Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sore Throats And Canker Sores


anna34

Recommended Posts

anna34 Enthusiast

Hi all,

I've been gluten-free since March and I'm feeling truly wonderful compared to before. :)

Since going gluten-free I've haven't had sore throats and canker sores like I used to (constant sore throat that wouldn't go away), so I figured that they were caused by the gluten and was quite happy to see them stop. But recently (last few weeks) I've seen them return.

Do any of you know any more about this type of thing? Could it be another food intolerance? Or, should I just chalk it up to the cooler weather and me being the type of person who gets these things?

Any guidance is appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

Assuming it's not (environmental) allergies, chances are you're being glutened by something. Could it be CC (from your pots and pans, from other food in your home)? Have you recently started buying a new packaged food that you hadn't had before since going gluten free, that might not be as gluten-free as it says it is?

It COULD be another intolerance or a food allergy, but that is not the most common manifestation, and since it was one of your gluten symptoms, I would guess it's from gluten. Canker sores are a common gluten thing (I have 5 right now, have to figure out what I'm eating wrong), and it might be canker sores in your throat that is the "sore throat" you used to get and are getting now.

anna34 Enthusiast

I hadn't thought about cc. It does make sense though. If they went away after I started the diet, then it's probably gluten causing them now. Ugh. I wish there wasn't so much detective work with this!

Thanks for the reminder.

mommida Enthusiast

Were you diagnosed with Celiac? If you went gluten free because you noticed gluten was causing sore throats it could be eosinophilic esophagitus. Gluten can be a "trigger" for this disorder. There seems to be a connection to other disorders (ie Barret's esophagus) and Celiac too.

I do suggest following up with a top notch gastroenterologist and a food journal. A food journal is very helpful to find hidden gluten, cross contamination, and other food intolerances. Double check your hygeine products, which may have become cross contaminated or have hidden gluten. (think lip gloss, mouthwash, which is likely but shampoo too. Other products are unintentially ingested.)

Goof Rookie

I had the sore throat, and that turned out to be acid reflux. That was the first symptom I noticed, which is still one of my symptoms when I get cross contaminated. If you drink coffee or tea, or eat a lot of chocolate, that could be it. That's where the Barrett's that mommida mentioned usually comes from. Gluten will beat up your stomach, and for the first few months while you're healing, your stomach may be more touchy. Prilosec OTC, Decaf drinks, and limiting greasy foods and chocolate have helped me a lot. But if doesn't get better, then metion it to your doc.

Skylark Collaborator

I used to have canker sores all the time. I still get them when I am glutened. It's one of the sure signs.

anna34 Enthusiast

Hmmm...I wasn't gold-standard diagnosed, but my Ttg was in the borderline range. My DD had just been diagnosed and I was feeling terrible, so I decided to just "try out" the diet. Within one day I started to feel better and haven't looked back. So...I guess I'll never officially know if I have celiac, but I feel that I probably do.

I do drink one tea/day and lately have been eating a lot of chocolate. :rolleyes:

Giving up gluten was easy, but chocolate might be more difficult. :P

I've been drinking the tea to soothe my sore throat.

So, should I go to my family doctor and ask for a referral to a gastro? I haven't seen a gastro myself since my DD's ped gastro did my Ttg test.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Goof Rookie

As I was thinking about this, I would actually try a few changes to your diet first...I find drinking decaf helps A LOT. Caffeine can be pretty bad for reflux. Add some honey to the decaf tea, too. That's what singers will do when they're sick or have voice issues becasue it coats and soothes the throat. And it's tasty! ;) Switch to decaf or herbal tea (herbal teas with cinnamon will be good for your digestion too. just check the gluten status first! most are gluten-free, but not 100% I think tazo has a good cinnamon tea) Lots of water helps, too, as well as Apple Juice (helps to neutralize the excess acid) Try to moderate your chocolate intake (at least for a week or two!), and if you can avoid soda, that will be helpful too. Also, check how much acidic foods and drinks you consume...OJ, tomatoes, etc, and see if you can limit those. If you smoke, that can aggrivate it as well. The idea is for your stomach produce less acid, which gives your lower esophogeal sphincter (the part that keeps stomach acid in your stomach) time to heal. Hopefully, this will do the trick for you and save you a trip to the doc, time, and money!

I think most doctors would recommend an acid reducer, like Prilosec, if they think it is acid reflux after diet changes don't work. If that helps, that's your answer! Most people I know that have taken it just take for a few weeks, maybe a month or two, and then work off it. (under doctor supervision!). I have a friend who keeps it on hand for occasional use, in case he goes out to eat somewhere he knows will bother his reflux, but doesn't take it most of the time. But I don't think most docs will put you through expensive and intrusive tests if they don't have to.

What I did was try Zegerid OTC and Prilosec after the diet changes. Mind you, this is before I went gluten free. And it worked pretty well, at first. If you try this, don't use it for more than 2 weeks without talking to your doctor. Usually if it works in that time frame, that's your answer! If you want to talk to your doctor, I'm sure that'd be fine. You can get a generic version at Wal-Mart over the counter pretty cheap, and it's gluten free from what I've read. (Just check on that first!) The idea behind it is that it reduces the acid in your stomach, which thereby gives the lower esophogeal sphincter time to heal. The reason it did not work for me long term was that it was the gluten causing the reflux, NOT the other things. Getting rid of gluten is what ultimately got rid of it for me. It wasn't immediate, but it wasn't a terribly long time either (maybe 2 months?). I'll still get reflux if I get glutened somewhere along the way.

Here's some basic info from U.S. Health and Human Services

Open Original Shared Link

Feel free to PM me if you have any questions! (Or if any of this is unclear. It's the end of my day, and I'm getting ready to head home, so I hope this is coherent! :lol: ) We're here to help!

anna34 Enthusiast

I should clarify, I've never had heartburn. It's the back of my throat that hurts - like a surface/scratchy hurt (not a swollen hurt). And, I've been getting canker sores in my mouth and tongue. I don't think that I have an acid reflux problem. More likely, it's gluten cc getting me, or some other food intolerance that I don't know about.

Question - Food Diary? So, I just keep a diary of everything I eat and any reactions I may have? Do I then try eliminating something to see if the sore throats go away? What's the best way to do this to narrow down the cause of my sore throats?

Could it be "post-nasal drip" causing the sore throat? Could that cause cankers too?

T.H. Community Regular

Food diary would definitely be of some use. And the sores themselves - where they are may be of some help, too

A sore throat is actually not uncommon for mild allergies - some foods we only react to when they hit our mucus membranes, like the lips, tongue, mouth - and they tend to inflame our insides some, too, at that point.

If that's the case, usually (but not always), the sores with be mostly on the tongue and the roof of the mouth, potentially in the back of the throat. There would be less sores on the sides of the cheeks, except right in the middle near where the teeth meet. Basically, wherever your food spends the most time, like the middle of your mouth, gets more sores, because it's from contact.

I get sores like that from food allergies that manifested after i went gluten free. I get a sore throat from them too, that surface/scratchy kind of hurt like you mention. It's one of my first reactions to the food. If I get enough of the food, I start getting sores on the very back of my tongue, back of the roof of my mouth. I don't get hives, or itching or anything. Sometimes I feel like I have the flu, or get very tired a little later on. Feel blech that day or the next.

My son gets sores from gluten, and they tend to show up all around his mouth, cheeks, gums, and so on.

Nasal drip could cause the sore throat, but I don't think it usually has the sores along with it, necessarily.

I don't know if it's the best way, but I think the FASTEST way to narrow down issues like this is to drop the 8 most common food allergens from the diet and make food from scratch for a couple weeks. So, no wheat, eggs, dairy, shellfish, fish, tree nuts, nuts, or soy. With these gone, really, you almost HAVE to make everything yourself.

We did this for my kids, and while they don't react to most of these, we ended up using so many purer foods (whole veggies and fruits) that it spaced out the reactions to the 'bad' food. Much easier to track down that way. If you tend to react a lot, chances are that it's something that's either IN a lot of foods, or contaminates a lot of foods.

When foods are added back in, as long as they were plain at first, it helped to see if they were really the problem or not.

For me, I found out my allergies with a limited diet food journal, too, and nearly everything I had mouth/throat issues with tested positive when I finally got allergy testing, as well.

anna34 Enthusiast

Thank you for the detailed advice!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    2. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    5. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.