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Fish On Newbie

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.


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jswog Contributor

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

First off, there is no such thing as 'borderline' Celiac. You either have the disease or you do not. As for a gluten free diet, it does sound difficult at first, but unless you are eating mostly processed foods, it is not all that complex. I'm VERY new to eating gluten free myself (just over a month now), but found that the vast majority of the recipes I make for my husband and myself were already gluten free. Now I am fortunate that my husband and I both LOVE to cook, so we just stopped making recipes that had gluten containing ingredients. We've found that most of our fish/seafood dishes are naturally gluten free. We've begun to focus even more on things like fresh fruits and veggies. We love quinoa and rices for our carb sources. Good luck with this journey! The learning curve is steep, but well worth it!

Britgirl Rookie

You may want to read up on both Paleo and Primal style diets. There are several reference books and cookbooks which are becoming my go to for meal planning. Eating gluten-free is a lot easier with it being so mainstream these days. My mum was diagnosed with Celiac 10 years ago and it was very hard trying to find gluten-free stuff then. It's so simple nowadays.

Marilyn R Community Regular

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

Hi Fish On, and welcome to the forum!

I'm not a medical technician, but it sounds like you have diverticulosus, which isn't uncommon for people who have celiac disease.

Help with the diet: eat whole foods like fish and meat, avoid processed food, kiss that Italian bread good-bye, purchase Udi's (only palatable bread that is gluten-free that I've found). If you hate the Udi's, chop it in a mini food processor for bread crumbs for fish cakes or meatballs. All veggies should be good for you, fresh is best.

I like to substitute baked potato or rice (or gluten-free pasta) for things I used to eat bread with. Last night I stuffed peppers and mushrooms with potatos and cheese, smoked pork and chopped green onion. Check out the "What's for Dinner" thread in the cooking topic for more ideas.

It's pretty normal to be pissed off about this gluten-free stuff for awhile. Grocery shopping will be a pia for awhile, but it gets better. It sounds like you've taken good care of your body, and your body just upped the ante.

Lisa Mentor

There are people here who have no symptoms, yet effected by digesting gluten. Whether or not you are symptomatic, you could generate symptoms in your brain, your joints, your blood, your bones, pancreas, liver...I could go on. Many times, Celiac is discovered as a secondary diagnosis.

There are a few other issues that can cause villious atrophy, but a medical history is taken and if consistant, Celiac is the Diagnosis.

I would consider yourself lucky, if you only need to change your diet. :D

Reba32 Rookie

I will second Britgirl's suggestion for the Paleo and/or Primal diet! Many of the online blogs and printed cookbooks will give you lots of ideas for meal plans.

Atkins is another good one for meal plans and whatnot. Most of the plan is grain free, up until Life Time Maintenance, and a lot of people never do add grains back in.

If you absolutely *must* eat manufactured and processed foods, (I would recommend against it, at least for a few months while you heal), there are lots of gluten free options available now in most grocery stores.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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