Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Site


Fish On

Recommended Posts

Fish On Newbie

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jswog Contributor

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

First off, there is no such thing as 'borderline' Celiac. You either have the disease or you do not. As for a gluten free diet, it does sound difficult at first, but unless you are eating mostly processed foods, it is not all that complex. I'm VERY new to eating gluten free myself (just over a month now), but found that the vast majority of the recipes I make for my husband and myself were already gluten free. Now I am fortunate that my husband and I both LOVE to cook, so we just stopped making recipes that had gluten containing ingredients. We've found that most of our fish/seafood dishes are naturally gluten free. We've begun to focus even more on things like fresh fruits and veggies. We love quinoa and rices for our carb sources. Good luck with this journey! The learning curve is steep, but well worth it!

Britgirl Rookie

You may want to read up on both Paleo and Primal style diets. There are several reference books and cookbooks which are becoming my go to for meal planning. Eating gluten-free is a lot easier with it being so mainstream these days. My mum was diagnosed with Celiac 10 years ago and it was very hard trying to find gluten-free stuff then. It's so simple nowadays.

Marilyn R Community Regular

I have really never had any symptoms except for some gas or indigestion. I have never had pain from this and I have always eaten whatever i wanted my entire life. I am 62 5'4" 115lbs and healthy until this blood work came back which lead to my first colonoscopy and endoscopy. They discovered these pockets in my colon, which aren't inflammed yet, but may become so eating nuts, seeds, popcorn, etc. I have always eaten that stuff. Then this Gluten free s$#&, well I have always eaten Italian bread at dinner and wheat bread for sandwiches. I need help with this gluten free diet.

Hi Fish On, and welcome to the forum!

I'm not a medical technician, but it sounds like you have diverticulosus, which isn't uncommon for people who have celiac disease.

Help with the diet: eat whole foods like fish and meat, avoid processed food, kiss that Italian bread good-bye, purchase Udi's (only palatable bread that is gluten-free that I've found). If you hate the Udi's, chop it in a mini food processor for bread crumbs for fish cakes or meatballs. All veggies should be good for you, fresh is best.

I like to substitute baked potato or rice (or gluten-free pasta) for things I used to eat bread with. Last night I stuffed peppers and mushrooms with potatos and cheese, smoked pork and chopped green onion. Check out the "What's for Dinner" thread in the cooking topic for more ideas.

It's pretty normal to be pissed off about this gluten-free stuff for awhile. Grocery shopping will be a pia for awhile, but it gets better. It sounds like you've taken good care of your body, and your body just upped the ante.

Lisa Mentor

There are people here who have no symptoms, yet effected by digesting gluten. Whether or not you are symptomatic, you could generate symptoms in your brain, your joints, your blood, your bones, pancreas, liver...I could go on. Many times, Celiac is discovered as a secondary diagnosis.

There are a few other issues that can cause villious atrophy, but a medical history is taken and if consistant, Celiac is the Diagnosis.

I would consider yourself lucky, if you only need to change your diet. :D

Reba32 Rookie

I will second Britgirl's suggestion for the Paleo and/or Primal diet! Many of the online blogs and printed cookbooks will give you lots of ideas for meal plans.

Atkins is another good one for meal plans and whatnot. Most of the plan is grain free, up until Life Time Maintenance, and a lot of people never do add grains back in.

If you absolutely *must* eat manufactured and processed foods, (I would recommend against it, at least for a few months while you heal), there are lots of gluten free options available now in most grocery stores.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,925
    • Most Online (within 30 mins)
      7,748

    Jimlock
    Newest Member
    Jimlock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.