Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Site

Fish On

By Fish On
in Coping with Celiac Disease

Recommended Posts

Fish On Newbie
Fish On
Posted

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jswog Contributor
jswog
Posted

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

First off, there is no such thing as 'borderline' Celiac. You either have the disease or you do not. As for a gluten free diet, it does sound difficult at first, but unless you are eating mostly processed foods, it is not all that complex. I'm VERY new to eating gluten free myself (just over a month now), but found that the vast majority of the recipes I make for my husband and myself were already gluten free. Now I am fortunate that my husband and I both LOVE to cook, so we just stopped making recipes that had gluten containing ingredients. We've found that most of our fish/seafood dishes are naturally gluten free. We've begun to focus even more on things like fresh fruits and veggies. We love quinoa and rices for our carb sources. Good luck with this journey! The learning curve is steep, but well worth it!

Britgirl Rookie
Britgirl
Posted

You may want to read up on both Paleo and Primal style diets. There are several reference books and cookbooks which are becoming my go to for meal planning. Eating gluten-free is a lot easier with it being so mainstream these days. My mum was diagnosed with Celiac 10 years ago and it was very hard trying to find gluten-free stuff then. It's so simple nowadays.

Marilyn R Community Regular
Marilyn R
Posted

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

Hi Fish On, and welcome to the forum!

I'm not a medical technician, but it sounds like you have diverticulosus, which isn't uncommon for people who have celiac disease.

Help with the diet: eat whole foods like fish and meat, avoid processed food, kiss that Italian bread good-bye, purchase Udi's (only palatable bread that is gluten-free that I've found). If you hate the Udi's, chop it in a mini food processor for bread crumbs for fish cakes or meatballs. All veggies should be good for you, fresh is best.

I like to substitute baked potato or rice (or gluten-free pasta) for things I used to eat bread with. Last night I stuffed peppers and mushrooms with potatos and cheese, smoked pork and chopped green onion. Check out the "What's for Dinner" thread in the cooking topic for more ideas.

It's pretty normal to be pissed off about this gluten-free stuff for awhile. Grocery shopping will be a pia for awhile, but it gets better. It sounds like you've taken good care of your body, and your body just upped the ante.

Lisa Mentor
Lisa
Posted

There are people here who have no symptoms, yet effected by digesting gluten. Whether or not you are symptomatic, you could generate symptoms in your brain, your joints, your blood, your bones, pancreas, liver...I could go on. Many times, Celiac is discovered as a secondary diagnosis.

There are a few other issues that can cause villious atrophy, but a medical history is taken and if consistant, Celiac is the Diagnosis.

I would consider yourself lucky, if you only need to change your diet. :D

Reba32 Rookie
Reba32
Posted

I will second Britgirl's suggestion for the Paleo and/or Primal diet! Many of the online blogs and printed cookbooks will give you lots of ideas for meal plans.

Atkins is another good one for meal plans and whatnot. Most of the plan is grain free, up until Life Time Maintenance, and a lot of people never do add grains back in.

If you absolutely *must* eat manufactured and processed foods, (I would recommend against it, at least for a few months while you heal), there are lots of gluten free options available now in most grocery stores.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748
    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.