Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Here With Jumpy Eyes?


AVR1962

Recommended Posts

AVR1962 Collaborator

There's a few of my symptoms that have not cleared up from supplementation and changed diet, on of them being the jumpy eyesight. Anyone have this, and what helps it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

;) Ok, maybe you can define jumpy eyes...

I'm thinking if it's sorta wonky eyesight, I'm in. Some days my eyes seem to cross...not really of course but I'm not sure if my astigmatism becomes an issue or what. Other days, things are fine. It seems worse when I'm tired or if I have grumpy sinuses. It sorta like my eyes won't work together ???

allergyprone Contributor

I get that too, where i'll be sitting in class and it seems like the board in jumpping up and down but really fast, i usually get this if i eat a lot of sugar and/ or i'm tired I haven't found anything that helps and my doctor just looked at me like i was crazy. if someone out there has a solution it would be much appreciated because looking at a board that wont stay still gets on my nerves

AVR1962 Collaborator

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

bartfull Rising Star

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

AVR1962 Collaborator

I believe the jumpy eyes are one of the symptoms of gluten ataxia. I have a friend who shows all of the symptoms of this, from difficulty walking, slurred speech, and jumpy eyes. He has been to see several doctors and has had multiple MRI's, CT scans, and neurological tests. They say they don't know WHAT it is. When I discovered what I did about the gluten ataxia and showed him, he went into denial and refuses to go back to the doctor to be tested. He's risking permanent damage, and quite literally risking his very life. :(

Here is a brief excerpt of an article about it. Click on the link to read the rest.

Gluten Ataxia

Ataxia is the most common neuropathy symptom associated with gluten allergy, according to the 2002 "Journal of Neurology, Neurosugery and Psychiatry." It is known as gluten ataxia. Ataxia is loss of muscle coordination in order to perform voluntary tasks such as picking up a book or walking. Symptoms of ataxia my involve difficulty swallowing, walking, slurred speech and eye movement changes.

Read more: Open Original Shared Link

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

bartfull Rising Star

AVR, I don't have this problem myself. But because my friend does, I've read a lot about it. It is the slowest to heal, and for some it never completely goes away, although it does get better. If you google it, you will find a lot of info. Or better yet, do a search on this site. There are several members who have neurological problems caused by gluten. They can help you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gigifree Rookie

Yes, I had jumpy eye, dry eye and keratoconus . My jumpy eye and dry eye are better with a gluten-free diet and vitamins, but keratoconus is a life long condition. In some studies, keratoconus is linked to/ a complication of celiac disease.

  • 2 weeks later...
Februaryrich Rookie

I get the jumpy eye too..my peripheral vision is bad

Celiac Ninja Enthusiast

So what did you do? The article only talks about going on a gluten-free diet. With time these issues are supposed to go away on the diet. The issues listed are the ones I have not been able to make better so far with my diet and supplements. I have been gluten-free since April.

I've got it. When I'm trying to read and I'm feeling tired or stressed that's when it starts, my eyes will jump off the line that I'm reading or while I'm drawing and staring at one spot real close they will bounce off and I loose my pace. It's annoying, but it's still bothering me a bit and I've been on a gluten free diet for years. Although, it seems when I get a small gluten episode it does show up again. Latley I've found that my chapsticks are causing small gluten episodes, so the jumpy eyes are back today. I didn't think anyone else had this, thought I was going mad or something. lol Yhea I'm not alone :D

Anyway, stress and being tired area a trigger for me, especially when I'm slouching in my chair. Those are the only things I know that's going on when it happens.

Hope this helps.

Loey Rising Star

I have had alot of vision problems.....double vision, vertigo, double vision and depth perception issues which have all left on a gluten-free diet and supplementing. The jumpy eyes don't follow a line whether it is reading or whatever. If I read I may have to go back 2 & 3 times and read the same line. I am a piano instructor who is constantly looking at lines and have actually let one student go because I could not keep up with all the notations in the music. I have made so many simple mistakes identifying the wrong notes only to realize my students are correct. Then I feel terrible for correting them when all along they were right but it's because my eyes are doing crazy things.

I have vertigo and double vision and I had severe migraines. I had a mass and they removed it. It was Fibrodysplasia. The double vision and vertigo are still there so I need to go back to my optometrist. Good luck. We're all pulling for each other. That's what's so special about this forum.

Loey

  • 2 weeks later...
Chrissyb Enthusiast

I have MS and Celiacs and have been on a gluten free, dairy free diet for over 4 years now and to my dismay none of my ms symptoms have cleared up. :( All my gastro symptoms are better and I can sure tell when I have has something with gluten in it. I have all the eye problems and the neuropathy but such is life with ms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,927
    • Most Online (within 30 mins)
      7,748

    drw80whz
    Newest Member
    drw80whz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.