Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick And Tired Of Waiting

stanleymonkey

Recommended Posts

stanleymonkey Explorer
stanleymonkey
Posted

we are waiting for genetic tests to see if our daughter has Celica disease or a gluten intolerance. Based on her symptoms gastro says if it is positive celiac disease if negative glutennintolerance.

after all , blood work and stool samples were taken we went gluten free....now on day 3

our main issue is behead 2 huge very loose cream coloured stools, then 2 pale pencil thin stools and now she is having loose grainy green foul smelling stools and is wetting and soiling herself again, she has been in underwear without incident for 6 months now

family doc......call your pediatrician this is out of my league

pediatrician....you need to see a gastro

gastro...he will call back he is not in today but clerk will all him at home

kids emergency.....after complete history including all things in my first ever post on here...toddler diabetes, or tummy bug, go home and give her pedialyte cream stole are from too much milk......she has an anaphylactic reaction to milk

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


carecare Enthusiast
carecare
Posted

genetic testing will not confirm celiac disease or not. Some here on the forum do have confirmed celiac yet do not possess the gene that predisposes you to celiac disease.

Did she have the celiac blood test? not the gene test. I also think that there is bound to be some stool changes when first starting a gluten free diet. Also, I do know that when my kids at a young age would come down with a "bug" virus they'd get that green foul smelling stool. Could she be fighting a virus?

stanleymonkey Explorer
stanleymonkey
Posted
  • Author

genetic testing will not confirm celiac disease or not. Some here on the forum do have confirmed celiac yet do not possess the gene that predisposes you to celiac disease.

Did she have the celiac blood test? not the gene test. I also think that there is bound to be some stool changes when first starting a gluten free diet. Also, I do know that when my kids at a young age would come down with a "bug" virus they'd get that green foul smelling stool. Could she be fighting a virus?

apart from the tummy troubles she is as strong as an ox, we get a cold for a month, she gets it for a day

the only real thing that has changed with gluten free is her bread and cereal

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.