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Decided To Do Gluten Challenge For Sure This Time, Uugggh!


txplowgirl

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txplowgirl Enthusiast

Hi everone, hope everybody's doing good today.

Been gluten free for 2 and a half years now give or take. Due to ongoing fatigue symptoms that are not going away and that I don't want to put off on the fibro I have an appt with an internal medicine dr Sept. 13th. He will be testing from what I understand everything from thyroid, lupus, adrenals, etc. He also does celiac testing. So, I decided what the heck, I'm doing a gluten challenge. Been 3 weeks now, and I have to say it's going better than I thought it would. I've tried twice before but quit after 2 weeks both times, just couldn't take it anymore. I'm having problems and i'm not feeling good at all but i'm living with it. So far.

I've done told everyone that as soon as the testing is over they can all go fly a kite because i'm going back to being gluten free. I'm doing this for me not them. I just can't quit wondering if I might test positive or not. I know I definetly have a gluten problem.

Uugghhhh, just wanted to vent and say i'm still here and still alive. :P


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Poppi Enthusiast

Good luck, hope you get some results you can work with.

I have been considering doing a challenge myself but I can't bring myself to do it. I tried twice and never lasted past the first day.

Skylark Collaborator

Hang in there. I'm glad you're not getting super-sick from it.

love2travel Mentor

Three weeks - you are doing well! So glad you are not as sick as you had expected to be. My challenge was for nearly four months but as I did not feel sick from gluten it was easy for me. I was lucky. How long were you told to do the challenge for? Hopefully you will get answers not just regarding celiac but also any other issues.

Bubba's Mom Enthusiast

i'm glad you're able to do the challenge without too much trouble. Hopefully you'll get some answers!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
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