Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those That Are Gluten Free Oat Intolerent


Roda

Recommended Posts

Roda Rising Star

I thought this might be a useful thread for all of us on here that have a gluten free oat sensitivity. I avoid any gluten free oats and products that either does or may have cross contamination from them. Bob's Red Mill was the first product eliminated. Here are two recent responses I recieved from Ener G and King Arthur in response to this question:

Comment: Hello!

I am very pleased with your gluten free line of products. I appreciate the

lengths you have taken to assure the safety and integrity of your gluten

free products. My question is: Is there any chance your products could have

any potential for cross contamination from gluten free oats in your facility

or from the suppliers facility from shared lines or facility? I am extremely

sensitive to even gluten free oats and have had to eliminate gluten free

products because of the cross contamination from them. Thank you very much for your time and consideration.

----- Original Message -----

From: "Bakers" <bakers@kingarthurflour.com>

Sent: Monday, September 19, 2011 4:16 PM

Subject: [kaf #303835] Any possibility of gluen free oat contamination?

>

> Hello,

> Thanks for your email. I checked with the merchandising team and they

> verified that gluten-free oats are processed in the same facility as our gluten-free

> mixes, so cross contamination is a possibility.

>

> We are sorry for any inconvenience.

>

>

>

> Sincerely,

>

> MaryJane

>

> King Arthur Flour

> Baker's Catalogue, Inc

> 1-800-827-6836

> bakers@kingarthurflour.com

> 100% Employee Owned~ 100% Committed to Quality

>

>>

No we do not have any oats of any kind in our facility. Also we purchase

our ingredients from exclusive manufactures. Such as Rice Flour direct from

the rice growers and that is all they make.

Kathy Hoffman

Kathy@ener-g.com

-----Original Message-----

From: Ener-G Customer Service [mailto:customerservice@ener-g.com]

Sent: Friday, September 16, 2011 3:52 PM

To: customerservice

Subject: Ener-G Request Form

I don't regualarly use King Arthur, but I have in the past. Ener G, Yeah!! I didn't think so but now I can be sure. I use their products a lot. When I get anymore info I will post. If anyone else has anthing to post please do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Interesting! I have not had any trouble with King Arthur gluten-free flours but I had reactions to Bob's Red Mill products which I attributed to the gluten-free oat CC. Now I am wondering if it's actually due to Quinoa CC instead since I know Bob's process gluten-free quinoa as well (my reaction to quinoa pasta was very violent, worse than gluten).

dilettantesteph Collaborator

Thanks for posting this. I wonder how many of us there are?

Roda Rising Star

I did hear back from Betty Crocker to the question in my first post and I feel they failed to answer my original question. I sent them back an e-mail asking them to answer it. I certainly appreciate their products, and have used them a lot. Just wanting to cover all bases.

Thank you for contacting us about gluten in Betty Crocker gluten free mix.

General Mills offers several products that are labeled gluten-free. Please check the

package label for the gluten-free statement on the front/side/back of the package. Only

products that can be verified to be gluten free will be declared as gluten free on the

label. It is important to check the product label each time you purchase a product because

it has the most accurate information about the product in the package.

Because we constantly strive to improve our products′ quality and nutritional value, the

most up-to-date product information is on the package the product is purchased in. For

that reason, we do not distribute product information lists as they could quickly become

outdated. A current list of products on the market that are gluten free can be found by

visiting www.glutenfreely.com [http://www.glutenfreely.com]. It is important to check the

package label before purchasing for the gluten-free statement on the front/side/back of

the package to verify that the package you choose is gluten free.

For products not labeled gluten free, we will always declare gluten containing

ingredients if they are added to the product. If the ingredient declaration lists wheat,

oats, barley, rye, or derivatives of these grains, then the product contains gluten.

Examples of derivative ingredients include: malt, barley malt, organic malt, semolina,

Durham, triticale, and spelt. We do not include gluten containing ingredients in the

′Natural Flavors′ or ′Spices′ on the product ingredient list. If there are gluten

ingredients in our products, those ingredients are always clearly listed.

If there are no gluten- containing ingredients listed in the product ingredient label,

but the product does not make a gluten free claim, it is because we cannot fully assure

that this product is gluten free. While we have not added gluten-containing ingredients,

factors such as sourcing, conditions of manufacture, etc. do not allow us to provide the

full level of assurance that a gluten free claim requires.

Additional information regarding gluten may be obtained by contacting your health care

professional or one of these organizations.

Celiac Sprue Association/United States of America, Inc.

PO Box 31700

Omaha, NE 68131-0700

402-558-0600

Or toll free: 877-CSA-4-CSA (877-272-4272)

www.csaceliacs.org [Open Original Shared Link

Celiac Disease Foundation

13251 Ventura Blvd. #1

Studio City, Ca. 91604

Phone: (818)990-2354

Fax: (818)990-2379

www.celiac.org [http://www.celiac.org]

We hope this information is helpful.

Sincerely,

Cecile M Davidson

Roda Rising Star

Talked to a representative at Betty Crocker today. They do not use any gluten free oats in their dedicated gluten free facility!! Yeah! :D

T.H. Community Regular

Thanks for posting this, Roda! I was thinking of getting something to make for my less sensitive celiac father when he visits, and I'd much rather get something that's oat free as well as gluten-free, so the risk is less for me and my daughter.

Roda Rising Star

Thanks for posting this, Roda! I was thinking of getting something to make for my less sensitive celiac father when he visits, and I'd much rather get something that's oat free as well as gluten-free, so the risk is less for me and my daughter.

Your welcome. :) Sadly, I will be saying goodbye to many many things again. I'm having malabsorption issues again. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
Roda Rising Star

Recieved this response from Glutino today:

We do not have oats in any of our facilities or our products.

Linda Sundborg

Glutino Customer Service

1-800-291-8386

glutenfree.com

Roda Rising Star

Response from Kind Healthy Snacks:

Thank you for your interest in KIND Healthy Snacks.

All of our healthy snacks are gluten-free; they are tested for gluten and meet FDA

  • 2 months later...
Roda Rising Star

From Pamela's

Thank you so much for your interest in Pamela's Products and for taking time from your day to contact us! It is only through relationships with customers such as you that Pamela
ravenwoodglass Mentor

Thanks for going through the trouble of contacting and posting the results from these companies for us.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.