Doctor Experiences In Nyc?

[slee11211]

Hi,

Just recently diagnosed, and would love to hear from others in NYC who have been through this. I've been in NYC for 19 yrs and have dealt with "domino effect" symptoms, as well as straight out Celiac symptoms the entire time

[lucia]

You're in luck with the doctor who diagnosed you. By "new doctor," do you mean that s/he is young? Maybe that is best, since s/he will be up-to-date with all of the newest research. The medical community has made great strides in understanding celiac/gluten intolerance in just the past few years, never mind the last decade.

I live in NYC too. I ended up relying on the Celiac Center, but another doctor besides Peter Green. I wish I could say that my experience there was incredible and changed my life. But it wasn't that way. I think that Western medicine in general, even at its most advanced, is still pretty ignorant about autoimmune conditions.

By the time I went to the Celiac Center, I had already navigated the difficult (and frustrating) process of figuring out what was wrong with me. Ultimately, I self-diagnosed after a GI specialist (& medical school professor - yikes!) diagnosed me with gastritis and neuropathy but failed to recognize that these things together pointed to celiac. My doctor at the Celiac Center supported my self-diagnosis, which was a relief, but I was still quite sick and I didn't feel like she had the tools to address this. She put me through a battery of tests, all of which were negative, and sent me to a nutritionist who frankly was pretty useless since I had already figured out how to read labels and make substitutions for bread. To my surprise, the nutritionist was focused on very basic concepts for someone already on a gluten-free diet.

Incidentally, I did stumble onto a lecture at the Kripalu Center in Western Mass on "Gut Health" by a nutritionist with holistic leanings. It was great! The lecturer mentioned Dr. Mark Hyman several times, and since then I've reviewed some information online by this doctor. He is a leading influence in what's called "Functional Medicine". Personally, I would look into this, if I could. But functional doctors do not usually take health insurance since they feel it's important to spend more time with their patients than is possible with current insurance laws.

I am working with an acupuncturist now (also, not covered by health insurance ... sigh). I feel that Chinese medicine understands autoimmune conditions much better than Western medicine. I don't know where I'd be without it.

Good luck!

[WinterSong]

I'm in NYC, as well, and I'm with Dr Michael Eng. My first appointment with him I said, "I think I might have Celiac Disease," and he agreed to test me right away. He's very nice and attentive, and I never have a difficult time scheduling appointments. I highly recommend him.

[nancycia]

i was wondering if anyone can tell me of a excellent celiac doctor in nyc, that's not dr.peter green (my insurance does not cover him)?

im currently seeing a doctor at the colombia celiac center and not happy with my doctor.

I was diagnosed 2 years ago in california and have moved to nyc and took a doctor in peter greens office thinking they would be good, since they are in the same office but im not happy with my doc.

Ive been on a gluten-free diet for 2yrs and still have symptoms of bloating and bad digestion etc....

I need a god celiac doc that can help me why i still have symptoms!

thanks!

[AndrewNYC]

I've seen Green and he is a good guy and good doc. The problem I think people perceive with him is that there is some magic bullet to treat celiac. There isn't. I think he gives probably the most comprehensive blood work around for celiac patients and he does a good exam. The only objective problem I have with his office is that its difficult to get an appointment.

I usually see James Marion here: Open Original Shared Link He knows his stuff well and he's been quite good at catching secondary issues I have had in addition to celiac and guiding me through them.