celiac but it's the age old NEED to have an answer to all my discomfort and a piece of paper to hand to people to say - "Look - I'm not imagining it!"

I'm 30 on Monday and feel more like 70. Ridiculous.

pgrovetom Rookie

I was just wondering if any one knows if a colonoscopy can confirm/disprove celiac DH (dermatitis herpetiformis)??

Yes a Colonoscopy can confirm Celiac if the doctor doing it does a biopsy of the intestines after reaching the end of the colon. When I had my Colonoscopy, the GI doc did a Celiac biopsy since he was already in there and could get the biopsy from my lower intestines... If the GI doc only examines the colon as per a normal colonoscopy, no it does no good. Since an endoscopy is easier than a colonoscopy, they usually do the biopsy from the topside. I had both.

In any case, biopsies are better at confirming than ruling out Celiac. The doctor takes a sample of the intestinal lining for later examination under a microscope. If they see the damage from Celiac, its a sure thing. If they don't, it either means you don't have Celiac or they took the biopsy from a healthy area or the Gluten had yet to damage the intestinal lining. In general, ruling things out is a risky game. If something like Celiac is "ruled out" and in error, it will be a long time before they eventually run into something that suggests "un-ruling it out".

This is a very common problem in medicine and is due to cost control. When studies are done in medicine, they actually follow a proper scientific and statistically proper approach by using careful controls, large populations and double blind technique in order not to come to a conclusion in error. Regular medicine abandons this very appropriate method in favor of saving money at the expense of proper diagnosis.

If you are planning to have a colonoscopy, ask your GI doc if they can take a Celiac biopsy from the lower intestine just above the colon. If you already had it and they didn't do that biopsy, it means nothing with regard to Celiac.

psawyer Proficient

It would be better to do an endoscopy of the duodenum (upper part of the small intestine) at the same time as the colonoscopy. There is no extra prep required. I had that done when I was diagnosed. The colonoscopy will not detect celiac, but should be done to screen for other conditions which may exist.

ravenwoodglass Mentor

Yes a Colonoscopy can confirm Celiac if the doctor doing it does a biopsy of the intestines after reaching the end of the colon. When I had my Colonoscopy, the GI doc did a Celiac biopsy since he was already in there and could get the biopsy from my lower intestines... If the GI doc only examines the colon as per a normal colonoscopy, no it does no good. Since an endoscopy is easier than a colonoscopy, they usually do the biopsy from the topside. I had both.

In any case, biopsies are better at confirming than ruling out Celiac. The doctor takes a sample of the intestinal lining for later examination under a microscope. If they see the damage from Celiac, its a sure thing. If they don't, it either means you don't have Celiac or they took the biopsy from a healthy area or the Gluten had yet to damage the intestinal lining. In general, ruling things out is a risky game. If something like Celiac is "ruled out" and in error, it will be a long time before they eventually run into something that suggests "un-ruling it out".

This is a very common problem in medicine and is due to cost control. When studies are done in medicine, they actually follow a proper scientific and statistically proper approach by using careful controls, large populations and double blind technique in order not to come to a conclusion in error. Regular medicine abandons this very appropriate method in favor of saving money at the expense of proper diagnosis.

If you are planning to have a colonoscopy, ask your GI doc if they can take a Celiac biopsy from the lower intestine just above the colon. If you already had it and they didn't do that biopsy, it means nothing with regard to Celiac.

I have never heard of a doctor doing a biopsy of the small intestine with a colonoscopy. Since you say you had both scopes done at the same time I suspect the biopsies were taken during the endo not the colonoscopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.