Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Not Able To Add Back Dairy?

GFreeMO

By GFreeMO
in Food Intolerance & Leaky Gut

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I have been gluten free for about 2 years. Back in Dec. I added back dairy. It caused me problems so I started popping lactaid pills and using lactaid milk. It seems like it has stopped working. I have had horrible trapped gas and mucus and gas pain. I had yogurt last month and broke out with cold sores and it's been giving me headaches. Is it possible to become entirely intolerant after 2 years to dairy. Does this seem like casein since the lactaid stuff isnt working anymore or is it just possible to develop this new intolerance?

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I have been gluten free for about 2 years. Back in Dec. I added back dairy. It caused me problems so I started popping lactaid pills and using lactaid milk. It seems like it has stopped working. I have had horrible trapped gas and mucus and gas pain. I had yogurt last month and broke out with cold sores and it's been giving me headaches. Is it possible to become entirely intolerant after 2 years to dairy. Does this seem like casein since the lactaid stuff isnt working anymore or is it just possible to develop this new intolerance?

Thanks!

I cut out dairy for the first year. When I tried to add it back in I had a similar experience, except I didn't try using lactaid. I seemed okay with yogurt and hard cheeses at first so I stuck to those, but I started having bloating. Then I started noticing I was congested and coughing everytime I ate dairy. Then I started having severe allergic reactions where my throat felt like it was closing shut. I somehow developed a milk allergy and now I have to carry an epi-pen. The milk allergy thing seems to be rare according to my allergist. But he said you can develop new allergies or intolerances anytime in your life or it's possible to be born with a mild allergy/intolerance that get worse as you get older. In my case I think I was born with a milk allergy. My mom said she had to take me off of milk products as a toddler for a while and I had asthma which is now practically gone off dairy. Bottom line is it's possible your intolerant to casein and it's new or it's possible you have always had it and being gluten free just made it more noticeable. I would go back off dairy if I were you.

GFreeMO Proficient
GFreeMO
Posted
  • Author

I am going to cut out all dairy again. It just does not agree with me. Getting cold sores, mucous stools, headaches, knee pain is not worth it! I am kind of thinking that I am casein intolerant b/c even that coffeemate creamer that is lactose free makes me sick and it has casein in it.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I am going to cut out all dairy again. It just does not agree with me. Getting cold sores, mucous stools, headaches, knee pain is not worth it! I am kind of thinking that I am casein intolerant b/c even that coffeemate creamer that is lactose free makes me sick and it has casein in it.

are you sure that coffeemate creamer is gluten-free? I seem to remember some other posters have trouble with it recently. I'll see if I can find the thread and post it for you.

ETA: Okay, never mind. YOU were the one asking about so I guess you got your answers already and eliminated it.

I think taking out all casein is a great idea.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748
    Hughesy
    Newest Member
    Hughesy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.