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Other Things Upset Me


surfer

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surfer Explorer

hello,

i have cut gluten out of my diet for the last 9 months.. I have noticed i still get sick with corn, niteshades etc...so i have cut them out....Now i noticed after eating gluten free bread im sick...so i looked at whats in it...Tapioca starch. so i did some research on Tapioca and noticed people can get sick from that too!! So, im so lost now... I have been so careful with my diet...Can anyone please let me know if i have created other allegies and what to do about this....Also, has anyone had the same problems?

Thanks so much....i look forward to hearing all your answers.


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captaincrab55 Collaborator

Try eliminating dairy....

surfer Explorer

Try eliminating dairy....

hi i have stopped dairy products i think...Would gluten free crackers have dairy?

captaincrab55 Collaborator

hi i have stopped dairy products i think...Would gluten free crackers have dairy?

Many processed foods contain dairy...

T.H. Community Regular

hello,

i have cut gluten out of my diet for the last 9 months.. I have noticed i still get sick with corn, niteshades etc...so i have cut them out....Now i noticed after eating gluten free bread im sick. So, im so lost now... I have been so careful with my diet...Can anyone please let me know if i have created other allegies and what to do about this....Also, has anyone had the same problems?

First, I would very much doubt that you have created any allergies. If you are eating the same food every single day and your body is prone to having food issues, perhaps that could be a problem, but avoiding those foods for a few months and then eating that food only periodically will often take care of that issue.

However, I also reacted to corn, and to gluten free bread, and so did my daughter. And for me? It turned out to be gluten contamination of the corn and of the gluten free bread that we reacted to, not the corn or the bread itself (although I may have a corn issue too. We're testing that out).

Sadly, gluten free does not equal zero gluten. Most processed food contains some level of gluten, just a level below 20ppm concentration. However, some celiacs, like myself and my daughter, react to lower amounts of gluten than the norm. Studies have found evidence of this in others, too. The '20ppm' standard for gluten free food seems to be chosen more on the basis of 'ease of testing' and 'ease of compliance by the food industry' rather than 'what is safe for all celiacs.' <_<

Also, if you live in the USA, there is no law currently in place that is regulating gluten free products. So gluten free products are not all equally 'gluten free.' Here, a company that tests its food for gluten levels and makes it on a gluten free line and in a gluten free facility can use the term 'gluten free.' But so can a company that never tests its products and uses a shared line and a shared facility.

For the latter, getting a contaminated batch would be much more of a potential risk, obviously.

Now, I do have a few allergies too, myself, but gluten cc has been my biggest issue. IF you suspect this might be the case for yourself, the easiest way to test it that I've seen is to get pure, unprocessed versions of the food in question, as best you can. Like find some cassava root (and look up how to process it - if it's not made right it can make you sick) and cook and eat it, see if it really is an issue. Same with corn.

Or even grow it yourself, if you start to suspect that a pesticide or coating or other chemical could be contaminating your produce and causing problems.

We've had to learn through painful trial and error that there way too many substances touching our food before we even get it. Usually, we assume the food itself is the issue, at first. But if you are reacting to lots of your foods, then it might be worth your while to start doing some research to see if a contaminant or chemical of some kind might actually be the issue. :)

lucia Enthusiast

After going off of gluten, I felt immediate relief. However, then I began reacting to many foods including dairy, soy, corn, and then, it seemed everything. I would drink a glass of water and feel digestive cramps.

I still don't understand what was going on, but my gut was a mess. I went on an SCD diet (look it up online, but no grains for 6 months) and it worked for me. Now, I can eat everything except gluten without issues.

rosetapper23 Explorer

You may be experiencing what is called cross-reactivity. This occurs when a person goes gluten free, but his/her body immune system is still in overdrive. It begins mistaking other foods for gluten (oftentimes other grains), and the body responds with the same symptoms as though you had actually eaten gluten. This is discussed in the book "The Gluten Effect." The authors recommend that you eliminate all grains and other suspected foods for three months and then reintroduce them one by one. Oftentimes, the body's immune system has quieted down by then and will no longer react negatively to non-gluten grains. However, the authors also say that it can take up to a year for your body to stop reacting to some foods.


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YoloGx Rookie

I have had similar problems. I went off all grains for a year and still had problems with itchy ears and eczema. Turns out I am salicylate sensitive and have had to cut out most fruit and quite a few vegetables as well as a few grains. Thus definitely corn for me is out, as are tomatoes and peppers. I can eat pealed white potatoes amazingly enough. But no other type.... Seems a little nuts but there it is. (And yes no nuts either...also high in salicylates).

Both severe gluten sensitivity and salicylate sensitivity mess with the gut, creating leaky gut syndrome each on their own. I have both so go figure. No wonder I am allergic to so many different things. Eventually I hope to be less reactive as the lining of my intestines heal. Nattokinase helps, as does L-glutamine and enterically coated probiotics. But the main thing is to stay off all stray gluten and medium to high salicylates.

I am trying out alternative therapies just so I can eat a little more normally. The one good thing is that I can eat a few things now I couldn't before, like brown rice. And sometimes now I can tolerate banana or an old peeled golden delicious apple if its baked into a rice goody. Yes home made. Honey is out but maple syrup is in. I thought I had candida overgrowth given my often white tongue, but again it was the salicylate sensitivity all along. Definitely beet sugar is out, but a little cane sugar now and then is tolerable.

The world is a funny place sometimes. One has to do what one can to get on. I am trying to, and have come up with some answers this last year. It hasn't finished yet. I will let you know if the anti allergy laser therapy works and/or any homeopathics... since herbs (ironically) no longer agree with me except for parsley, and garlic and some onion.

lucia Enthusiast

I went to the Celiac Center which is supposed to be the best in the world with this, and my doctor couldn't help me with this. She gave me all kinds of tests to decipher what was going on with me after months off of gluten. She couldn't find any answers. As I said, I was having digestive cramps in reaction to *everything*, as well as seemingly-inexplicable exhaustion. It makes me wonder how little M.D.s understand this.

It's been a year with the SCD diet and weekly acupuncture sessions, and I know I'm still not 100% healthy. What's up with that? It seems so many of us struggle like this. Attaining health is not just a matter of going off of gluten. Our condition - often, but not always - seems so much more complex than that.

shadowicewolf Proficient

Unfortenently science isn't perfect at all, in some cases such as this, sometimes it is wishful to think that it could figure out why you react the way you do.

My own example, i no longer tolerate string beans and sweet potatos :blink: but have fallen in love with prunes :blink:

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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