Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive For Antinuclear Antibodies (Ana)


AJoy

Recommended Posts

AJoy Rookie

I just got a call from the dermatologist who did blood work because I keep breaking out in Petechiae. Apparently I am testing positive for antinuclear antibodies (ANA). Has anyone else gone through this? What can I expect to happen next???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Greenling Newbie

I've tested positive several times (more than five over the past few years) on ANA tests. My guess is that they may refer you to a rheumatologist.

Don't know if this will make you feel better.... I actually just had this test done again in May (with a positive result again) which is when I was finally diagnosed with Celiac. I'd only been Gluten-free for four weeks at that time. My GI and Rhematologist docs said it's quite possible that the ANA reading might be due to the Celiac and once I'm further along the healing process, the ANA may test normal. Or it could signify another auto-immune condition on the horizon. Obviously, I'm hoping for the first option. I have to repeat the test in a year. But if you've not been Gluten-free for very long, the positive ANA might resolve itself.

cassP Contributor

dont worry so much about it. it's my understanding that a positive ANA points to an autoimmune disease or more. i had positive ANA by age 14 (or earlier)... because i had a butterfly rash on my face- they sent me to a Rheumy to test for Lupus. because my ANA was speckled- she also tested me for Sjorgens. i was never diagnosed with either.. and just left as a mystery.. sure would have been nice if they would have tested for other AI antibodies- they could have saved me years of temporary and permanent systems. i dont know if it's buerococy (cant spell?) but our doctors dont seem very interested in solving our puzzles...

i may not have had celiac abs at that time- but i suspect i would have tested positive for Hashimoto's.

are you a Celiac?

and what was that skin thing u mentioned? i havent heard of it yet?

Roda Rising Star

are you a Celiac?

and what was that skin thing u mentioned? i havent heard of it yet?

Open Original Shared Link

jebby Enthusiast

A positive ANA is usually associated with an autoimmune disease (it can also be elevated in certain infections and it is not unusual for it be a false positive either). My ANA is always positive due to my celiac and Hashimoto's disease. It is a test doctors will run if there is a concern about some type of autoimmune disease, but by itself, it does not mean very much. If you have petechiae, they are probably looking to see if your platelet problem is related to autoimmunity.

Skylark Collaborator

Mom's is positive. It has made her very sun sensitive so that's something to watch for. She hasn't developed any other autoimmunity so you can have ANA and be OK.

Marilyn R Community Regular

I just got a call from the dermatologist who did blood work because I keep breaking out in Petechiae. Apparently I am testing positive for antinuclear antibodies (ANA). Has anyone else gone through this? What can I expect to happen next???

I came back with high ANA too. It's freaky when you get the results and research what that means. Be prepared for more weird blood tests if you experiment with alternative grains and you're sensitive.

So my advice is, relax, chill, keep with the diet. Easier said than done. I've actually learned to ask the doc to take the same blood test six weeks later before I get all worked up. (They've told me I could have mixed connective tissue disease and sarcidosis in the past year.) I have neither, it just turned out that I had a few more food bugs.

That said, that's my experience. Your experience could differ.

Good Luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AJoy Rookie

Thank you everyone who responded. It definitely helps a little to know that some of you got a positive test and it didn't mean anything. I go to the rheumatologist is two weeks. Not looking forward to all of the tests and dr appointments, I just went through the Celiac diagnosis last fall, so not even a year and it was a huge pain. Still wondering if the petechiae is related but the weirdest part is my platelet count came back just fine...? Anyway, thanks again and good luck to all of you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,986
    • Most Online (within 30 mins)
      7,748

    Christine1
    Newest Member
    Christine1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.