Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Had No Gluten Issues.......


thegirlsmom

Recommended Posts

thegirlsmom Apprentice

If you had no intolerance to gluten would you be able to go on and off gluten at will? Or would you need to slowly introduce your body to it?

I have celiacs. Since I rid my home of anything gluten, my husband would only eat gluten out of the house. One day he had Sun Chips on an empty stomach and before he finished the small bag he felt nauseous. This continued with flu like symptoms and every other GI symptom for the next 3 days. The following 2 weeks he said he wasn't thinking right and he seemed very irritable and sleepy. We debated a bug but no one else got sick. Needless to say, he is convinced that he has gluten issues also and hasn't touched the stuff since.

This all happened after I put my children on a strict gluten free diet for 4 weeks and I did a gluten test on them for a week. Within an hour of having gluten one daughter(8yo) came in crying uncontrollably, saying she didn't know why she was crying.

The week that followed I heard tummy aches, the big D, horrible gas, and behavioral changes.

Between my husband and my reactions, we decided they were best off gluten. Now all of my family, both sides, are telling me "their systems just need to get used to gluten again". When I asked them if they have a reaction to strawberries if they only eat them in season they responded with "yea if I eat too many!"

I am getting a LOT of crap from them and would appreciate any info you have one way or the other. Has anyone known someone who is fine after reintroducing gluten? Are we being over sensitive here?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Your family are wrong. If you are reacting adversely to something, that speaks for itself.

ravenwoodglass Mentor

People that don't have gluten issues have no problem with eating it only occasionally. What you have done with your family is basically a gluten challenge and your husband and children reacted. There is nothing wrong with listening to your bodies and staying away from gluten. Do be aware though that if you do need a diagnosis, for example to keep the children safe in school, that a gluten challenge will need to be done for at least 3 months before testing.

Takala Enthusiast

My guess is that you have family members who suspect they might have a gluten intolerance, but they've accepted the fantasy that everyone can expect digestive upset when eating gluten, as normal, because they think it's easier to be in denial.

Normal people can switch back and forth, at will. The rest of us can't, without consequences. Remember the majority are still undiagnosed.

ilikepie Apprentice

It sounds like your extended family is being insensitive. It also sounds very clear that your immediate family are all having reactions.

chrissyinnj Apprentice

Since I rid my home of anything gluten, my husband would only eat gluten out of the house.

However, if you husband was still eating gluten, why would he react to it?

thegirlsmom Apprentice

However, if you husband was still eating gluten, why would he react to it?

Thanks for all your responses.

Why would he react?? I don't know. We have tried to figure this out many times. The only thing we could think is that it was because it was on an empty stomach. His diet before was very low gluten comprising of maybe 1 taco bell burrito a couple times a week. Everything else was gluten-free. Eventually I am sure he will test this gluten theory but he is scared to right now. His bowels are still not regular from the incident that happened Sept 24.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Familytradition Rookie

I can relate to the family thinking it is no big deal. :( Like a previous poster said, it is SO much easier for some people to be in denial than it is to recognize an issue and take action like you have. Stick to your guns! It is tough going 'against the grain'!

carecare Enthusiast

I agree with everyone. I say the same thing....and tell family who say you just need time for your body to readjust to eating gluten again. I tell them what other food do they have to "readjust" to being able to eat.

Interesting enough...a few years ago my husband went on a gluten free diet for 2-3 months. I was cooking all dinners gluten free but during the day was eating pretty normal for myself. However, I started having more GI symptoms at this same time. It almost seemed like I was starting to react to gluten...but yet I was still having it daily...just much less of it and weekends even less because every meal would be pretty much gluten free. For the rest of that year I was bothered like never before with D. Went to the dr who said I had IBS. Fastforward to now. My husband went back on a gluten free diet and is now healthier than ever. I know myself I have issues with gluten...and when I'm gluten free for an extended time period when I do ingest gluten I feel horrible. My husband never got tested but I am going in December for a biopsy...along with 3 of my 4 kids. Actually should be all 4...but we'll wait on the 4th. All 4 have health issues that could be related to gluten.

T.H. Community Regular

Has anyone known someone who is fine after reintroducing gluten? Are we being over sensitive here?

AVR1962 Collaborator

I've heard this too. I have heard some people say that they took their child off glutens for 2 years and once the yeast was out of their system they were able to return to gluten without issues. Hum? Really? Maybe it does work for some people but I tend to think not. I have 2 daughters and 4 grandchildren who do not eat gluten at all, not because they were diagnosed with celiac, because they were having digestive issues related to gluten. Quite honestly, I think more of my family would have less health issues if they would go off gluten. Dr Oz says that something 88% of people cannot tolerate gluten yet people live on the stuff. How much damage it does to each person is questionable. However, if you start reading on what all gluten intolerance is connected to, it is very scary that wheat was ever allowed into the human diet. I beleive it is making us all sick.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,251
    • Most Online (within 30 mins)
      7,748

    Kathlane
    Newest Member
    Kathlane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.