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What Is The Longest You've Gone Without Gettig Glutened?

livelifelarge24

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livelifelarge24 Enthusiast
livelifelarge24
Posted

Now that I'm realizing just how sensitive I am, it's starting to scare me. I really thought that cutig gluten out of my diet was the cure to everything. But it seems every time I turn around I find something new to wary out for- restaurants, roommates, dog food and treats, etc. I am realizing how obsessively clean and careful I have to be but I'm curious if I'm just ALWAYS going to be getting glutened. What is the longest you've ver gone without getting glutened?

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gluten free overseas Apprentice
gluten free overseas
Posted

In the beginning, it happened a lot... the packaged hamburger had fillers, my hand cream had wheat germ oil and so on. After a while, it happens fewer and fewer times. One thing is that I got glutened a lot when I had a mixed kitchen. I'd accidentally put the wrong syrup on my pancake or breathe in some wheat flour by accident. I don't get glutened much now that the entire household is gluten free. If I get glutened, it's because I ate at a restaurant and tried something new and thought it was safe and it wasn't. That's a BAD glutening--like, I can't get out of bed for 6 hours, and then the symptoms lingered for forever. After that happened a couple of times, I really don't eat out a whole lot.

Keep reading labels. Eventually, I realized that high fructose corn syrup made me sick. You might find out that something else bothers you too.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

I'm dealing with the flour in the kitchen thing. I felt amazing for two months then got a new roommate that is a chef and bakes bread from scratch at least twice a week- flour all over the kitchen. It took four weeks of hell to figure out that's what has been making me sick. Even though I havebit pinpointed I still feel incredibly discouraged, like this is going to ve much harder than I thought.

desert rose Newbie
desert rose
Posted

I'm dealing with the flour in the kitchen thing. I felt amazing for two months then got a new roommate that is a chef and bakes bread from scratch at least twice a week- flour all over the kitchen. It took four weeks of hell to figure out that's what has been making me sick. Even though I havebit pinpointed I still feel incredibly discouraged, like this is going to ve much harder than I thought.

I have found that being able to control the environment is the only way to be completely safe. Even eating out at friends places that know that I am gluten intolerant has had dire consenquences. Dont give up hope. Remember that it is a complete lifestyle change and it really does get easier.

Jinkomedy Newbie
Jinkomedy
Posted

i know how you feel, in the beggining i was super happy that i found something that might caused my major weight LOSS. and other symptoms. its also getting to me. its real hard when everything contains gluten(mostly the good stuff).

tarnalberry Community Regular
tarnalberry
Posted

Now that I'm realizing just how sensitive I am, it's starting to scare me. I really thought that cutig gluten out of my diet was the cure to everything. But it seems every time I turn around I find something new to wary out for- restaurants, roommates, dog food and treats, etc. I am realizing how obsessively clean and careful I have to be but I'm curious if I'm just ALWAYS going to be getting glutened. What is the longest you've ver gone without getting glutened?

I don't remember the last time I got glutened... probably more than two years ago. It's possible that I might not notice very slight contamination, but I DO get sick from cross-contamination, so it's not just that I'm a silent celiac. It's that we don't generally eat at restaurants, and when we do, it's ones that I've been at before and am very careful with menu selections and are offering naturally gluten free food (thai and sushi are the most common things we do). We don't have roommates, my daughter doesn't get gluten-y food if I'm around, our dog is also grain free (better for them anyway), the house is mostly gluten free and gluten doesn't get cooked in the house, and I generally bring my own food with me if we're eating a friends house (though there are two people I feel comfortable with cooking for me, my mother in law and one friend).

But I've been doing this for eight years (and one of those years, I was ridiculously, extra careful because I was pregnant). The first year, it was probably every other month or so (and my reactions tend to take two weeks to work their way through), then two or three times a year for a while.

It gets better, but it's a change in lifestyle that you have to really adapt to and THEN become habituated to as well. You'll get there! Just keep working at it!

love2travel Mentor
love2travel
Posted

I have been extremely diligent for six months since my celiac diagnosis and got glutened accidentally once early on to my knowledge (a company had briefly changed its labeling). But our household went gluten-free immediately, I NEVER eat at fast-food places or chains and have also managed not to eat at others' homes or functions (yet). :) We have no children (now THAT would be hard) and my husband is as diligent as I am (although he does have gluten outside our house).

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Jenniferxgfx Contributor
Jenniferxgfx
Posted

Ugh, it's only been a couple months for me, but I can't go more than 5 days so far. :( often the reaction is just a tingling hand (and a bit of asthma several hours later), but if I have a couple tingly hand exposures in a day period, I wind up with more severe symptoms. It's been really hard to accept. And I wanted to live in a bubble. I still kind of do.

Controlling my environment has helped a LOT as someone else said. But honestly it IS hard to be so vigilant. And it's so frustrating that I sometimes don't get a violent intestinal reaction for a day or two afterwards so it's obviously too late by then and I have to just ride it out. At least with my asthma symptoms I can use my inhaler. Nothing I can do for a glutening, except some lousy acting meds.

It IS getting easier though. Its starting to become second nature, as folks here assured me it would.

ravenwoodglass Mentor
ravenwoodglass
Posted

It had been about a year for me until I took a position where I was doing art projects with kids. A lot of the stuff was gluten filled and I thought I would be safe by doing what I do at home when working with gluten containing glues and such like always wearing gloves etc. I was wrong. As soon as I got over that I then made a big mistake week before last and bought an unfamiliar brand of chips that LOOKED safe by the label. They weren't. Spent a night in the bathroom, not fun for the new dog I had just adopted or myself. Took 3 days to get over the GI bleed and I certainly won't make that mistake again.

zus888 Contributor
zus888
Posted

I don't know if I'm just not that sensitive or I've been really good at this gluten-free thing, but I was glutened once 3 weeks after I started the diet and haven't been glutened since. I'm approaching 6 months of gluten-free living (Sept. 9th).

We generally don't eat out, but when I do, I'm very clear about my needs and typically go to restaurants that have a good record at accommodating gluten-free diets. I've been pretty lucky, so far, with eating out. But, like I said, eating out is not a common occurrence. Our house is gluten-free for the most part. There is one cereal and one loaf of bread. I'll label certain things as gluten-free so it doesn't get contaminated by the bread (butter, jelly, etc.) Most everything is safe here.

anabananakins Explorer
anabananakins
Posted

I got glutened once on my recent trip, but before that I can't remember - months and months. But I live alone and I'm single and my friends let me pick where we eat (which I don't do all that often if I'm not travelling). I share an office with one person who is careful and I go through a million paper towels when using the shared kitchen at work.

It's other people that are the problem, unfortunately! I think it's super easy to stay gluten free living alone.

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