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What Symptoms Did You Not Even Realize Were Symptoms?

smeej

By smeej
in Coping with Celiac Disease

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TanyaC Newbie
TanyaC
Posted

Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya

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srall Contributor
srall
Posted

I knew my stomach was killing me all the time, but until I went gluten free/casein free I did not realize that it affected my fertility, arthritis, chronic fatigue, cavities, nerve pain, dry skin, moods (rage right before my period), general confusion, lack of motivation, anxiety...I know I'm forgetting some things. This diet has over the past two years become very easy to maintain and thrive on (took several months) and I find it's so much easier to forage for organic whole foods and prepare every meal than try and muddle through life at 60%. That's no way to live.

pain*in*my*gut Apprentice
pain*in*my*gut
Posted

Did anyone ever experience red burning blood shot eyes? I wake up in the morning and my eyes hurt to open and are red and bloodshot. Went to the eye doctor and he did a complete exam and found nothing. Gave me some eye drops for allergies which did not do a thing. I am hoping that being off gluten will help my eyes. As a newbie here, thanks for all the great info.

Tanya

YES!! My dry eyes were terrible before going gluten-free! I would also get random attacks of episcleritis (red, burning eye that looks like pink eye without the goop). I had to use steriod drops in my eye. Since going gluten-free, I haven't had one attack, and my eyes are not dry and gritty. It's high allergy season here, too, and my eyes feel great!

I wouldn't be suprised if you have the same positive results! :D

anabananakins Explorer
anabananakins
Posted

Besides the digestive stuff, and neuro stuff (brain fog, balance problems) that you commonly see listed, I finally stopped being thirsty all the time (I wanted to drink water non-stop, it was an effort to keep myself below 4 litres a day and if the doctor hadn't read me the riot act, I'd have continued to drink 5-6 litres); my ears stopped feeling so blocked and gunky) and my ankles stopped hurting when I got out of bed in the morning. Oh and I lost the puffy bags under my eyes.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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