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glutenfreemamax2

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glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

Thanks again for all your posts. You guys have such great information and everyone brings something to the table.

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captaincrab55 Collaborator
captaincrab55
Posted

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

glutenfreemamax2, I feel your pain and it's Great to have Friends here that care & understand... I grew up hearing friends & family openly calling my Mom a Hypochondriac.. I learned at an early age that my Mom was different then other Moms in my neighborhood.. Back in the mid 90s my Mom (then in her mid 70s) was diagnosed as most likely having Rickets as a young child, by a Doctor from Johns Hopkins... She never did get diagnosed with Celiac.. I since learned that her Mom suffered from many different ills and died at was considered an early age back in the mid 1940s..

At an early age I overheard 2 different Doctors telling my parents that I had growing pains and just wanted attention.. After hearing family labeling me as a Hypochondriac at a very young age, I stopped complaining and kept it to myself... It wasn't till June of 09 that my 4th Dermatologist in 30 years diagnosed me with DH by biopsy & blood lab on my second visit... He was the first Doctor to hear me out, how I itched all my life and broke out.. He then questioned me about other possibe health issues and directed me to a GI..

ravenwoodglass Mentor
ravenwoodglass
Posted

Realizing your not alone is one of the best things about this site. So many of us have been sick for so long and are labeled hypocondriacs by doctors that we eventually lose hope of ever feeling well. Once you get that label it tends to follow you and doctors wonder why some of us don't want them to see our records from past doctors. I hope there is soon a day when doctors look for celiac first rather than last and stop telling us to live off immodium and handing us scripts for antidepressants because they think everything is 'all in our heads'.

saintmaybe Collaborator
saintmaybe
Posted

Realizing your not alone is one of the best things about this site. So many of us have been sick for so long and are labeled hypocondriacs by doctors that we eventually lose hope of ever feeling well. Once you get that label it tends to follow you and doctors wonder why some of us don't want them to see our records from past doctors. I hope there is soon a day when doctors look for celiac first rather than last and stop telling us to live off immodium and handing us scripts for antidepressants because they think everything is 'all in our heads'.

No offense to the many, many men that suffer celiac, but I think there's a huge degree a misogyny in the way celiac, and indeed a lot of the autoimmunes are treated, to this day.

I can't tell you the number of times I've heard, oh, it's just feminine problems. It's hysteria. It's hypochondria.

You know what? No. These are REAL physical problems, with real physical pains. There s nothing imaginary about diarrhea every day for months on end, 40 pounds of rapid weight loss, hair falling out, or dizziness to the point of falling over! But these have all been explained away as vague stomach problems, why aren't you happy- you're a girl?, vanity, and "clumsiness." Give me a break.

If we took women's health as seriously as we took men's, no one would consistently say that to the face of a whole class of people.

Jestgar Rising Star
Jestgar
Posted

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

Thanks again for all your posts. You guys have such great information and everyone brings something to the table.

There is an amazing group of knowledgeable people here. :)

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    • trents
      symptoms.

      By trents · Posted

      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine. 
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies.  Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine.  Vitamins are needed to break down histamine released from immune cells like mast cells that get over stimulated and produce histamine at the least provocation as part of the immune response to gluten. This can last even after gluten exposure is ended.  Thiamine supplementation helps calm the mast cells.  Vitamin D helps calm the immune system.  Other B vitamins and minerals are needed to correct the nutritional deficiencies that developed while the villi were damaged and not able to absorb nutrients.  The villi need vitamins and minerals to repair themselves and grow new villi. Focus on eating a nutritional dense, low inflammation diet, like the Autoimmune Protocol Diet, and supplementing to correct dietary deficiencies.  Once your body has the vitamins and minerals needed, the body can begin healing itself.  You can have nutritional deficiencies even if blood tests say you have "normal" blood levels of vitamins.  Blood is a transport system carrying vitamins from the digestive system to organs and tissues.  Vitamins are used inside cells where they cannot be measured.   Please discuss with your doctor and dietician supplementing vitamins and minerals while trying to heal.  
    • trents
      symptoms.

      By trents · Posted

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
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