Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help W/ Interpreting My Labs Please

okaretta

Recommended Posts

okaretta Newbie
okaretta
Posted

Can someone please help me with attempting to interpret these results? My doctor says he is uncertain what they mean since only one was positive--he said I could go to a GI doctor but I am currently uninsured and have very little income. I know a biopsy is the only official way to diagnose Celiac Disease but from these I do not even know if I need a biopsy or if I am looking in the wrong direction.

Antigliadin IgA Antibody -- < 3

Reference Range:

Negative: <11

Equivocal: 11-17

Positive: > 17

Antigliadin IgG Antibody -- 27

Reference Range:

Negative: <11

Equivocal: 11-17

Positive: > 17

Tissue Transglutaminase Antibody -- < 3

Reference Range:

Negative: < 5

Equivocal: 5-8

Positive: > 8

Antiendomysial Ab, IgA -- negative

Reference range is stated as negative.

Endomysial Antibody Titer

Reference range: Less than 1:5

My result says to "see note" for the EAT but I actually do not see a note. I do notice at the bottom of this particular test it says "TNP--screening test negative or not detected. Titer not performed." I am not sure what this is in reference to, though.

I am wondering if I could be IgA deficient. Or, do I need more lab done to determine this? I simply don't know and am clueless on what to do. :-(

I had a bone density scanning done in 2008 and it was -1.1. I was 25 years old. I had one done before that and I just remember being told it was "bad". I have a very dairy-rich diet (and gluten-rich one, too). I have no clue why I have what seems to be osteopenia. I am a very active person and of normal weight. I have no other health issues other than hypothyroidism and mild asthma. Since childhood I have had chronic constipation (sometimes I do not go for days, as in, I lose count), urinary frequency (over 20 times a day) and a potassium level that runs right at 3.5. I occasionally have anemia but this last test did not reflect any anemia (I was dehydrated though). Many of the other symptoms of Celiac I have including occasional abdominal pain, serious bloating after meals (I actually look pregnant after eating and I hate this) and serious flatulence which is horribly embarrassing and even to a degree impacts my social life. I recently found out that my thyroid medication needed to be increased (same time I had the Celiac Panel done). Hard to say what is causing my fatigue, joint pain, since both conditions can cause this. I do not often experience diarrhea. I have GERD but gave up on treating it since I have no pain from it and Nexium failed to stop it after 3 months.

Any help is appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Melissac1978 Newbie
Melissac1978
Posted

I'm sorry I don't have advice...just support! I'm in the same boat! I have negative bloodwork, positive biopsy, anemia, osteopenia and dehydration and low potassium! My doctor is at a loss. I have an appointment at a celiac clinic in Boston next week and can't wait! Good luck to you- please send any info you get!

ravenwoodglass Mentor
ravenwoodglass
Posted

Too bad your doctor didn't do a total IGA. If you are IGA deficient then those tests could well be a false negative. You do have a positive IGG which is what doctors would go by if you are lacking IGA. You do sound like you could be one of us. When you are done with testing do give the diet a good strict try and your doctor could rerun the IGG in 6 months or so to see if those numbers have gone down.

okaretta Newbie
okaretta
Posted
  • Author

Thanks guys. I have decided to go ahead and begin the diet. It may be months or even over a year before I have insurance and I just cannot afford to pay out of pocket for things like a biopsy. I do not think I should wait for the diagnosis before starting the diet since my osteopenia is of great concern. I am really thinking I am IgA deficient, especially given the IgA tests above were "less than 3" which technically could mean they are zero. I have many of the signs and symptoms of IgA deficiency, too. Hopefully soon I will have insurance and can have the needed testing--just will hate having to restart a gluten diet!

Can anyone recommend a good bread? I know gluten-free bread is usually found in the freezer section but once bought do you need to continue freezing it or can you leave it out, at least for the day if you have a sandwich made? I didn't see any direction on the bread I bought.

AllergicToEverything Rookie
AllergicToEverything
Posted

I'm pretty new to the whole gluten free thing, but Udi's bread is really very good. I keep it frozen. When I want to eat a couple of slices for a sandwich or whatever, I just break them off the frozen loaf and heat them a minute of 2 in the toaster.

ravenwoodglass Mentor
ravenwoodglass
Posted

I like the Udi's also. I keep mine frozen until I need a loaf (my store runs out a lot so I always buy at least 2). I then let it thaw in the frig and usually toast it before I eat it but it seems to be okay for a sandwich even untoasted.

Kinnickinnick is also good. That one I leave frozen and only pull out what I am using right then.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,026
    • Most Online (within 30 mins)
      7,748
    thegoik
    Newest Member
    thegoik
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.