Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grains, Legumes, Nuts, And Seeds


RiceGuy

Recommended Posts

RiceGuy Collaborator

Hi everyone. I have a few questions for those who avoid grains, legumes, nuts, and seeds. Especially if you have noticeable symptoms if you ingest some, even a trace.

For those who cannot eat (or just avoid) legumes, does this include: coffee, cocoa, chocolate, carob, mesquite, guar gum, green peas, and green beans? Does it also include soybean oil?

For those who cannot eat (or just avoid) nuts, does this include: almond, Open Original Shared Link, and coconut? Does it also include the oils from nuts, such as walnut oil, macadamia nut oil, peanut oil, and coconut oil?

For those who cannot eat (or just avoid) seeds, does this include: black pepper, celery seed, caraway, cumin, fennel, mustard, and all other spices derived from seeds? Does it also include oils from seeds, such as sesame, safflower, sunflower, etc?

For those who cannot eat (or just avoid) grains, does this include: amaranth, buckwheat, and quinoa, as these are not "true" grains like wheat, rice, corn, sorghum, and so forth. Do you find it necessary to use corn-free xanthan gum (the microbes which produce it are typically fed corn, though not always). Also, sugar cane is in the grass family, which is where the "true" grains come from. So if you must avoid all grains, do you also have to avoid regular cane sugar?

Now for perhaps the trickiest one of all: Vanilla. Real vanilla comes from a bean-like pod which grows from an orchid (from what I've read, it is the only orchid known to produce something edible). Inside the vanilla "bean" there are some 60,000 teeny tiny seeds. So is vanilla from a bean, a seed, a flower, a vine, or something else? Does anyone find it necessary to avoid vanilla?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Rice Guy: I am one who avoids some of all of these. Since I suspect that lectins are responsible for my avoidance my reactions may be different from others.

Legumes: - Consume decaf coffee about once a week in a cappuchino; cocoa, chocolate, guar gum. Avoid green peas and beans, soy bean oil, carob

Nuts - Consume almond, cashew and coconut. Avoid peanuts and the oil

Seeds - Consume them all but not in huge amounts. Chia and sesame in muesli, e.g. Avoid safflower and sunflower oil as much as possible on advice of a nutritionist

Grains - Consume most grains, including xanthum gum and cane sugar. Avoid Amaranth, quinoa

Vanilla - Momma, don't take my vanilla beans away :rolleyes: - I don't care what it is except yum!

missy'smom Collaborator

Lots of good questions. The foods that I avoid are all based on allergy skin testing and elimination/challenge of the foods. I included my comments in bold in the quote of your post below.

Hi everyone. I have a few questions for those who avoid grains, legumes, nuts, and seeds. Especially if you have noticeable symptoms if you ingest some, even a trace.

For those who cannot eat (or just avoid) legumes, does this include: coffee, cocoa, chocolate, carob, mesquite, guar gum, green peas, and green beans? Does it also include soybean oil? I tested pos. for legumes.

I avoided all "beans" but no green beans and chocolate and green peas and soy as these were all separate tests. Of those others, the only one I tested pos. to was soy. Back to the beans. After avoiding for 2 years I recently re-introduced chickpeas with no problems. I have those on a 4 day rotation to avoid repeat problems, which has happend in the past with other foods. I plan to try some other variety of beans in the future. Don't happen to drink coffee or eat carob. I became allergic to chocolate a while back so will be avoiding for a good long while. After 2 years avoidance I have not tried re-introducing soy in any form. Don't know if I will. Soy is a cross-reactor to latex and I am quite latex allergic. Allergist said "be careful" with soy. Tried a bit of oil a couple days in a row and got some odd patches show up on my skin so I am avoiding oil as well.

For those who cannot eat (or just avoid) nuts, does this include: almond, Open Original Shared Link, and coconut? Does it also include the oils from nuts, such as walnut oil, macadamia nut oil, peanut oil, and coconut oil?

I was doing fine with nuts and initially not pos. but started a low-carb diet and started eating more and became allergic to almonds(almond meal baking;))I did have problems earlier on with cashews and tested pos. on repeat testing. So far so good with coconut but occasionally I wonder, however I don't eat it often so am ok. The nut oils...I don't try them. Don't know. My son is mildly peanut allergic and I tested pos. for peanuts on my initial tests so as a family we avoid the oil. With almonds I tried re-introducing after a long avoidance and seemed to be ok with occasional consumption but it turned on me suddenly and I ended up with lung function issues and burning tongue, stomach etc. So no almond oil and almonds are out for good. I may consider trying pecans and walnuts again but with the almond problems I am avoiding all nuts and oils for now.

For those who cannot eat (or just avoid) seeds, does this include: black pepper, celery seed, caraway, cumin, fennel, mustard, and all other spices derived from seeds? Does it also include oils from seeds, such as sesame, safflower, sunflower, etc?

I had not thought of the seeds as including all those. Interesting. Black pepper test was pos. Haven't noticed problems just trying not to use it everyday. Cumin was also pos. Haven't tried re-introducing yet. Mustard was pos. and gave me problems with re-introduction the first time so I haven't tried again after another long avoidance. It's also listed as a latex cross-reactor and I was still showing pos. on the 2nd round of tests even after 1 year avoidance. Just recently ditched sunflower-even the oil and feel much better and symptoms cleared up so it clearly was bothering me.

For those who cannot eat (or just avoid) grains, does this include: amaranth, buckwheat, and quinoa, as these are not "true" grains like wheat, rice, corn, sorghum, and so forth. Do you find it necessary to use corn-free xanthan gum (the microbes which produce it are typically fed corn, though not always). Also, sugar cane is in the grass family, which is where the "true" grains come from. So if you must avoid all grains, do you also have to avoid regular cane sugar?

Buckwheat is a problem for me, again it's a latex-cross-reactor. Some of these things I am not yet sure if they bother me because of the latex or some other reason. A few more years may clarify that.

Now for perhaps the trickiest one of all: Vanilla. Real vanilla comes from a bean-like pod which grows from an orchid (from what I've read, it is the only orchid known to produce something edible). Inside the vanilla "bean" there are some 60,000 teeny tiny seeds. So is vanilla from a bean, a seed, a flower, a vine, or something else? Does anyone find it necessary to avoid vanilla?

Marilyn R Community Regular

Hi Riceguy,

I can tolerate most of the foods you mentioned in your posts if I don't overindulge. (For instance, I'll have a tablespoon of nuts for a snack every other day, or sunflower seeds on a salad a couple of times a trace amount of soy lecithen. Anything else with soy (like vegetable oil, mayo, tuna fish, most processed foods, even gluten-free processed foods, alternative milks, etc.) are out.

Coconut isn't in the nut family. It's in the palm family. I've never had a problem with coconut milk or oil. (I used to hate that dried coconut in a plastic bag when I was a child, and still despise it.) So rest easy about coconut products. I like the coconut aminos as an alternative to soy sauce (health food store find).

I think the vanilla is ok if you're getting pure, fermented vanilla, but that's just armchair advice.

missy'smom Collaborator

I'll add the when I ditched sunflower recently I also ditched stevia(Truvia). It had been bothing me for while but I couldn't figure out why until I googled it and it is in the sunflower family. Mystery solved.

RiceGuy Collaborator

I'll add the when I ditched sunflower recently I also ditched stevia(Truvia). It had been bothing me for while but I couldn't figure out why until I googled it and it is in the sunflower family. Mystery solved.

Interesting, that even with such purity, whatever component(s) bothers you is still detectable by the body. However, I will point out that Truvia has other questionable ingredients. It contains erythritol, a sugar-alcohol derived from corn. It also has "natural flavors", which of course says nothing about from what they are derived.

But if it was the Stevia extract itself which you reacted to because it is in the chrysanthemum family, then I wonder if you also cannot eat lettuce, globe artichoke, Jerusalem artichoke, shungiku (edible chrysanthemum), endive, escarole, chicory, cardoon, scorzonera, or salsify. Then there is ragweed, which is also in the same family.

Incidentally, have you ever tried Simply-Stevia made by Stevita? It has the highest purity of any Stevia extract I know of, and has no other ingredients whatsoever. It's also made in Brazil, not China like all other brands I've been able to verify.

I find it fascinating and amazing, how the immune system can detect the presence of such minuscule levels of things. Although it can also be very frustrating too!

missy'smom Collaborator

Riceguy,

I don't have problems with the other things you mention, as far as I know and with which things of those that I consume but the ones I do are not all that often. I put the sunflower puzzle together after ditching 3 things that bothered me. They were ditched one at a time over a period of time, without knowing why, other than they bothered me. The latest being a salad dressing with sunflower oil. The one before that was Earthbalance soy-free which has sunflower lecitin and the first was Truvia. I haven't tried the pure form of stevia. That salad dressing had me looking back at the others and realizing that there was a connection and it was sunflower. I would not have thought I was sensitive on that level.

I have lost more than one member of a food family before but not always. For exemple I am now allergic to broccoli, brussel sprouts and califlower but am still ok with cabbage. However those first 3 were staples of my diet for a long time and I consumed them more often and in greater quantity than cabbage. As a bit of insureance against losing cabbage, it is now on a 4 day rotation. Not more than once in 4 days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I avoid all those things unless I grow them myself or source them very carefully. I am super sensitive to cc. I don't have food allergies to any of them that I know of.

RiceGuy Collaborator

Riceguy,

I don't have problems with the other things you mention, as far as I know and with which things of those that I consume but the ones I do are not all that often. I put the sunflower puzzle together after ditching 3 things that bothered me. They were ditched one at a time over a period of time, without knowing why, other than they bothered me. The latest being a salad dressing with sunflower oil. The one before that was Earthbalance soy-free which has sunflower lecitin and the first was Truvia. I haven't tried the pure form of stevia. That salad dressing had me looking back at the others and realizing that there was a connection and it was sunflower. I would not have thought I was sensitive on that level.

I have lost more than one member of a food family before but not always. For exemple I am now allergic to broccoli, brussel sprouts and califlower but am still ok with cabbage. However those first 3 were staples of my diet for a long time and I consumed them more often and in greater quantity than cabbage. As a bit of insureance against losing cabbage, it is now on a 4 day rotation. Not more than once in 4 days.

Sounds like the common culprit is sunflower specifically, not the other members of that same botanical family. So if it were me, I'd be thinking that the Truvia's "natural flavors" more likely contains something specifically from sunflower. Though companies are usually very secretive about stuff like that, I suppose they should at least tell you yes or no to a sunflower-derived ingredient. Or, if the symptoms aren't too uncomfortable, I'd try the pure Stevia extract and confirm it that way.

I'm reminded of when I found I was reacting to celery seed. After researching it, I found that there are in fact two different plants used for the spice. One is the common vegetable, which is the source of the whole celery seed. The other is apparently a plant actually named "Celery Seed", because it tastes like it, and the leaves are used to make ground celery seed. I can eat the seeds from true celery, but not the other one.

T.H. Community Regular

For those who cannot eat (or just avoid) legumes, does this include: coffee, cocoa, chocolate, carob, mesquite, guar gum, green peas, and green beans? Does it also include soybean oil?

I test positive on allergy tests to navy/white beans and soy, and have reacted with a mild allergic reaction to carob beans, guar gum, green peas, and green beans, yes. Soybean oil has been a problem, although the reaction was very mild. I don't react to mesquite beans (and a couple other regular legumes), but do react to another legume often found in the same part of the country as mesquite: palo verde beans. Also, sennakot is a legume based laxative that I react to, as well.

Coffee beans and cocoa beans are actually not legumes, although funnily enough, I'm allergic to coffee, too. :D

For those who cannot eat (or just avoid) grains, does this include: amaranth, buckwheat, and quinoa, as these are not "true" grains like wheat, rice, corn, sorghum, and so forth. Do you find it necessary to use corn-free xanthan gum (the microbes which produce it are typically fed corn, though not always). Also, sugar cane is in the grass family, which is where the "true" grains come from. So if you must avoid all grains, do you also have to avoid regular cane sugar?

RiceGuy Collaborator

I test positive on allergy tests to navy/white beans and soy, and have reacted with a mild allergic reaction to carob beans, guar gum, green peas, and green beans, yes. Soybean oil has been a problem, although the reaction was very mild. I don't react to mesquite beans (and a couple other regular legumes), but do react to another legume often found in the same part of the country as mesquite: palo verde beans. Also, sennakot is a legume based laxative that I react to, as well.

Coffee beans and cocoa beans are actually not legumes, although funnily enough, I'm allergic to coffee, too. :D

I react very badly to low level gluten cc and always get a gluten cc reaction to all grains and pseudo grains I've tried, I'm assuming due to processing. It's a strong enough reaction that it's been hard to tell if I react allergically, too. I am mildly allergic to wheat, I am oat sensitive, and I am definitely allergic to sugar cane - the latter gives me an unpleasant enough reaction it's very obvious when I get some.

I've been trying to grow my own grains and near-grains to test out if I react to low level gluten cc AND the grains themselves, and so far amaranth and quinoa seem to be completely fine, if I grow them myself. My corn crop bit the dust, so I have to try that again next year. I haven't tried bamboo, yet, but that's in the grass family as well so I've wondered if it might be an issue.

I do react to xanthan gum (I also have trouble with citric acid, lactic acid, and dextrose from corn). I have looked for corn-free xanthan gum, but haven't found any yet. I have found xanthan gum that claimed to be corn free, but after research, it turns out that it was still fed with corn, just processed to a point that they considered it to be 'corn free.' If you have ever found an actual corn-free xanthan gum, I'd really love to hear about it! Been looking!

Very interesting. If you're looking for a truly gluten-free buckwheat flour, the only one I know of is from Open Original Shared Link. Buckwheat is the only thing they grow, and the only thing they mill. It's the only one I've not had any trouble with. As for corn-free xanthan, that's a tough one. Corn is such a cheap grain, in part because the US typically has a huge surplus of it. I haven't done much searching for xanthan, so I don't know if a corn-free one is actually available. Some sites list the one from Authentic Foods as corn-free, but it doesn't make that claim on the label from what I can tell. The first company which comes to mind is Open Original Shared Link. I haven't checked to see if they sell xanthan directly, but if not, they might be able to tell you where to obtain it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      how much gluten do I need to eat before blood tests?

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      how much gluten do I need to eat before blood tests?

    3. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      how much gluten do I need to eat before blood tests?

    4. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    5. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,255
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.