Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Insomnia Rant (With A Question)


HopefulMama23

Recommended Posts

love2travel Mentor

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Hmmm....interesting. I see my doctor next week so will ask him about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HopefulMama23 Explorer

Am curious too which homeopathics you tried for insomnia. There are a variety given for different causes of insomnia. As I recall I remember one that is good in cases of "fear of never falling asleep." Besides caffeine, mint products will make homeopathics not work--and probably other strong herbs as well.

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

jerseyangel Proficient

I found a homeopathic remedy called "Calming" by Heel. I use it 3 or 4 times a day and have been sleeping better. I was having terrible insomnia, sometimes not sleeping at all or for just a couple of hours. This works better than "Calms Forte" for me and is completely gluten-free.

pricklypear1971 Community Regular

Do you need a specific test for Hashimoto's or is the TSH bloodwork the required indicator? Had my physical and bloodwork done in August and was told my thyroid was "normal".

It's specific, called TPO.

pricklypear1971 Community Regular

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Uhm, you need a specific test for this called TPO. I've never heard of it being diagnosed symptomatically. Perhaps it can be, but never heard of it.

love2travel Mentor

It's specific, called TPO.

Thank you. I will request it. I would do anything to conquer this insomnia once and for all. Perhaps this is it...

Takala Enthusiast

I sleep when I am tired, instead of trying to sleep whenever everybody else is. Heck, the **** dogs sleep all day, snore snore snore. The cat is asleep now. I've seen the horses go down for naps mid morning to mid afternoon after they were up grazing at night, why fight the trend ? My spouse has to get up really early sometimes to talk to people in different time zones, then he's down for the count by 4pm and sleepy. It's a hundred degrees out now in the sun, I'd be out like a lightbulb if it were not for the A/C ; ) Yet the myth persists we should get up at 6 am fresh and perky. pffffffffffffffffffffffttttttttttttttttt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

Do let me know how it goes. I agree, homeopathy is both very helpful as well as interesting. Just got a book on it that is helping me a lot.

Meanwhile I know what its like not being able to get to sleep. Have had that problem for years. Everything seemed to conspire to create it--the gluten and salicylate sensitivity as well as old injuries to my sacrum and L- 5 vertebrae with sciatica at night not to speak of too much drama going on in my life as an infant.

So like the last responder I eventually learned to just go to bed really late and get up late and do what I do in the wee hours of the morning and call it "normal".

But now I am trying to break the cycle. I do think that hormones are a factor, as well as habits, fears etc. pure and simple. Or should I say, not so simple??

At least the homeopathics are making it so my body isn't jerking around at night when I lie down. A huge improvement. Hypericum perforatum thus is helping a lot... Next I also want to try out some cell salts since I am very low in minerals even though I have been taking a ton of them for years.

Skylark Collaborator

Skylark, you're right. I see a new endo Monday and I'm prepared to push. Hard.

Good luck! I know how awful the insomnia is because my thyroid went a little bonkers this spring.

There are actually three autoimmune thyroid antibodies. TPO is the most common, but you should also be tested for anti-thyroglobulin, and possibly TSI. TSI is the Graves' disease test.

Also, "normal" for TSH should be between 0.5 and 2.5. It used to be that below 5.0 was considered normal, and some ignorant doctors still use the old range but most people with TSH at 5.0 feel pretty sick.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748

    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.