Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rejoice With Me! I Have Good News...


love2travel

Recommended Posts

love2travel Mentor

My doctor's office just called and my celiac panel is now NEGATIVE! The number is 3.8 and anything under 7.0 is negative. Initially it was 71 which is off the charts positive.

So, just to encourage those who are new - it can be done. I have been strictly off gluten for nearly six months - had this bloodwork done at five to see where I am at. I am not surprised at all because I have worked SO very hard but still. Happy day! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Yeay!!! What a great result. Well Done!!

eatmeat4good Enthusiast

That is wonderful news!! And as one who doesn't react severely to gluten, your perseverance has really taken some strength and it has really been amazing! The way you accepted the diagnosis and dove right in to the positive side of gluten free cooking and baking has been inspiring to me. I loved how you wrote that your passion was baking and you weren't about to give that up to Celiac Disease. I went through a depression about having loved to bake all my life. I felt as if I had been poisoning myself and my son with all my inspiration for baking when WHEAT was what was making us sick all those years. I shuddered to think of going to the kitchen to bake. I was really rather stuck. But when you showed up on the scene here with all of your enthusiasm, I couldn't help but absorb some of it. And indeed, I did learn to bake some chocolate chip cookies as I stepped back into the kitchen trying to make it my own once again. Your work in being totally gluten free and making your numbers go down to negative is very impressive, but I wanted to share with you that your "work" in being such a positive enthusiastic influence in that recipe and food department has been an inspiration and bumped me up out of my depression about wheat and poisoning people into making my kitchen my own again. Thank you very much and congratulations to you on your success!

viviendoparajesus Apprentice

yay! i am happy for you! it is also encouraging for those of us who are still struggling and trying to figure out what we need to do to feel better.

love2travel Mentor

Yeay!!! What a great result. Well Done!!

Thanks so much! :D

love2travel Mentor

That is wonderful news!! And as one who doesn't react severely to gluten, your perseverance has really taken some strength and it has really been amazing! The way you accepted the diagnosis and dove right in to the positive side of gluten free cooking and baking has been inspiring to me. I loved how you wrote that your passion was baking and you weren't about to give that up to Celiac Disease. I went through a depression about having loved to bake all my life. I felt as if I had been poisoning myself and my son with all my inspiration for baking when WHEAT was what was making us sick all those years. I shuddered to think of going to the kitchen to bake. I was really rather stuck. But when you showed up on the scene here with all of your enthusiasm, I couldn't help but absorb some of it. And indeed, I did learn to bake some chocolate chip cookies as I stepped back into the kitchen trying to make it my own once again. Your work in being totally gluten free and making your numbers go down to negative is very impressive, but I wanted to share with you that your "work" in being such a positive enthusiastic influence in that recipe and food department has been an inspiration and bumped me up out of my depression about wheat and poisoning people into making my kitchen my own again. Thank you very much and congratulations to you on your success!

Do you have any idea how much your words mean to me? This is so unbelievably kind and caring of you. It makes me SO happy to have inspired someone to cook and bake! What you said indeed brought tears of gladness to my eyes. So, I guess my passion for food shows. :P This is one of the reasons I love to teach cooking and baking classes. People who walk into the room detesting lamb, for example, leave feeling passionate about it. They can conquer fears or things that seem intimidating. That is what counts. Not just the food but encouraging people to cook and bake. I think it is an important skill. We are responsible for our own health so why not make it exciting and inspiring? Our kitchens should be safe havens where we can also enjoy creating fantastic food for ourselves and those we love. WE CAN ALL DO THIS!

Thanks again for your remarks. Wow.

Bubba's Mom Enthusiast

Congratulations...well done!

I think it would be especially hard for you to be vigilant since you don't get digestive symptoms from gluten? You're obviously doing it right.

I love that you share your passion for cooking/baking here. I've just ordered a stand mixer..my first. I may have questions for you once I get into more baking. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Congratulations...well done!

I think it would be especially hard for you to be vigilant since you don't get digestive symptoms from gluten? You're obviously doing it right.

I love that you share your passion for cooking/baking here. I've just ordered a stand mixer..my first. I may have questions for you once I get into more baking. :D

Thank you so much! It has been very difficult because I have been wondering all along whether I have had any accidental glutening by CC or whatever. Obviously not! So, I will continue doing what I have been doing. Thanks for the feedback re sharing my passions here. I know it may seem OTT or extreme sometimes but when you love something so much you want to share it with others you care about. :)

How exciting about your mixer! Please tell us the moment it arrives. :D I already look forward to baking with you! :lol:

Bubba's Mom Enthusiast

I ordered a KitchenAid Artisan. They had a rebate available. ;)

I'm thinking one of the first things I'm going to want to try is a pizza crust? Haven't had a pizza in ages!

love2travel Mentor

I ordered a KitchenAid Artisan. They had a rebate available. ;)

I'm thinking one of the first things I'm going to want to try is a pizza crust? Haven't had a pizza in ages!

That is wonderful! Pizza crust is an excellent first thing to try. I posted two of my favourite recipes on here (likely under the Recipe section). One is for a thinner crisp crust and the other on is for soft crust. We've also been grilling pizza lately for the lovely charred flavour. Sounds as though there are some good pizza crust mixes available in the US, too.

Congratulations! You are sure to love your new KA. Welcome to the KA Club! :D

sa1937 Community Regular

I ordered a KitchenAid Artisan. They had a rebate available. ;)

I'm thinking one of the first things I'm going to want to try is a pizza crust? Haven't had a pizza in ages!

Yaaay!!! Now to see if all of us can come up with that *perfect* loaf of bread!!! B)

Takala Enthusiast

Hey! I remember when you showed up, you said you thought you couldn't do this. Hah !

Congratulations!

love2travel Mentor

Hey! I remember when you showed up, you said you thought you couldn't do this. Hah !

Congratulations!

You're right - I did! My attitude really was poor, that is for sure. It took me about two months to get my head wrapped around the whole thing. It is funny looking back, wondering if I was going to be one of those people who could sincerely say it does get easier and I am! It does! :D

domesticactivist Collaborator

This is wonderful to read! You are doing amazing - thanks for sharing the good news :)

Bubba's Mom Enthusiast

LOL Sylvia! You have a better chance of making the perfect bread. I don't have any experience with the various flours.

I was never much of a baker because everything has to be weighed or measured and have the correct ratios, etc. I'm better at cooking where I can just sprinkle a bit this or add a pinch of that..and it all works out. :rolleyes:

love2travel Mentor

This is wonderful to read! You are doing amazing - thanks for sharing the good news :)

Thank you for being happy with me! It is remarkable that so much can be done in a relatively short timeframe. Hopefully this is an encouragement to others to keep keeping on.

sa1937 Community Regular

LOL Sylvia! You have a better chance of making the perfect bread. I don't have any experience with the various flours.

I was never much of a baker because everything has to be weighed or measured and have the correct ratios, etc. I'm better at cooking where I can just sprinkle a bit this or add a pinch of that..and it all works out. :rolleyes:

Pffffft! I wouldn't go that far. :lol: I'm still very much in the learning process even though I have a few bricks to my credit. :ph34r: Since my kids are grown I wasn't much of a baker for years until I was diagnosed. Heck, I could buy a single piece of cake and not have to deal with a whole cake getting stale. And a loaf of bread lasted for a long while.

You cook much the same as I do...unless I'm trying something new or very different, I rarely follow a recipe. Except for gluten-free bread (I still rarely bake much else) although tomorrow I am going to make lemon bars for a get together with friends on Mon.

Bubba's Mom Enthusiast

Well..I've seen that many others have a few "bricks" from their baking exercises. LOL

I guess we will be able to answer the question.."how many bricks does it take to "build" a good loaf of bread"? :D

I never ate a lot of bread either. One loaf of Udi bread lasted me 6 weeks..kept in the freezer of course. ;) The last of it was used to make croutons. I never thought I would crave them! LOL

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.