Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Mad!


ACopsWife

Recommended Posts

ACopsWife Rookie

I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub. I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor. She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days. We asked if this came from the manager and she said YES. I was so upset I was almost in tears. So I got a burger plain (HOW BORING!) So after my meal I asked to speak with the manager to express my frustration. We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs. He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault. I cleary stated it was doctor perscribed.

UGH!! I just needed to vent. This has been hard for me as it is and then this...How frustrating. I think I need to get a dining card, do you know where I can get one!

Thanks

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Here are some restaurant cards you can get:

Open Original Shared Link

I understand it is frustrating and there are encounters like that we will get.

Ordering something with no bread you have to make sure that the bread never touches what you eat because if they just take it off of the burger then it will be contaminated. It will always be a risk to eat out if the place serves gluten so just be prepared of that too.

Guest nini

Open Original Shared Link

has .pdf files of printable dining cards in both English and Spanish for free.

elonwy Enthusiast

I got my dining card from the celiac sprue association's intro packet.

Its more in depth than the other ones, and makes recommendations for what you CAN have too, which i like.

www.csaceliacs.org

hth

Elonwy

macman Rookie
I am from the Quad Cities (IA/IL border) I was in Madison, WI yesterday for work and we ate at Clauddaugh Irish Pub.  I ordered a Steak Sandwich, no bread and I told the waitress it was for dietary needs perscribed by the doctor.  She comes back and says they can not do it because it is a new menu item and it has to be prepared the same way for 30 days.  We asked if this came from the manager and she said YES.  I was so upset I was almost in tears.  So I got a burger plain (HOW BORING!)  So after my meal I asked to speak with the manager to express my frustration.  We explained we are in the restaurant business (Corporate Side) and understand the need for consistency but you need to be accomodating to guests needs.  He was very non-apologetic and said they do make exceptions for special dietary needs but he didn't know that was why I couldn't have the bread! He made it seem like it was my fault.  I cleary stated it was doctor perscribed.

UGH!! I just needed to vent.  This has been hard for me as it is and then this...How frustrating.  I think I need to get a dining card, do you know where I can get one!

Thanks

Heather

<{POST_SNAPBACK}>

I am surprised you stayed there and gave them any of your money. I had a frustrating experience at a Tony Roma's in NV. Their website say they are gluten-free. The restaurant said no-so I said bye-bye and told them I was headed to Outback.

Sorry you had that experience....

pixiegirl Enthusiast

I've read about similar experiences on these boards, I'm very thankful they have never happened to me. But I do agree with the poster that said, why did you stay? Probably you had other people in your party that wanted to stay but even so... there had to be other places that you'd all like that would be more accomodating. I make it a point to never go to places that won't work with me and to frequently visit the places that do. I'd never pass my money out to a restaurant like that.

Lastly, I think when the server told you that you should have politely said, Could you ask the manager to come to our table for a minute? However I'd be afraid in a place like that, that they would make it in the normal way and then take the bun off.

Oh well, I'm sorry you had such a rotten experience.

Susan

Canadian Karen Community Regular

I would have pointed out to the manager that they had better wake up and smell the gluten free coffee. I would have pointed out the high incidence of celiac disease in the Irish population and if they want to stay competitive in the restaurant business during the "celiac disease diagnosis revolution", they better be more accomodating......

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would have just said "It doesn't matter if YOU don't know why I can't have it - my doctor knows. As you've just stated you have a policy allowing the chef to make dietary accomodations, why are you discriminating against me in particular in applying that policy?"

  • 2 weeks later...
Dittenheim Newbie

Hi "Cop's Wife"

I had a very similiar situation last summer in Rhode Island (see the string I started "Discrimination").

I wrote a letter to the restaurant and never got a reply, so I wrote to the RI Commission of Human Rights who felt it was an important issue and instigated a suit on my behalf against the restaurant. Unfortunately, according to the ADA regulations no special accommodations or considerations need to be made for dietary restrictions, so the suit was denied.

A substitution of something else that is also on the menu and/or a willingness to leave something off the serving to protect our health is a very small concession for any restaurant to make. It's the difference between being dietary friendly and dietary hostile.

Anyway, give us the address of the restaurant you had your problem with and I will write a letter of complaint, as, I'm sure, many others will.

Restaurants that are so unaccommodating need to be publicized. There are enough of us (especially when you add in our non gluten-free family members who eat out with us) to make an impact on a restaurant's bottom line.

We need to share the replies (or lack thereof) we get back from the restaurants to see what effect our correspondence has on them. Not too many will be as dietary friendly as Outback, but some, I'm sure, will realize they need to be less dietary hostile and will change their policies - if only to allow substitutions when necessary.

Those which refuse to allow any concessions should be placed in a "Hostile Restaurants" list and we should boycott them.

- Dittenheim

PreOptMegs Explorer

It is situations like these that scare me away from eating out... I ate at Outback for the first time since my diagnosis. I was so scared of cross-contamination, I almost forgot to enjoy the food, but today I feel great and the waitress was so nice and considerate. I am not going to make it a habit, but it was nice to have a gluten-free meal outside of home....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.