Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Panel For My 2 Year Old Daughter

MamaGigi

Recommended Posts

MamaGigi Newbie
MamaGigi
Posted

Hi... I am sort of new here. I was misdiagnosed several years ago and used to be apart of this board... until a doctor last year told me that my celiac panel never came back positive and the DR that diagnosed me was wrong. I went back to gluten... and here I am now with two children that are having issues... not to mention, I don't feel the best either.

My daughter is a petite two year old. Her doctor did a Celiac Panel on her and when the results came he said they were a little high and just told us since she is growing she is fine (although growing slowly...). I finally got a copy of these tests and two of them are positive. I need help understanding.

Her Gliadin IgA is 12 and her Gliadin IgG is 100. Her pediatician said this is not her area of expertise and wants me to take her to a specialist. And I am, however it won't be for several months. Can anyone give any insight? I am currently adhereing to a gluten-free diet, but do not want to put my daughter on one if she will need a biopsy, and if it's not necessary. Any input is greatly appreciated. OH, her doctor has also ordered a bone scan of her wrist. I have never heard of this, any of you?

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stanleymonkey Explorer
stanleymonkey
Posted

our doc said growth isnt always a good indicator of celiac, even though our daughter put on a pound and grew 3 cm in a month he still oredered a full celiac panel as he said not all kids are the stereotypical pot belly and stick limbs

we were always told maybe our daughter was going to be petite but her 8 month old sister is the same size she was at 13 months so they looked further

her calcium level was off so that was enough for them

high is high growth means nothing

push to see if you can get your appointment moved up

the bone scan will be to see if she is losing calcium, there are lots of bones in the wrist so i guess it will be easier to see

MamaGigi Newbie
MamaGigi
Posted
  • Author

Thank you, I pushed to even see these results. Our ped is from Italy and his English is not so great. He told my husband he wasn;t overly concerned, but our other ped was- and this is where we are now. I guess if she was losing calcium then that would be a marker as well? Ugh. I feel like that test is too high to be taken lightly. I appreciate your response.

frieze Community Regular
frieze
Posted

the scan of the wrist is probably for "bone age".

MamaGigi Newbie
MamaGigi
Posted
  • Author

the scan of the wrist is probably for "bone age".

what does that mean?! See... nothing has been explained, it was very rushed. I am so confused!

lemontree1 Rookie
lemontree1
Posted

There are growth plates in the wrist, so it may be that is what they are looking at. They may be able to tell her percentage of growth? I am also curious.

semily Newbie
semily
Posted

The wrist x-ray is to check his bone growth age. My son, now 27 months, had his 2 year pediatrician visit this summer and the doctor was concerned about his lack of growth so he ordered a bone growth x-ray of his hand and wrist. It was reviewed by a pediatric endocrinologist who ultimately determined that 2 years old is too young for the test to be conclusive - the age of the bones in his hand and wrist ranged from 15-24 months, which they said can be common at that age. My ped said ultimately he had constitutional growth delay and would catch up later. The whole thing got me worried there was something else going on (and I was annoyed we went through the x-ray process for nothing) so we switched doctors.

I was glad I did, because 6 weeks later my son got extremely ill in September, lost 10% of his already meager weight and was getting sicker by the minute. Our new pediatrician ordered a celiac panel and the TTG IgA number came back greater than 100 and TTG IgG was 16.3. He's been gluten free for a month now and has already gained 2 pounds (going from 21 to 23 pounds). He was 20.5 pounds a full year ago, so this is a huge gain!

I think you're right to take those results seriously. I would call and see if you can get the appt moved up. Whether or not to put her on a gluten free diet now is a really good question. We decided to go gluten-free immediately because our son was just too sick to keep him on it another second longer. We did get an emergency appt with a gastro that wanted to do a biopsy, but she was awful and we just weren't comfortable with her doing the procudure. We have an appt in two weeks with another specialist but we're keeping him gluten free for now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

A bone age x-ray is an x-ray of the hand and wrist. The radiologist can get an estimate "bone age" from the development of the wrist and hand bones.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748
    LizzieE
    Newest Member
    LizzieE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.