Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Was Your First gluten-free Week Like?


futuredvm24

Recommended Posts

futuredvm24 Rookie

I have been gluten-free for a week now. Some days I feel great, I almost forgot that I could feel this good! Other days not so much. I'm not sure if I'm accidentally glutening myself or if this is just a normal process?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I don't think I even noticed a difference the first week! By the end of two I wasn't having stomach-aches and diarrhea any more.

pricklypear1971 Community Regular

The first week was just weird. I remember having raging emotions - like PMS on steroids.

Week 2 the brain fog lifted and I had stamina. That's when I knew I was on to something.

AVR1962 Collaborator

A week was not enough for me to notice a difference. My stomach was a mess. It was at the 3 week point I started noticing change for the good.

kitgordon Explorer

My GI issues stopped within the first couple of days, with a mild relapse or two in the first 2 weeks. However, I went gluten free before I was as ill as some people here. A lot of my family were already diagnosed, so when I began seeing semi-frequent symptoms, I knew what it was, and what to do. As long as you are being very careful, I think it's probably just normal recovery.

alex11602 Collaborator

I actually felt great after two days with a few bad days mixed in over the next few months, but my youngest daughter didn't feel better until we figured out the other foods that she couldn't have. My oldest daughter doesn't have GI symptoms so we didn't notice a change until we gave her potatoes one night and she could eat them without being sick (she always had a major texture thing, she would gag if something gooey, wet or slimy touched her hands or mouth) and we figured out that my husband had problems the same way...he noticed after about a week that he hadn't been as gassy, but it came back when he had a sandwich at work.

mommyto2kids Collaborator

I had dreams that I was eating angel food cake and then I'd realize I could never eat it again. I also got super freaked out and depressed that so much of Costco was done for me. My son kep asking me when I could be done with this. It was hard, but we have all gotten used to it. It is better than being sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

My son asked me "when will we be done with the gluten-free thing?", too.

Yeah, it's tough.

I think it would be tougher if I hadn't already weeded out a lot of crappy foods, prior. Don't get me wrong - we ate plenty of junk and probably still do. But going gluten-free is hard-core when you can't "slip" and be ok.

futuredvm24 Rookie

I know it will take some time before I really start to feel better. It's just great to know that there are lots of people who know what I'm going through. I'm having my good and bad days but the bad days seem worse than the bad months I was having. Maybe it's because I forgot what it felt like to not have problems. Luckily, I had cut out a lot of processed foods beforehand so going gluten-free hasn't been too hard but it's definitely something to get used to!

T.H. Community Regular

First 2 weeks were really bad, actually. On day two, I started having nausea, headaches, and dizziness all the time. Could barely think, sick all the time, and it just kept getting worse.

Turns out that I have allergies to potatoes, sugarcane, dairy, and eggs - all of which I don't eat much of normally, and all of which I was eating a lot more of in my gluten-free food, so it was making me sick. Really crazy.

The entire experience made me much more careful with my daughter (diagnosed 2 weeks after me), trying to remember that familiar 'looking' food didn't always mean familiar ingredients or familiar tolerance to those ingredients, you know?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748

    Dan Bryst
    Newest Member
    Dan Bryst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.