Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Gluten Withdrawal


Jatsa

Recommended Posts

Jatsa Newbie

Hello,

I am one of those, who have been suffering from quite vague symptoms (brain fog, fatigue, general weakness, dysphoria, blurred vision, dullness, etc.) since the age of 11 or 12 (now 25). I've decided to give a try to gluten-free diet and I have to say my symptoms are even worse than before (this is the day 3 of my trial) + headaches, irritability etc. Is it possible I am experiencing something like "fasting blues" (because to me, gluten-free trial is mainly about fasting) or is this the classic example of gluten withdrawal?

Is gluten withdrawal experienced only among people being intolerant to gluten or is it a common experience among many others, who've decided (from whatever reason) to stop eating gluten containing food?

Thank you for your replies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Uhm, you're not supposed to be "fasting," you're supposed to be eating other things.

My reaction to fasting is that I get very clear headed, as long as I don't give up caffeine completely.

Tom2 Rookie

Hi Jatsa, Judging from your symptoms I would say welcome to the family. To answer your question, I would have to say that everyones reaction are different to gluten. I was self diagnosed last November with most of the same symptoms as yourself. My whole famiy has Celiac but only my Mother, youngest brother and myself are gluten free. My family are all different in our symptoms and illness and for myself, I saw relief from most of the symptoms in a few days but then got worse.

I am still learning about cross contamination here on these priceless posts and encourage you to continue with your gluten free lifestyle while you read all the different post here. There are many VERY Knowledgeable people here who can help you recover and get better.

By the way - I agree, this is not a fast, learn what you can eat and don't deprive your body of it's much undernourished vitamins and minerals or you will get worse.

Welcome and good luck in your new quest!!!

rainer83 Newbie

Your body needs time to adjust to the changes, just like anything. But don't fast, eat gluten free. You're not supposed to be fasting, especially if your body is in the process of healing. If you find that on a non-fasting gluten free diet, after 8 weeks or so that nothing gets better, then you might need to look at something else that's causing these problems. It took me 6-8 weeks on a strict gluten free diet before I actually started to feel 100% again and I've been gluten free ever since. If gluten is the case, you've done a lot of damage to your intestines, and that needs time to heal. Best of luck to you, it's not an easy transition.

Celtic Queen Explorer

For me it is like a withdrawal. I start craving gluten. I get very irritable and tired. Hang in there. Like everyone else said, it takes time to heal. Give your body a chance to recover. It will be worth it in the long run when you're clear headed and full of energy.

kitgordon Explorer

Fasting will certainly give you headaches, irritability, dizziness and other symptoms. For goodness sake, eat! Your body needs nourishment to heal if you are celiac, and to function even if you aren't. There are LOTS of foods out there that don't contain gluten! Meat, fruits, vegetables, dairy if you tolerate it, rice, potatoes, Rice Chex, Corn Chex, Fritos, Potato chips, yogurt, ice cream, nuts, chocolate, and if you must - gluten-free breads, bagels, cookies, etc. Just read labels on processed foods to be sure they are safe.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...