Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Feel So, So Sick :(

Twinklestars

By Twinklestars
in Coping with Celiac Disease

Recommended Posts

Twinklestars Contributor
Twinklestars
Posted
  • Author

Yum Cougie! I might just do that with some apples tonight for supper :)

In other news, I think I've glutened myself :ph34r: It really annoys me too, because I ended up making a big pot of yummy chicken and vegetable soup tonight - nice and gluten free. Then I made tuna mornay for hubby and the kids. Did I use gluten-free flour for the sauce? No! I didn't even think about it because I wasn't eating it.

I put a couple of spoonfuls in the pan and Poof! A big cloud of gluteny dust. I think I ingested some because almost immediately I got a pain in my chest like there was a big lump in the middle of my ribcage. I felt totally fine before. A couple of hours later now and I've got little crampy pains in my stomach :( So yeah, less than a full week into my new diet and I'm glutened already (I think). And I didn't even eat anything!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cougie23 Explorer
cougie23
Posted

Totaly it was the dust.."GLUTENED!!!!" :blink: yeah and If that was canned tuna(?) I hear theres gluten in that! though I don't really understand why!?...but that tuna oil can really stick to your hands or cloths...(even after washing!!!!)(it's used as a binder...go figure!) :blink::D

sa1937 Community Regular
sa1937
Posted

Totaly it was the dust.."GLUTENED!!!!" :blink: yeah and If that was canned tuna(?) I hear theres gluten in that! though I don't really understand why!?...but that tuna oil can really stick to your hands or cloths...(even after washing!!!!)(it's used as a binder...go figure!) :blink::D

I highly doubt there's gluten in canned tuna...FWIW, many times it does contain soy (either soy or soybean oil), which some people cannot tolerate.

surfer Explorer
surfer
Posted

hi you could have a problem with Niteshades....raw tomatoes, potatoes, peppers and eggplant...google this

good luck

cougie23 Explorer
cougie23
Posted

I highly doubt there's gluten in canned tuna...for FWIW, many times it does contain soy (either soy or soybean oil), which some people cannot tolerate.

I don't remember where I read that recently...it was on one of the gluten do's and don'ts lists I came across while googleing....but It was included under the catagory of "prossesed"meats....I think to keep it in one lump better? I can't remember exactly...but I remember thinking....REALLY....WAS THIS REALLY NESSASARY!!!!!?????

WHAT'S NEXT????!!!! Gluten in my bottled water? :blink:<_< who's brillent idea was it to gluten everything up anyways!!!!???? :angry::blink:

If I can find it again...I'll tell you which site it was on...but I need to find it again. :D

cougie23 Explorer
cougie23
Posted

I highly doubt there's gluten in canned tuna...FWIW, many times it does contain soy (either soy or soybean oil), which some people cannot tolerate.

You are so right!!!

I was defineatly miss informed!!!

I couldn't find the article I read...(sometimes I'll save the more informitive sites in my computerfolder under "health"...but when I googled CANNED TUNA ....besides the occasional soy that you mentioned ( and one canadian brand that was flavored with teriyaki) it seemed a very gluten free enviornment! :D

My mistake :rolleyes:

Thankyou for the correction...I like tuna...but it does give me a bit of a tummy ache...probably the sandwich part!!!LOL

I miss 12 grain wheat bread!!! :(:P

Twinklestars Contributor
Twinklestars
Posted
  • Author

Cougie your posts always make me smile! :D

surfer, I don't seem to have a problem with nightshades at this point, but it's something I'll be watchful of as I go along.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kami42 Newbie
kami42
Posted

I just made this same mistake. I just ate some chocolate and feel horrible!!! Also, I was thinking that because Hershey;s is gluten free that Godiva would be too (Big Mistake) I am so nauseous now ughh! This is a very hard transition, I agree!

Twinklestars Contributor
Twinklestars
Posted
  • Author

It is hard. Especially when you have to be conscious of so many things! I imagine over time it will become almost second nature though :)

I am paying for my glutening this morning with really bad joint pain, nausea and stomach trouble :(

Twinklestars Contributor
Twinklestars
Posted
  • Author

Well my stomach has settled down to only mild cramping, but I feel wiped out! My joints are still niggling enough to make me uncomfortable as well. But the worst thing is an increase in my anxiety. I have suffered very badly with anxiety for years, and I noticed it settling down (slightly) in the last couple of days. But now I feel anxious and twitchy over nothing. Can I really react like this to gluten I didn't actually eat? Well, I suppose I ate some, but it was flour, so wasn't much!

cougie23 Explorer
cougie23
Posted

I just made this same mistake. I just ate some chocolate and feel horrible!!! Also, I was thinking that because Hershey;s is gluten free that Godiva would be too (Big Mistake) I am so nauseous now ughh! This is a very hard transition, I agree!

Trader joes has a lot of gluten free chocolate...I like/have to eat dark chocolate because I'm casin (milk) intolerant as well......Hershey upsets my TUMMY!!! too graulated!!! :blink::P Don't like the bitter stuff( really reallydark chocolate).. but they make one thats sweeter and comes in a little 3 pack...I send them in my 12 yr.old sons lunch!!! he was very popular with the girls in grade school I can assure you!!! LOL :D

Do you or twinkle star...yes I see you there(!!!) have trader joes where you live????

I'm in Calif.....I shop glutenfree (try to) at Trader joes and wholefoods....wonderful places...not like your average chain stores. B)

cougie23 Explorer
cougie23
Posted

It is hard. Especially when you have to be conscious of so many things! I imagine over time it will become almost second nature though :)

I am paying for my glutening this morning with really bad joint pain, nausea and stomach trouble :(

Meeeeee tooooo!!!!!! Guilty as charged (and definatly paying for it!!!!)

I think it was the PEPSI......(carmel coloring...can't think of anything else...cept alot of cross comtamination....) shhhhhh....but don't telll any one... (its my last vice)...!!!! :blink::unsure::(:rolleyes:

cougie23 Explorer
cougie23
Posted

Cougie your posts always make me smile! :D

surfer, I don't seem to have a problem with nightshades at this point, but it's something I'll be watchful of as I go along.

GOOD :D ...then I'm doing something right !!!!! LOL :P

psawyer Proficient
psawyer
Posted

Cougie,

Pepsi is gluten-free. Caramel color is gluten-free. We can't seem to shake off the myth about caramel color. In the US and Canada, it is made from corn. Even if it was made from wheat, as is the case in some European sources, it is so highly processed that there is no detectable gluten left in the coloring. It then becomes a very small part of the final product.

Cola products contain caffeine and phosphoric acid, both of which can irritate the digestive system.

Twinklestars Contributor
Twinklestars
Posted
  • Author

Thanks psawyer for the info. I don't drink cola drinks but it's always good to add info to everything I'm learning :)

Cougie, we don't have trader joes here. We are lucky to have lots of places that stock fresh whole foods though, and lots of local markets.

cougie23 Explorer
cougie23
Posted

Cougie,

Pepsi is gluten-free. Caramel color is gluten-free. We can't seem to shake off the myth about caramel color. In the US and Canada, it is made from corn. Even if it was made from wheat, as is the case in some European sources, it is so highly processed that there is no detectable gluten left in the coloring. It then becomes a very small part of the final product.

Cola products contain caffeine and phosphoric acid, both of which can irritate the digestive system.

Yeahhhhh!!! THANKYOU Soooooo much for clearing that up! :lol: I LOVE pepsi !!! even though I know i'ts bad for me...I've cut back immensly...rarely drink it at all now!!(my tummy doesn't like it!)

But then again...my tummy doesn't like anything lately!( throwing up more often ...again...comes and goes...) even when I'm eating the gluten free /casein free stuff...tummy is'nt happy...traces of blood yesterday..but it might have been from my throat!Also signs of animia...cut myself...blood very light..odd color..Bled profusly took hours to stop..the cut was'nt that bad..brusing way to easily also ( I have a paw print shaped bruise were my cat pushed down on my leg !!!) !!! Sorry to go off on a tangent...again...focus issues you know..LOL. :rolleyes::P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.