Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Should Be In Europe Right Now...

love2travel

Recommended Posts

love2travel Mentor
love2travel
Posted

The last two months have been quite rough and I have missed you! I feel far worse after going gluten free than ever before. I have also eliminated dairy and soy. The doctor is testing me for everything he can think of (I have severe chronic D, nausea and a wide variety of other lovely symptoms). Found out I have a GI infection so am on antibiotics which is what I did NOT want. Thankfully I have been on probiotics for ages and my doctor said I must double my dose right now (at least he gets that). Next step - gastroscopy and colonoscopy again to rule out other issues. Have lost ten lb in less than two weeks. I know it is not gluten. Thankfully my doctor is thorough!

Anyway, my husband and I were to fly to Italy and Croatia this past weekend and had to cancel. It is difficult when you anticipate something so much then are unable to go due to health issues. Again. Not only am I too sick but in too much pain to consider it (which takes a lot - I usually really push myself). I cannot even COOK because even looking at/smelling food makes me vomit. That is really not like me at all.

So, my rant is over. Just wanted to drop in to say a big fat "HI"! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

The last two months have been quite rough and I have missed you! I feel far worse after going gluten free than ever before. I have also eliminated dairy and soy. The doctor is testing me for everything he can think of (I have severe chronic D, nausea and a wide variety of other lovely symptoms). Found out I have a GI infection so am on antibiotics which is what I did NOT want. Thankfully I have been on probiotics for ages and my doctor said I must double my dose right now (at least he gets that). Next step - gastroscopy and colonoscopy again to rule out other issues. Have lost ten lb in less than two weeks. I know it is not gluten. Thankfully my doctor is thorough!

Anyway, my husband and I were to fly to Italy and Croatia this past weekend and had to cancel. It is difficult when you anticipate something so much then are unable to go due to health issues. Again. Not only am I too sick but in too much pain to consider it (which takes a lot - I usually really push myself). I cannot even COOK because even looking at/smelling food makes me vomit. That is really not like me at all.

So, my rant is over. Just wanted to drop in to say a big fat "HI"! :D

Hi Love2travel! I've missed your food posts. I'm so sorry you are going through such a rough time right now. Between this and your back injuries you must be in agony. I hope they can figure out what it is that is making you so sick. Not everything is food related. I hope whatever it is turns out to be easily and quickly treated to get you back to your normal gourmet-cooking-food-loving self. (((HUGS))) Saying a prayer for you right now. :(

love2travel Mentor
love2travel
Posted
  • Author

Hi Love2travel! I've missed your food posts. I'm so sorry you are going through such a rough time right now. Between this and your back injuries you must be in agony. I hope they can figure out what it is that is making you so sick. Not everything is food related. I hope whatever it is turns out to be easily and quickly treated to get you back to your normal gourmet-cooking-food-loving self. (((HUGS))) Saying a prayer for you right now. :(

Thanks so much for your sweet words and for praying - I really could use a miracle right now! :) I have not even looked at the cooking threads because it makes me too nauseous. :(

navigator Apprentice
navigator
Posted

I was so sorry to read your post. I know your two main loves are travelling and cooking and at the moment they are both denied you. I sincerely hope that you can return to both soon. You have been an inspiration to me and we seem to have similar intersts(although your cooking abilities are superior to mine). Take care of yourself.

Isobel x

mushroom Proficient
mushroom
Posted

So sorry to hear about your trip postponement, and the reasons for it :( Hope they find out what is causing this real soon and that you get to feeling better quick. {{{hugs}}}

UKGail Rookie
UKGail
Posted

So sorry you are still feeling so ill, on top of all the other things you deal with. I hope your doc gets to the bottom of it, and that you feel better soon. If it just a tiny crumb of consolation, at least you can say that your trip is just postphoned, and that your other home is just waiting for you to be able to get there when you are ready.

Best wishes

Gail

love2travel Mentor
love2travel
Posted
  • Author

I was so sorry to read your post. I know your two main loves are travelling and cooking and at the moment they are both denied you. I sincerely hope that you can return to both soon. You have been an inspiration to me and we seem to have similar intersts(although your cooking abilities are superior to mine). Take care of yourself.

Isobel x

Oh, Isobel. You understand me so well! Thank you so much for your kindness. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


love2travel Mentor
love2travel
Posted
  • Author

So sorry to hear about your trip postponement, and the reasons for it :( Hope they find out what is causing this real soon and that you get to feeling better quick. {{{hugs}}}

Mushroom, thank you so very much. I needed your hugs today and they make me feel better already! :)

love2travel Mentor
love2travel
Posted
  • Author

So sorry you are still feeling so ill, on top of all the other things you deal with. I hope your doc gets to the bottom of it, and that you feel better soon. If it just a tiny crumb of consolation, at least you can say that your trip is just postphoned, and that your other home is just waiting for you to be able to get there when you are ready.

Best wishes

Gail

Gail, you make a very good point. The word "postponed" is far better than "cancelled"! I feel extra bad about this as my sister was coming with us (she is currently on leave from work and returns to work January) and she has never been to Europe. It was such a difficult decision to make but both she and my dear husband are very understanding. I'm blessed to have their love and support.

Thank you.

luvs2eat Collaborator
luvs2eat
Posted

I am SOOO sorry to hear about your health and travel woes. Did you get travel insurance? I'm beginning to think it's worth it to spend the extra $$ for things just like this!

Feel better soon!!

love2travel Mentor
love2travel
Posted
  • Author

I am SOOO sorry to hear about your health and travel woes. Did you get travel insurance? I'm beginning to think it's worth it to spend the extra $$ for things just like this!

Feel better soon!!

Sadly we did not this time for some crazy reason. We had to pay $300 each to cancel. We know better - we travel a lot! A very foolish decision on our part. :(

ArtistinChina Newbie
ArtistinChina
Posted

Hello, I am new in this group. My spouse and I had to make our trip to Vietnam shorter than expected. We spent 24 hours there, rather than 6 days. I was too sick to go anywhere else than our hotel room. I had brought my own food to make sure but I cheated and had some rice in a restaurant, gave the cef a notice written in vietnamese about my food restriction...but I think the oil he used, soybean or vegetal, got me. I did not know it could be so worst. I wonder now if I should pay attention to traces of soy too...

Anyway, just want to say I feel compassion for you Love2travel. I keep telling myself this is temporary. I will soon find all I can eat...and how to travel (this is a big question mark at the moment). Any tips are welcome!

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm so sorry. I hope the doctors can figure out what is going on soon.

pricklypear1971 Community Regular
pricklypear1971
Posted

I'm so sorry. I hope they figure out what's going on quickly so you can resume your life.

You'll get to Europe. Eventually.

BabsV Enthusiast
BabsV
Posted

I'm so sorry. That has to be so very disappointing.

I really hope you are feeling better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    2. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    4. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    5. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748
    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.