Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Silly


jmrogers31

Recommended Posts

jmrogers31 Contributor

I had a work lunch yesterday and I looked up the restaurant online and they said they had gluten free pizza, so I felt okay about going. I went and ordered my pizza and when it was delivered I took about 2 bites and stopped. It tasted a lot different then the other gluten free pizzas I have had in the past so I got a little paranoid. I looked at the crust closely to look for flour. I smelled the crust (keep in mind I am trying to do this with no one noticing because I don't want to bring attention to this). The more I thought about it the more I was convinced this wasn't right. Finally I finished my drink and went up to refill it and stopped to talk to the chef. I asked him if he could confirm that they used the right crust and he said that I was the only gluten free order of the day and he changed gloves and washed his hands. He was sure not to get near the flour and could tell me that it was for sure gluten free. So, I apologized, thanked him, and told him is was very good. I went back to my table and was a little embarrassed I let myself become so paranoid. No reaction to the food, so it must have been fine. I still don't really trust restaurants 100% obviously. Please someone tell me that they have psyched themselves out of eating a perfectly fine food before so I don't feel like a paranoid drama king.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

YES. The other night I was in a night class and it was someone's birthday. Seeing as none of us have had birthday classes since grade school, someone made a cake for her and brought it in. She said it was gluten-free because she knew of two of us in the class who couldn't have gluten and decided to buy a gluten-free mix.

I took one bite of that thing and SWORE she had lied to me. It was the best gluten-free cake I'd ever had. I ate it, but very nervously, and asked her after class what mix it was. She said it was the Betty Crocker gluten-free one and I complimented her, laughing about how nervous I had been because it was good. I've heard questionable things about that mix, but I've fairly sensitive and I never got sick after eating that cake.

rainer83 Newbie

When Boston Pizza came out with their gluten free pizza, and I had some, I had a hard time believing it was gluten free cause of the texture. Same reason, cause I've had gluten free pizza before and it didn't taste like that.

There's also a gluten free bakery that sells the best gluten-free muffins, cookies, cakes, breads, everything you can think of, and I had tried a free sample and flat out said... "this isn't gluten free, there's no way, this tastes even better than regular muffins... no way" and they brought out the ingredients and I felt like a dummy lol.

AVR1962 Collaborator

YAY! A great success story!

tictax707 Apprentice

hah. Yup. Totally done that before at a restaurant. In a round about way it's a real compliment that we can't believe it's gluten free. ;)

pricklypear1971 Community Regular

I ate at JBar (Tucson) the other night....had the fish tacos and they were divine. In the middle of it, I started wondering....did the risotto have something in it? It was so good! Jicama salad was straight-forward ...the combo was wonderful.

THEN the dessert....by luck the Janos dessert menu (sister restaurant next door) had a tasting selection AND THEY WERE ALL gluten-free. So, I ate it. I wondered when I was going to get sick...but nothing. Felt fine the next day.

DerpTyler Newbie

my mom always loves it when i dont believe her cookies are actually gluten free :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

I've eaten (successfully) the pizza at Boston Pizza - yum ! And to have a choice of toppings, yum !

I could not however eat gluten free cake someone had made at home brought in. A friend of my daughters made gluten-free cookies and I stopped at a couple of bites with mild stomach cramps... I blame the cookie sheets ! It would be the same for cake - the gluteny baking pan. While it's not a huge reaction, it was enough. When in doubt, refuse it!

BTW, Babycakes in New York has excellent goodies - taste like the real thing.

Strawberry-Jam Enthusiast

I did this recently when I had a slice of gluten-free bread with soup at a local restaurant. It tasted soooo good, and the texture was great. Probably because the main ingredient was butter... >_<; (this was before I had to give up casein)

I did a double-take. but the menu clearly said "brown soda bread OR gluten free bread" and what I had was white as rice and shaped strange on top, as if it didn't rise at all but baked just how it was poured into the pan, so I knew it had to be ok.

sandsurfgirl Collaborator

I don't eat things like gluten free pizza and baked goods out because it causes me more stress than enjoyment. So I get how you were feeling! Getting glutened sucks.

Actually I went to Outback last year on my birthday. I ordered the gluten free dessert. The waiter assured me it was gluten free, even said he triple checked. It tasted so amazing I couldn't believe it was gluten free. Then I remembered that the gluten free menu had said brownie and this was cake. When I ordered I just said bring me the gluten free dessert because there was only one on the menu. I couldn't remember exactly what it was.

Well... it WAS the regular chocolate cake and it was not gluten free. I spent 45 minutes in the bathroom throwing up and was sick for Christmas because my birthday is close to it. So it's not being paranoid. Not at all.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748

    Gabs
    Newest Member
    Gabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.