Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dangers Of Ignoring Celiac


blythiee

Recommended Posts

blythiee Newbie

I was diagnosed when i was about five, so don't really remember any of the original symptoms off my condition. I am now 17, and from about four years I have been ignoring the fact that I have celiac, at first just eating a cake now and then, but now I rarely even think about the ingredients of food and regularly eat pizza pasta bread etc. I don't appear to have any adverse symptoms of ignoring celiac that people associate with the condition so what does this mean? Was I wrongly diagnosed as a child or will i incur health problems on the future if I continue eating what ever I like?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

What you are doing is very dangerous.

Sometimes, people who have been gluten free for a long time begin to eat gluten again and have no visible symptoms. It's called a "honeymoon period" by many of us around here, and it's deceiving. Additionally, some people don't have any visible symptoms at all. I know girl in her 20s who was diagnosed as a baby because of failure to thrive and nothing else (blood test, scope) and to this day, she has no idea when she has accidentally ingested gluten because she doesn't get symptoms.

However, symptoms or no symptoms, you are doing actual damage to your intestines by continuing to eat gluten. You may not feel it now, but you are risking all kinds of complications including secondary autoimmune disease, organ damage, and various types of cancer.

I highly encourage you to quit what you're doing and go completely gluten-free again, with no cheating whatsoever because if you have been doing this for several years, it's likely you have a lot of damage that needs to heal.

I don't know what your relationship with your parents is (since I can't imagine them letting you eat like that unless they are severely misinformed as well) but consider asking them what your diagnosis was like?

ravenwoodglass Mentor

It used to be thought that children outgrew celiac because it can take time before the damage from the antibodies becomes apparent when they began consuming gluten again. Doctors now know that is not the case. You may at this time not be having symptoms, or think your not. Many don't realize that celiac is much more than a GI disease. It can impact all organs including the brain. By consuming gluten you are risking the formation of other autoimmune diseases, depression and anxiety, arthritis, learning problems, infertility and increasing your risk of cancers like lymphoma.

I realize that the diet is inconvient when you are a young adult but it really does need to be followed for life.

  • 1 month later...
SakuraKisetsu Newbie

I am a 21 year old woman who was just recently diagnosed. I was told that I had a minor wheat allergy growing up and so it wasn't a real problem if I kept eating wheat. Growing up my immune system was almost completely shot, I was depressed, unmotivated, and always felt sick. Then I had this nice period from about 15-19 where if I ate wheat I only had a minor stomach ache and I thought it was worth it to eat what I wanted. I started to suddenly get sick with throat infections, sinus infections, colds, flus, and everything else that normal people shouldn't get back to back. On top of that I started getting indigestion, signs of malnutrition, and sharp pains in my stomach. I finally was diagnosed at 20, and not four months later got even SICKER despite being gluten free. From eating gluten and wheat for so many years, I had developed gallstones despite being below average in weight, young, and eating low transfat diets. I had years worth of scarring to my gallbladder caused by eating the gluten, and even developed lactose intolerance to boot. After surgery I have felt better, but if I had known what you did from so early an age, I would have had so much better of a life and childhood. I know it's hard to be gluten free, but take it from me, it's not worth the consequences. I've undergone so many painful treatments, surgeries, and horrible sickening medications for celiac related problems that I would never wish on even my worst enemy this god awful disease.

You may not believe any of us and think we all just sound like we are over worried over things since you don't feel anything now(heck I did too), but you are destroying part of your body everytime you eat gluten, and the more you do that, the less your immune stystem can fight real problems and the less your body functions. It took me a painful surgery and 3 months of agony before I realized that I had caused all of it by being stupid and pretending I didn't have a problem. I truly wish you do not make my mistakes.

AVR1962 Collaborator

What can happen too is there is this time called the romance period when young people can seemingly eat gluten again. This happened as the hormones change. Most will then have a flare-up in their 20's. Read about it, it might help you.

mommyto2kids Collaborator

Read the teen age stories on gig.net. That will convince you. Those are pretty moving stories!

  • 3 weeks later...
UnhappyCoeliac Enthusiast

I ignored it for 3 or so years in my 20's I have no developed menieres disease.

My doctor diagnosed someone 87 who had apparently lived there whole life with Coliac.

In short it's flipping random you could be 'lucky' or 'unlucky' one things for sure though you will get sick more, you will get more tired you may get depressed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    2. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    3. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Positive biopsy

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,000
    • Most Online (within 30 mins)
      7,748

    Klutziblonde
    Newest Member
    Klutziblonde
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.