Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strict Elimination Diet


New Community Member

Recommended Posts

New Community Member Explorer

I'm thinking I may have to resort to an elimination diet...What did you eliminate and did it speed up the healing process?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

An elimination diet really involves going right down to the basics of eating; say eating ground lamb patties sauteed in a little olive oil, some rice, some vegetable you know you tolerate, some apple sauce, something that will provide you with basic nutrition that you can stabilize on, basically eliminating everything except the essentials needed to nourish you. THEN: you add foods back in one at a time, every 3-4 days and see if you tolerate them. Keep a food and symptom diary. If a food bothers you cross it off the list and don't try it again for six months. Foods tend to run in families, i.e., dairy, legumes, nightshades, citrus, grains. So for example, if one of the nightshade family members ( potatoes, tomatoes, peppers, eggplant) bothers you, don't try any other nightshades right away. This is the way you expland your tolerated diet. If cheese bothers you, don't try milk or yogurt until you have tried all the other foods options. With time, foods that bother you now may no longer bother you once you have healed, but your immune system is hyperactive and reaction set right now, so you have to soothe it and calm it down -- rather like petting a cat. Stroke it and treat it well and it should respond :)

AVR1962 Collaborator

I eliminated all boxed, canned, frozen, mixed anything, and dairy. Anything that had a long list of perservatives like candies, soda, etc. I took chips out of my diet, and ate no fast food. Too much junk in all of that. Because I had bone loss I went to a low acidic diet which you can google and find easy enough. Basically I went natural as much as possible. I was also deficient in vitamins and and minerals which I added with supplements and tried to incorporate as much foods into my diet that had the vitamins my body was needing. And yes, it very much did help me heal.

GlutenFreeManna Rising Star

When I did my elimination diet I cut out all grains, all sugars, all yeast, all processed food, all legumes, all fruit (except for berries) and the top 8 allergens. I ate mainly organic free-range chicken, bison, lamb and beef plus any vegetables and sweet potatoes for my source of carbs. Most people do this for only a week or two and then add new things in. I was so sick and desperate when I did my elimination diet however I wanted to be sure any recovery was really food related. I stayed on the strict elimination diet for an entire month. Then when I had began to feel better I added one new food (in whole food form, not processed) a week.

Skylark Collaborator

I did lamb, rice, and lettuce for two weeks. It was tedious but I figured out all the GI problems I'd been having were food sensitivity.

New Community Member Explorer

Thank you so much for your responses. I don't know if I have the willpower yet to eliminate everything from my diet. I greatly commend ya'll who have done the elimination diet...You are strong people! Tomorrow I go for a check-up. We'll see from there....I may just have to do more than just gluten/lactose free diet. Thank you again!!

Skylark Collaborator

Strong, no. Desperate, yes. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

Like Skylark and GlutenFreeManna - desperation was a great fuel for a really strict elimination diet.

cahill Collaborator

Like Skylark and GlutenFreeManna - desperation was a great fuel for a really strict elimination diet.

To true

cahill Collaborator

When I did my elimination diet I cut out all grains, all sugars, all yeast, all processed food, all legumes, all fruit (except for berries) and the top 8 allergens. I ate mainly organic free-range chicken, bison, lamb and beef plus any vegetables and sweet potatoes for my source of carbs. Most people do this for only a week or two and then add new things in. I was so sick and desperate when I did my elimination diet however I wanted to be sure any recovery was really food related. I stayed on the strict elimination diet for an entire month. Then when I had began to feel better I added one new food (in whole food form, not processed) a week.

The first 3 weeks of my elimination diet I ate ground lamb,sweet potatos,peas,peaches and plain white rice and drank only plain water.Then I very slowly started adding foods one at a time in whole form and would wait at least a week before adding a new food to judge for a reaction (or not). A very slow tedious process but so VERY worth it.

AVR1962 Collaborator

Thank you so much for your responses. I don't know if I have the willpower yet to eliminate everything from my diet. I greatly commend ya'll who have done the elimination diet...You are strong people! Tomorrow I go for a check-up. We'll see from there....I may just have to do more than just gluten/lactose free diet. Thank you again!!

I know this sounds very tasking but really it is not. You actually open the door to much healthier eating and it opens your eyes to new ideas. Go back to the basics and it really is quite simple. I made a pot roast last night, no gravy, cooked in it's own juices with water, loaded with veggies. Homemade soups are so simple and can hold so much nutrients. Thinks basic!

New Community Member Explorer

Thanks for your responses. I don't feel "desperate" enough to resort to an elimination diet nor do I want to right now. My doctor recommended I go see a nutritionist/dietician. I've been gluten free for nearly 6 weeks. Still having some of the same digestive issues. I don't really think a nutritionist can do anything to help me out. I've been eat strictly gluten/lactose free. and am very cautious about CC. Would it be beneficial to go see a dietician? Any insight?

New Community Member Explorer

I know this sounds very tasking but really it is not. You actually open the door to much healthier eating and it opens your eyes to new ideas. Go back to the basics and it really is quite simple. I made a pot roast last night, no gravy, cooked in it's own juices with water, loaded with veggies. Homemade soups are so simple and can hold so much nutrients. Thinks basic!

Hi there,

I remember reading some post and it seemed like you had posted something about Nivea (I recognized the picture from on here!). Is Nivea lip care gluten free, do you know?

I greatly appreciate all your helpful responses you contribute to this site! :)

GlutenFreeManna Rising Star

Thanks for your responses. I don't feel "desperate" enough to resort to an elimination diet nor do I want to right now. My doctor recommended I go see a nutritionist/dietician. I've been gluten free for nearly 6 weeks. Still having some of the same digestive issues. I don't really think a nutritionist can do anything to help me out. I've been eat strictly gluten/lactose free. and am very cautious about CC. Would it be beneficial to go see a dietician? Any insight?

Some dieticians are worthless (will only tell you what you already know) and some can help guide you through an elimination diet or additional food intolerance/allergy testing. If your insurance covers it then I would go to one just to see if you can learn anything. If your insurance does not cover it I would not bother.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    2. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    3. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.