Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dh React Only To Topical Gluten Or Ingested Gluten As Well?

livelifelarge24

By livelifelarge24
in Dermatitis Herpetiformis

Recommended Posts

livelifelarge24 Enthusiast
livelifelarge24
Posted

I have been gluten free for five months and have never felt better. However I have a DH outbreak on both sides of my neck that I have not been able to get rid of. I realizes my hairspray had gluten in it so I replaced that. As far as I know I am using absolutely no gluten products except eyeshadow. Does te rash only flare upfrom topical glutting or does accidental ingestion cause it? I think this flared up about the time I last accidentally got glutened. Or will it just take longer for my skin to heal? I'm sorry I feel like I don't understand a lot about the skin part of my condition.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Have you tried avoiding iodine? Many of us with DH cannot control outbreaks without eliminating iodine as much as possible. Iodine can be found in iodized salt, some dairy products (especially soft cheeses), seafood, salty foods like french fries and chips and nuts, and asparagus. It appears to take BOTH gluten and iodine together to cause a flare-up of DH. Many of us have discovered that if we eliminate iodine, our flare-ups are less severe when we're accidentally glutened. After you've been gluten free for a while, you might not break out anymore regardless of eating something with iodine in it. Because you need iodine (small amounts), you'll need to ultimately add it back into your diet.

psawyer Proficient
psawyer
Posted

DH is definitely related to ingestion of gluten. Whether it is related to topical contact is a subject for debate.

Iodine is a factor in the management of DH. While it will not, of itself, trigger the reaction, it is understood that the reaction will be more severe in the presence of iodine.

Dietary sources of iodine include commercially prepared iodized salt, and ocean products including both fish and seaweed (eg. kelp).

pricklypear1971 Community Regular
pricklypear1971
Posted

Google "thyca" for a list of high-iodone goods to avoid.

If you have enough iga in your skin, if it meets enough iodone...you'll probably get a rash.

Just because it's topical, doesn't mean it doesn't hit a mucus membrane and get in.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

Thank you so much! I did not know about the iodine. Ive always considered myself lucky that I only had one unbearable severe skin reaction back before I knew I had celiac. This is gettig really annoying though.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

This seems a little overwhelming now, all of the iodine foods to avoid on top of gluten :/ I really try not to get discouraged but it seems like it just got really hard again!

pricklypear1971 Community Regular
pricklypear1971
Posted

The dairy (if you aren't already) is tough.

Carageenan is a pain, but as long as you're off dairy it's doable. Don't try to find a milk substitute. All of them have sea salt and/or carageenan except one hemp milk...and btw it was gross. I used a few pads of butter in egg whites and was fine.

Egg whites are fine to sub for eggs (but I am sooo tired of them now - just reintroduced whole eggs and am soooooo happy).

Potatoes got me in the beginning, even without skins.

I stuck to nuts, nut butters with honey for quick snacks. And I ate my weight in Junior Mints. They are dairy and gluten-free and egg free so if you can tolerate them (no other issues), LOAD UP. I also ate Ghiradelli chocolate chips and Talenti raspberry sorbet like mad. You need a crutch....

I did hard core low iodone for 2 weeks (after gluten-free for 2 months) and that worked to clear it up. Since you've been gluten-free a while you may be as lucky as I was. Also, toss out iodine containing skin care. That was painful and expensive - lots of seaweed and carageenan there.

I am now (after 2 months) eating a mostly normal (except gluten) diet. I eat seafood in moderation, eggs, potatoes, dairy. No sea salt or iodized salt yet. No sushi fest. Just go slow reintroducing.....

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted

Google "thyca" for a list of high-iodone goods to avoid.

If you have enough iga in your skin, if it meets enough iodone...you'll probably get a rash.

Just because it's topical, doesn't mean it doesn't hit a mucus membrane and get in.

especially around something so sensitive as the eyes. I suggest you try Afterglow or some other gluten-free eyeshadow

ravenwoodglass Mentor
ravenwoodglass
Posted

This seems a little overwhelming now, all of the iodine foods to avoid on top of gluten :/ I really try not to get discouraged but it seems like it just got really hard again!

Try just avoiding iodized salt, iodine in vitamins and seafood that is high in iodine first. That was all it took for me and my DH was quite severe.

After you have been gluten free and DH outbreak free then do try adding iodine back in as it is an important nutrient.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      43

      My journey is it gluten or fiber?

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    2. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @Charlie1946, Sorry I sidetracked your thread a bit. Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over. Have you been checked for SIBO? There's a significant link between length of Omeprazole use and SIBO. I had SIBO, thrush (Candida...
    3. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    4. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748
    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.