Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Skin Thing


Nen

Recommended Posts

Nen Explorer

I just figured I'd post this and give it a shot.

Back in January I had this really weird thing happen to me. I just all of a sudden broke out in a weird...well it wasn't a rash, but my skin looked all over very "speckled" or "mottled" looking. It wasn't a raised rash, but actually "in" the skin, red and white. It freaked me out, I noticed it when getting ready for a bath, and it was all over me. I also had a "pinprick" look on my lower legs, like someone had stuck a pin over and over in little dots on my skin.

I did go to the doctor, and he didn't seem concerned or anything, he just scolded me to wear warm clothes (I already do). It took about a week for this odd skin thing to go away, as it was going away it felt like I had been sunburned (tho I hadn't). Then the joint pain started. I felt like a crippled old person, with my joints all over hurting pretty good. My fingers actually swelled up from it.

Since this happened I've had much more mild joint pains on and off, but the skin thing hasn't reoccurred. I do have Raynauds, have since I was a kid (so does my brother and dad), but I never had anything like this. I still have no clue what it was, and just wondered if anyone else experienced anything remotely like this. The doc seemed more like "whatever". :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Ask to be tested for Fifths Disease. If you've recently had it, your antibody count will be very high.

It's BS if they say only kids get it.

Aside from that, sounds like an allergic reaction except for the achey part. Many autoimmune issues are mistaken as allergies/viruses.

spruemylife Newbie

My mom has the pin dot thing, and she was diagnosed with celiac. It going away now that she's on a strict diet.

rosetapper23 Explorer

By any chance, did you have a sore throat beforehand? I only ask because it sounds a bit like Rheumatic Fever. Your skin can be affected as well as your joints. I know--I've had it twice.

Nen Explorer

I don't recall having a sore throat, BUT, DH and I both had strep throat earlier the previous year (summertime). We were both treated with antibiotics, I was treated twice with them because he caught it and I didn't want to get it again.

Interesting Spruemylife about your mom.

I did have a blood test that day I went in, and the only thing that was slightly off was my white cell count was lower.

mommida Enthusiast

I think my son is just getting over fifth's disease. His rash was mainly on his trunk. It can take 6 weeks to get over and by the time the rash shows up you shouldn't be contagious.

Scarlett fever?

ITP? Idiopathic Thrombosis Purpuria (might have misspelled that)

pricklypear1971 Community Regular

I don't recall having a sore throat, BUT, DH and I both had strep throat earlier the previous year (summertime). We were both treated with antibiotics, I was treated twice with them because he caught it and I didn't want to get it again.

Interesting Spruemylife about your mom.

I did have a blood test that day I went in, and the only thing

that was slightly off was my white cell count was lower.

They don't run the test routinely. And most gp's don't recognize Fifth's/Parvo B19. They sent me to a Rheumy when I got it. He recognized it. It's VERY contagious. In adultsit can cause nasty and long-term misery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nen Explorer

Interesting, that sounds about exactly like what I went through, except the slapped cheek look. So it sounds like it is just a one time thing that happens then goes away, from sites I have been reading.

pricklypear1971 Community Regular

Interesting, that sounds about exactly like what I went through, except the slapped cheek look. So it sounds like it is just a one time thing that happens then goes away, from sites I have been reading.

Well, in kids it goes away.

In adults it takes longer.

In women even longer, sometimes.

Hopefully it goes away soon but don't be surprised if you have some changes - eyesight, metabolism, etc. And if you do, be vigilant about reporting to your doc and investigate autoimmune issues.

Februaryrich Rookie

I get really weird,flaky,itchy and red skin on top on both of my feet whenever I get glutened. I just put some skin lotion just to make it look better and it goes away in a week

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748

    Cwbtex
    Newest Member
    Cwbtex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.