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I Should Be In Europe Right Now...

love2travel

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love2travel Mentor
love2travel
Posted

The last two months have been quite rough and I have missed you! I feel far worse after going gluten free than ever before. I have also eliminated dairy and soy. The doctor is testing me for everything he can think of (I have severe chronic D, nausea and a wide variety of other lovely symptoms). Found out I have a GI infection so am on antibiotics which is what I did NOT want. Thankfully I have been on probiotics for ages and my doctor said I must double my dose right now (at least he gets that). Next step - gastroscopy and colonoscopy again to rule out other issues. Have lost ten lb in less than two weeks. I know it is not gluten. Thankfully my doctor is thorough!

Anyway, my husband and I were to fly to Italy and Croatia this past weekend and had to cancel. It is difficult when you anticipate something so much then are unable to go due to health issues. Again. Not only am I too sick but in too much pain to consider it (which takes a lot - I usually really push myself). I cannot even COOK because even looking at/smelling food makes me vomit. That is really not like me at all.

So, my rant is over. Just wanted to drop in to say a big fat "HI"! :D

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GlutenFreeManna Rising Star
GlutenFreeManna
Posted

The last two months have been quite rough and I have missed you! I feel far worse after going gluten free than ever before. I have also eliminated dairy and soy. The doctor is testing me for everything he can think of (I have severe chronic D, nausea and a wide variety of other lovely symptoms). Found out I have a GI infection so am on antibiotics which is what I did NOT want. Thankfully I have been on probiotics for ages and my doctor said I must double my dose right now (at least he gets that). Next step - gastroscopy and colonoscopy again to rule out other issues. Have lost ten lb in less than two weeks. I know it is not gluten. Thankfully my doctor is thorough!

Anyway, my husband and I were to fly to Italy and Croatia this past weekend and had to cancel. It is difficult when you anticipate something so much then are unable to go due to health issues. Again. Not only am I too sick but in too much pain to consider it (which takes a lot - I usually really push myself). I cannot even COOK because even looking at/smelling food makes me vomit. That is really not like me at all.

So, my rant is over. Just wanted to drop in to say a big fat "HI"! :D

Hi Love2travel! I've missed your food posts. I'm so sorry you are going through such a rough time right now. Between this and your back injuries you must be in agony. I hope they can figure out what it is that is making you so sick. Not everything is food related. I hope whatever it is turns out to be easily and quickly treated to get you back to your normal gourmet-cooking-food-loving self. (((HUGS))) Saying a prayer for you right now. :(

love2travel Mentor
love2travel
Posted
  • Author

Hi Love2travel! I've missed your food posts. I'm so sorry you are going through such a rough time right now. Between this and your back injuries you must be in agony. I hope they can figure out what it is that is making you so sick. Not everything is food related. I hope whatever it is turns out to be easily and quickly treated to get you back to your normal gourmet-cooking-food-loving self. (((HUGS))) Saying a prayer for you right now. :(

Thanks so much for your sweet words and for praying - I really could use a miracle right now! :) I have not even looked at the cooking threads because it makes me too nauseous. :(

navigator Apprentice
navigator
Posted

I was so sorry to read your post. I know your two main loves are travelling and cooking and at the moment they are both denied you. I sincerely hope that you can return to both soon. You have been an inspiration to me and we seem to have similar intersts(although your cooking abilities are superior to mine). Take care of yourself.

Isobel x

mushroom Proficient
mushroom
Posted

So sorry to hear about your trip postponement, and the reasons for it :( Hope they find out what is causing this real soon and that you get to feeling better quick. {{{hugs}}}

UKGail Rookie
UKGail
Posted

So sorry you are still feeling so ill, on top of all the other things you deal with. I hope your doc gets to the bottom of it, and that you feel better soon. If it just a tiny crumb of consolation, at least you can say that your trip is just postphoned, and that your other home is just waiting for you to be able to get there when you are ready.

Best wishes

Gail

love2travel Mentor
love2travel
Posted
  • Author

I was so sorry to read your post. I know your two main loves are travelling and cooking and at the moment they are both denied you. I sincerely hope that you can return to both soon. You have been an inspiration to me and we seem to have similar intersts(although your cooking abilities are superior to mine). Take care of yourself.

Isobel x

Oh, Isobel. You understand me so well! Thank you so much for your kindness. :)

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love2travel Mentor
love2travel
Posted
  • Author

So sorry to hear about your trip postponement, and the reasons for it :( Hope they find out what is causing this real soon and that you get to feeling better quick. {{{hugs}}}

Mushroom, thank you so very much. I needed your hugs today and they make me feel better already! :)

love2travel Mentor
love2travel
Posted
  • Author

So sorry you are still feeling so ill, on top of all the other things you deal with. I hope your doc gets to the bottom of it, and that you feel better soon. If it just a tiny crumb of consolation, at least you can say that your trip is just postphoned, and that your other home is just waiting for you to be able to get there when you are ready.

Best wishes

Gail

Gail, you make a very good point. The word "postponed" is far better than "cancelled"! I feel extra bad about this as my sister was coming with us (she is currently on leave from work and returns to work January) and she has never been to Europe. It was such a difficult decision to make but both she and my dear husband are very understanding. I'm blessed to have their love and support.

Thank you.

luvs2eat Collaborator
luvs2eat
Posted

I am SOOO sorry to hear about your health and travel woes. Did you get travel insurance? I'm beginning to think it's worth it to spend the extra $$ for things just like this!

Feel better soon!!

love2travel Mentor
love2travel
Posted
  • Author

I am SOOO sorry to hear about your health and travel woes. Did you get travel insurance? I'm beginning to think it's worth it to spend the extra $$ for things just like this!

Feel better soon!!

Sadly we did not this time for some crazy reason. We had to pay $300 each to cancel. We know better - we travel a lot! A very foolish decision on our part. :(

ArtistinChina Newbie
ArtistinChina
Posted

Hello, I am new in this group. My spouse and I had to make our trip to Vietnam shorter than expected. We spent 24 hours there, rather than 6 days. I was too sick to go anywhere else than our hotel room. I had brought my own food to make sure but I cheated and had some rice in a restaurant, gave the cef a notice written in vietnamese about my food restriction...but I think the oil he used, soybean or vegetal, got me. I did not know it could be so worst. I wonder now if I should pay attention to traces of soy too...

Anyway, just want to say I feel compassion for you Love2travel. I keep telling myself this is temporary. I will soon find all I can eat...and how to travel (this is a big question mark at the moment). Any tips are welcome!

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm so sorry. I hope the doctors can figure out what is going on soon.

pricklypear1971 Community Regular
pricklypear1971
Posted

I'm so sorry. I hope they figure out what's going on quickly so you can resume your life.

You'll get to Europe. Eventually.

BabsV Enthusiast
BabsV
Posted

I'm so sorry. That has to be so very disappointing.

I really hope you are feeling better soon.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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