Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Lactose Intolerance

BeFree

By BeFree
in Food Intolerance & Leaky Gut

Recommended Posts

BeFree Contributor
BeFree
Posted

I have searched the internet and cannot find the answer to this question. I realize this question has probably been asked many times but if someone could answer I'd really appreciate it.

I understand that a person with celiac can have a temporary lactose intolerance until the villi heal completely. If you ingest lactose before the villi have completely healed, will it slow down your healing process? I want to know if I can occasionally eat cheese and just put up with the symptoms of the lactose intolerance, or is this damaging to my intestines?

(I don't have a diagnosis of celiac yet, but until I have a diagnosis, I want to be cautious and try to make sure I'm healing any intestinal damage, if in case I do have it.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Lactose intolerance, whether temporary due to villous atrophy, or permanent, is not an autoimmune condition.

No damage to your body tissue will result from ingesting lactose. You may FEEL like your intestines are being torn apart, but the symptoms will pass. Nobody will want to be downwind of you, and you may want to stay close to a toilet. :ph34r:

mushroom Proficient
mushroom
Posted

The gluten is responsible for the damage to the villi

The lactase to digest the lactose is made at the tips of the villi

You will most likely be lactose intolerant until your villi heal

Until they heal the lactose will ferment rather than digest in your gut and and cause the side effects Peter mentions, but it should not cause any damage to your body.

AVR1962 Collaborator
AVR1962
Posted

Have you tried aged cheeses? There are alot of aged cheeses that lose their lactose during the aging process. Where I live they are labeled in the cheese section as dairy free. Some cultured yogurts are the same although I think more lactose stays in the yogurt than in the cheese.

BeFree Contributor
BeFree
Posted
  • Author

Thanks so much for your answers. I'm OK with some occasional discomfort as long as I know I'm not damaging my body.

I ate some gluten-free pizza and had some upset afterwards (first time I'd eaten cheese since going gluten-free), and realized I'm probably lactose intolerant. The next day I ate the same pizza with a lactaid and it went much better. (So it doesn't seem to have been CC or anything.)

I have indeed found that aged cheese seems to go down easier, which is great since that's the kind I prefer anyway! :)

BeFree Contributor
BeFree
Posted
  • Author

"You may FEEL like your intestines are being torn apart"

Yes...That is EXACTLY how I felt the last time I ate a cheese sandwich on wheat bread, like I was being torn apart, it was so painful. Nice that there are people that understand.

Eating just cheese by itself (ie, without the gluten), seems to be manageable for me though, fortunately. Uncomfortable, but not painful.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I was referred to a dietician to discuss my Celiac diet. I asked her the same question. She said it would be good to take a lactase suppliment if dairy gave me discomfort. She said if adding some cheese or butter to things made them taste better to encourage me to eat, go ahead and do so.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BeFree Contributor
BeFree
Posted
  • Author

"She said if adding some cheese or butter to things made them taste better to encourage me to eat, go ahead and do so."

The nut-thins do taste a lot better with some cheese!

Lisa Mentor
Lisa
Posted

Here is a statement from MedScape (which I cannot link)

Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

I do feel that the previous posters have answered your questions, though.

  • 2 weeks later...
cougie23 Explorer
cougie23
Posted

The gluten is responsible for the damage to the villi

The lactase to digest the lactose is made at the tips of the villi

You will most likely be lactose intolerant until your villi heal

Until they heal the lactose will ferment rather than digest in your gut and and cause the side effects Peter mentions, but it should not cause any damage to your body.

Wow...it's been 3 months since I've been diagnosed and this is the first time someone explained WHY celiacs can't have lactose..my Dr. just said DON'T DO IT...she never said why!!! I know I'm casien sensitive but this really explains the dairy intolerance on a whole new level...espeacially the rotting breath before I stopped all dairy!!!

thanks for clearing that up! Its amazing what I learn on this site every day!

And Peter... LOVE the evil pumpkin!!! :D:D:D It's delicously wicked! B)

BeFree Contributor
BeFree
Posted
  • Author

"Wow...it's been 3 months since I've been diagnosed and this is the first time someone explained WHY celiacs can't have lactose..my Dr. just said DON'T DO IT...she never said why!!!"

Oh that's too bad--I think it's so important to your health to have that piece of information where you understand what's going in inside your body. I'm glad you could find some answers here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.