Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk/casein Anyone Else

GFreeMO

By GFreeMO
in Food Intolerance & Leaky Gut

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I kept feeling like I had been glutened. I had intestinal pain, D and gas, headache, the works. I knew that I hadn't had any gluten. I don't eat out and eat the same things over and over. I decided to cut out dairy 2 weeks ago. All of those symptoms went away. I was bored with it and sick of black coffee so I bought some cheese and Lactaid milk yesterday. I made a pizza with the cheese and used some of the milk in mashed potatoes and in coffee. This morning I woke up with a migraine, D, terrible gas pain and D, D, D...The cheese said no lactose per serving and the lactiad milk is lactose free. Is this what casein does to someone? If so, casein makes me feel as bad as gluten.

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

I was doing ok with no milk but I cant find any rice milk around here that is gluten free. All we have in our stores is Rice Dream. I caved and bought Lactaid now I am suffering.

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Thanks for the recipe. I am going to try it. I have a blender that I got a long time ago that I used a few times before I knew better to make smoothies with Rice Dream. I guess I could stick it in the dishwasher to get it really clean and it should be safe that way.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Do you have a good blender? Rice milk is easy to make! 2 cups water, 1/2 cup cooked rice (packed well but not like a brick) and some add a little sugar, honey or even vanilla to it. Blend it up for a few minutes. Keeps for 3-5 days.

We are dairy free d/t allergies but many people with Celiac have dairy issues as well.

Do I need to strain this or anything?

Kansas Rookie
Kansas
Posted

I am like you, just feeling like I was still getting gluten somehow, and I am extreme in what I put in my mouth. There was no possibility that I was getting gluten. I too have stopped the dairy, and I feel good! A lot more energy, completely normal stools, my ears are not driving me insane with itching, and the roughen areas on my fingers are improving. I thought dairy was a digestive issue, but not thinking that now. I am not much on dairy anyway, so it doesn't bother me, just have to get a little more creative in my baking.

StephanieL Enthusiast
StephanieL
Posted

If you have a really good blender, no you don't have to strain it. I have a Vita-Mix which is like a turbo jet engine :) I don't think you need to strain it though or what little body it does have will be lost. If you find it's chunky, then yes I would try it strained.

You may also want to try looking at coconut mild creamer (I LOVED it when I had to be dairy free but I am not 100% sure if it's gluten free. Turtle Hill is the maker of the one I used.) Also, if you don't have issues with nuts, there are a lot of nut "milk" alternatives out there.

smc Rookie
smc
Posted

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted
  • Author

I am doing the same thing. I know i am not getting gluten but have not been feeling well -bloating, intestinal pain, and D. I have cut down on dairy and noticed a reduction in symptoms but really have just been strict about it for the last 2 days and I do feel better so far. I have tried lactose free coffee mate and cabot cheese and was wondering the same thing-is it lacotse or casein? How do you tell?

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

smc Rookie
smc
Posted

I think that if Lactaid milk and lactose free cheese is making you sick, it has got to be casein. The same thing happened to me with lactose free creamer and cheese. If these products are lactose free, they still have casein. A lot of people here have to avoid dairy. I guess we do too. ugh :(

Well I thought I was home free being gluten free for about 2 years and I saw you have been gluten free for about the same time. I am really mad about having to give up dairy!! But now I am at the point where I will give it up and eat the front lawn if it is the only thing that will make me feel better. I have an appointment with my GI tomorrow so I will see what he has to say but I think I may have solved my problem. Thanks!

love2travel Mentor
love2travel
Posted

After being strictly gluten free for six months, at the five-month-mark I started getting quite ill from dairy. In my case it appears to be lactose but I have eliminated dairy temporarily to be sure. It is very frustrating not to have gluten OR dairy but there are others here who must have much less. :( I hope to be one of those who is able to re-introduce dairy in the future because I REALLY miss it. LOTS.

Darn it - I teach cooking classes including various cheeses! :o

GFreeMO Proficient
GFreeMO
Posted
  • Author

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

StephanieL Enthusiast
StephanieL
Posted

Giving up dairy for me is almost harder that giving up gluten! I made the rice milk with the above recipe. It turned out great!! Thanks for posting that. :)

Awesome! Glad it worked out for ya! My DS (who has Celiac) is allergic to dairy, egg, peanut, tree nuts, soy and banana. We know how to work around things :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir.
    2. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    3. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    5. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748
    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.