Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Guy Here, So Glad I Found This Place


89Mirageman

Recommended Posts

89Mirageman Newbie

I honestly feel that God led me here and I really mean that. I am a 33 y/o male and I've had issues with my stomach as far back as I can remember. They have gotten quite a bit worse over the past two years. I have a dull aching pain in my lower right abdomen, pretty much all the time. Its not as sharp when I am standing for some reason. Also I have always had problems going to the bathroom if you know what I mean. Seems I have to take stool softeners or laxitives. The Doctor told me to eat more fiber, put me on colace, told me to drink more water and eat a lot of fresh fruits and veggies. I did all of that and had zero improvement.

Also I was diagnosed as a type two diabetic about ten years ago. So if it turns out that I have this disease as well it will really cut down on what I am able to eat on a daily basis. Lately I am always tired, I can sleep for 8+ hours and get up and it seems I'm yawning again two hours later. I've also been having some headaches and pain in my left jaw. Up until lately I never got headaches. I've noticed some joint pain in my left knee as well and lower back pain. Some sinus issues too and again I've never had any problems with my sinuses.

I have been mentioning my constipation issues to doctor's in the past and they all pretty much ignore me. Also they say the lower pain in my side is probably coming from the constipation. Its frustrating to say the least. A few months ago I was hospitalized for being dehydrated. Just before that I was treated with sterroids and antibiotics for an ear infection. It has since cleared up but I still have a fullness in my ear, kinda hard to explain. They did a CT scan of my stomach and all tests came back fine, they did a ton of blood work as well and didn't find anything. An upper endoscopy showed that I had gastroparesis (slow stomach emptying), my blood sugars have been perfect for two months now and I am eating smaller meals but the stomach pain is still there which leads me to believe that I also have celiacs. After reading a ton of threads on here its like a little light bulb came on in my head. To know that its not my imagination, there may actually be a reason why I feel like I'm 80 instead of 33. Why I am plagued with all of these other health issues.

I have been gluten free for about a week or so I thought. I'm still learning and seeing that some of the things that I have eaten over the past few days probably still contained gluten, McDonalds fries and trail mix from the grocery store to name a few. Tomorrow I will start eating nothing but meats, fresh fruits and veggies and see how it goes. I'll lay off the milk, soy and nuts as well. Just wanted to introduce myself and thank everyone for putting this awesome site together. I'm not looking forward to cutting out the gluten but if it means I will feel better it will be worth it for sure. Sadly I don't have any type of health insurance at the moment because I am not working so having a lot of test done is out of the question. I'm hoping my issues will go away in time with the new diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome aboard,

I don't know about the trail mix, but McDonalds fries, while controversial, do not contain any detectable gluten. Look first for other possible gluten sources. If you come to the conclusion by elimination that McDonalds fries are an issue, then it is more likely that cross-contamination in the restaurant is the source than anything intentionally included in the fries.

The fryers used for potato products at McDonalds are at the front

of the shop and are tended by the window crew. Everything else is fried in the back by the grill crew.

gluten free overseas Apprentice

I had the same issues with constipation, so I understand that nightmare. I took me 4 months of being gluten free before I was regular (well, as regular as I have been in my life... not totally there yet). Don't get discouraged if it doesn't clear up right away--it takes a while for your intestines to heal. Just be careful how many things you replace with rice flour because eating lots of products made from rice can bind you up.

89Mirageman Newbie

Right now, everything that I eat still bothers me. I'm sure it will take my intestines a while to heal since I've been sick for so long. I read somewhere else on here about the fries at McDonalds containing gluten so that's why I mentioned it. I guess for now I still need to eat whole foods and not eat out at all until I get better. As for the trail mix I meant to say the nuts were bad and the m&m's contain milk so its probably a good idea to stay away from those at first too.

Should I run out and buy a new toaster and pots/pans just for me? I was wondering if I could line them with aluminum foil for now while baking or making toast? At least until I find out if this diet is helping me at all. Also what are you guys taking at first to help with the pain and inflammation? I'm taking zantac twice a day. Pepto helps too but causes constipation and I don't need any help with that lol.

89Mirageman Newbie

So I went to see my regular doctor today for a checkup and decided to mention celiac to him. He knew exactly what it was but told me that caliacs don't have constipation issues, only diaharrea. I go on to tell him about this site that I ran across while searching for my symptoms online and he's like, well we can do the test the next time we need bloodwork from you. Before this I had just mentioned that I have been gluten free for about a week or so and that didn't seem to matter. To me that clearly tells me that maybe he doesn't know as much about this as he thinks he does.My plan is to stay on the diet and hope for the best.

So my next question is, how many on here had severe constipation problems? Also did your gut hurt as soon as you ate, a few hours later once it reached your intestines or what? Any other symptoms? Thanks for all the help in advance!

anabananakins Explorer

So I went to see my regular doctor today for a checkup and decided to mention celiac to him. He knew exactly what it was but told me that caliacs don't have constipation issues, only diaharrea. I go on to tell him about this site that I ran across while searching for my symptoms online and he's like, well we can do the test the next time we need bloodwork from you. Before this I had just mentioned that I have been gluten free for about a week or so and that didn't seem to matter. To me that clearly tells me that maybe he doesn't know as much about this as he thinks he does.My plan is to stay on the diet and hope for the best.

So my next question is, how many on here had severe constipation problems? Also did your gut hurt as soon as you ate, a few hours later once it reached your intestines or what? Any other symptoms? Thanks for all the help in advance!

Yep, always C for me, very rarely D. Stomach aches my entire life - gone gluten free. It usually takes 2 hours after eating for me to know I've been glutened.

  • 3 weeks later...
89Mirageman Newbie

Just a little update on myself. I have been gluten free for about a month now. It seems like my issues are a little better but not a lot. Still pretty constipated and the bloating/pain is still there a little while after meals. My wife and I started walking a lot and that really seems to help with the gas (lol). Tonight for instance I ate one baked pork chop and some cabbage with vinegar and about an hour later here comes the bloating and stomach pain. I have really cut down on what I eat and I went from 206 to 182 which is good because I needed to lose some weight. Also my blood sugars are a lot better but like I said I walk a lot and don't eat as much so that's a given.

Any advice on what I should do next or is a month just not enough time to see a difference?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I don't know how long you went undiagnosed. It can take considerable time to heal the intestines once you are on the gluten-free diet. During that healing period, symptoms may continue even though gluten has been eliminated. On that scale, one month is very little time. For me, it took more than three months gluten-free before my symptoms completely went away.

89Mirageman Newbie

Well that's another thing, I haven't officially been diagnosed. I just knew that I had a bunch of the symptoms and decided to try the diet. Also I guess when you heal little by little you really don't notice it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

    2. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety

    3. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      2

      Manitol and mri

    4. - Scott Adams replied to bombier's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      KATZ CINNAMON DONUTS

    5. - Scott Adams replied to Beeroney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Newbie possible glutening help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,791
    • Most Online (within 30 mins)
      7,748

    klholt
    Newest Member
    klholt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
    • Scott Adams
      The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a clear image by distending the bowel and stimulating a bowel movement. While the names sound similar, the function and formulation are very different from a small-quantity sweetener. That said, your concern is valid and should be addressed with your healthcare team. The most important step you can take is to call the MRI department or your referring doctor directly. Explain your specific reaction to sweeteners in detail—mentioning the throat and ear sensations is crucial as it could indicate a more significant sensitivity. They can confirm the exact drink they use, check its full ingredient list for you, and determine if an alternative prep is available or if pre-medication is recommended to ensure your safety and comfort during the procedure.
    • Scott Adams
      I'm so sorry to hear you're feeling so unwell, and I hope you recover quickly. While your personal experience of getting sick is absolutely valid, there are a few key inaccuracies in the information you've shared that are important to clarify for anyone else reading. The central misunderstanding is about oats and gliadin. Oats do not contain gliadin; gliadin is a specific protein found exclusively in wheat. The protein in oats is called avenin, which is similar in structure but is a completely different compound. For the vast majority of people with celiac disease or gluten sensitivity, pure, uncontaminated oats are safe. The reason "gluten-free" oats are necessary is because regular oats are frequently cross-contaminated with wheat, barley, or rye during growing and processing. Certified gluten-free oats are tested to ensure they are free from this cross-contamination. It's possible you may have a separate and less common sensitivity to avenin in oats themselves, or the illness could have been caused by another ingredient or even an unrelated virus. Given your expertise and severe reaction, it would be a good idea to discuss this with a doctor to pinpoint the exact cause. This article, and the comments below it, may be helpful:    
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • trents
      Celiac disease is an autoimmune condition with a genetic base. The the potential for developing the disease is inherited. but remains latent until triggered by some stress event. Thus, there is an epigenetic component to celiac disease. Once the genes are awakened from dormancy, celiac reactions are triggered by the ingestion of gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.