Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story Of Gluten Poisoning...

Robert M.

Recommended Posts

Robert M. Newbie
Robert M.
Posted

Hello, my name is Robert. I'm new to this forum and to the gluten-free lifestyle. With your patience and understanding I'd like to offer my story of how I've arrived here today.

My problems started about a year ago, I started experiencing stomach pain and a rumbly stomach. At the time I figured it was just stress playing havoc with my tummy, like many folks, times have been tough for our family financially. I saw my doctor who immediately put me on Trazadone for stress, but, my symptoms only got worse. I developed horrible acid reflux and was taking prilosec like no tommorow, but the more I injested to help fix the problems the more my body rebelled. My agony came to a head about one month ago, the pain in my gut was almost unbearable, I developed horrible bowel movement patterns, I could barely make it to the restroom after meals on many occasions (sorry if that is too much info.)My joints ached, my fingers and hands would often have a tingling feeling,I had frequent headaches, my world was crumbling around me. Then, just about two weeks ago I began to notice "the fog". My brain felt like it had short- circuited, I was wondering through my life in a daze. I felt like I was detached, like I was looking at life through someone else's eyes. Well, that did it for me, panic set in deep, which only compounded the problem. I nearly had my wife take me to the emergency room one night after a severe attack of anxiety.

I had to do something, nothing that conventional medicine was offering was helping, in fact, it made things worse. I started fitting all the pieces together, I recalled that just before I started having many of these symptoms I had been on a low carb diet. I was amazed at how good I felt not eating bread, but, I didnt put 2 and 2 together at the time.I searched the web for clues and eventually began my gluten free journey.

And now I'm glad to say Ive been gluten free for 12 days and nearly all my symptoms have dissappeared, still have some minor reflux from time to time. I know my body needs more time to heal but if this is the best I get I can easily live with that.

I just wanted to share my story and would welcome comments from those who may have had similiar experiences.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Di2011 Enthusiast
Di2011
Posted

Hi Robert,

Welcome to the forum.

I'm sure many of us (me certainly) will be curious to know your age (sorry.. personal question but not nearly as bad as our digestive openness :lol:) , any change of diet/circumstances etc.

For example: I found that when I was short of money gluten seemed to fill the "gap"

2 weeks is a very quick "recovery" so be sure to stick with what is working for you. Try to avoid mistakes (or tempations) like I have NOT the past 4 months. They have set me back to the point where it is only the past month that has seen real (mostly mistake and definitely temptation-free) progress.

Di

AVR1962 Collaborator
AVR1962
Posted

Welcome Robert! Sounds like you found your answer and I wish you all the best in figuring out the diet and what works for you, we're all a little different in our own needs here and at the same time a great deal of wealth of info among us. If you have not had a vit and mineral bloodwork test, I would request that. It is very common for us to be deficient in certain areas which will cause many of our symptoms. I have been gluten-free for nearly 7 months, did have an ER trip back in Feb that set me on my journey, and doing so so much better. Progress is not over night but it is amazing how you will continue to get better as long as you stay away from the gluten.

Annette

Robert M. Newbie
Robert M.
Posted
  • Author

Hi Robert,

Welcome to the forum.

I'm sure many of us (me certainly) will be curious to know your age (sorry.. personal question but not nearly as bad as our digestive openness :lol:) , any change of diet/circumstances etc.

For example: I found that when I was short of money gluten seemed to fill the "gap"

2 weeks is a very quick "recovery" so be sure to stick with what is working for you. Try to avoid mistakes (or tempations) like I have NOT the past 4 months. They have set me back to the point where it is only the past month that has seen real (mostly mistake and definitely temptation-free) progress.

Di

Hi there, Thanks for your reply. I am a very active 44 year old. Ive been very healthy my entire life (he says knocking on wood). And yes, 2 weeks is a short time but, I really dont consider myself "recovered" just yet. I realize that many people can have very fast relief from many of their symptoms, but, I also fully understand that the healing process could take many months. As far as "set backs", the only issue I've had is when my GI doctor told me that I needed to go back to eating gluten products so he could get the most accurate blood test results and for an endoscopy biopsy. The night after that appointment, I went home and had some pasta and bread for dinner. I got so sick that I had to miss work the next day. So, needless to say I immediately went back to being gluten free and have been fine since. I told the doctor that was all the clinical evidence I needed to confirm my Gluten intolerance. Now, I am able to stay on the diet quite easily because I know how horrible I will feel if I dont. Best of health to you.

Di2011 Enthusiast
Di2011
Posted

Hi there, Thanks for your reply. I am a very active 44 year old. Ive been very healthy my entire life (he says knocking on wood). And yes, 2 weeks is a short time but, I really dont consider myself "recovered" just yet. I realize that many people can have very fast relief from many of their symptoms, but, I also fully understand that the healing process could take many months. As far as "set backs", the only issue I've had is when my GI doctor told me that I needed to go back to eating gluten products so he could get the most accurate blood test results and for an endoscopy biopsy. The night after that appointment, I went home and had some pasta and bread for dinner. I got so sick that I had to miss work the next day. So, needless to say I immediately went back to being gluten free and have been fine since. I told the doctor that was all the clinical evidence I needed to confirm my Gluten intolerance. Now, I am able to stay on the diet quite easily because I know how horrible I will feel if I dont. Best of health to you.

Good on you! Keep well and active!!

AVR1962 Collaborator
AVR1962
Posted

Best thing you could have done for yourself. Many of us have had to do the same. I made it to day 12 after being off and just was too sick to continue. Tests are not accurate in the first place and by continuing on the gluten you are only causing yourself more damage than good. I hope you continue to feel better!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,597
    • Most Online (within 30 mins)
      7,748
    JosiePosey
    Newest Member
    JosiePosey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.