Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Determined To Try Gluten Relief


alicewa

Recommended Posts

GFinDC Veteran

BG Before Grain here too. And Muffin the cat head stopped throwing up when she went gluten-free. She really likes here gluten filled cat treats and doesn't even eat the gluten-free cat treats. But when I give her the gluten treats she gets sick every time. So she no get those anymore.

@ALicewa,

Hi Alice,

The thing to understand about celiac is it is an autoimmune condition. Your body isn't dumb and it will automatically start cranking out antibodies when you eat gluten. Think what would happen if it didn't. If our immune systems took their bloody time getting busy we would all die of infectious disease in no time flat. So even if you had a pill that digested gluten, it would be too late, because your body reacts to the gluten real quick. Celiac's not the same as lactose intolerance which is not autoimmune. You can take lactaid enzyme pills for lactose intolerance and it helps. But there is no immune reaction in lactose intolerance so not a big problem. it doesn't matter if it takes a couple hours for the lactase pills to digest the gluten. That is a major difference between celiac and treatments with pills and other non-autoimmune conditions.

You know how people get sick once and then they are immune to that disease right? That's because their immune systems have adapted to fight that disease and they don't forget. That's really helpful as we don't have thousands of people dying all around us with polio and measles and etc, etc everyday.

Thanks for the blog link about cheating on the gluten-free diet. That is a nicely written article there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alicewa Contributor

Perhaps the autoimmunity is caused by this though?

kareng Grand Master

Perhaps the autoimmunity is caused by this though?

Once again.... Who is writing this? Are they a Celiac researcher from one of the Celiac Centers? A random guy on the internet who writes well? Are they selling something?

I don't have the patience to search the website to try to see if they have any valid credentials. I would think If its Columbia or Mayo, that would be listed & easy to find.

The writing (grammer) isn't what one would expect from a serious medical article or website. I would be leery of anything written there.

IrishHeart Veteran

Perhaps the autoimmunity is caused by this though?

Really?.....Are you kidding me? :blink:

They state on the site:

"CureZone started as a personal homepage in Norway."

Does this sound like someone who can give you solid medical advice? :blink:

Geesh, hun....it's time to give it up. :rolleyes:

You're just wasting your time searching for a "cure" on the internet.

And you would be very ill-advised to do a "bowel cleanse"--as Ravenwoodglass already told you on the other thread.

IF THERE WAS A CURE, WE'D KNOW ABOUT IT!!!!!!!!!!!

We have given you our best and honest advice. But you keep ignoring it.

Why do you keep posting about these "scam cures"?????

In my humble opinion, it would serve you best--and give you peace of mind-- if you would spend your time learning about celiac disease and how to cope and live with it.

alicewa Contributor

Ok, I'm getting the idea. That's why I'm asking you. I had no intention of getting the product from CureZone, I was just interested in what caused this problem in case I someday have kids. I know there's not a whole lot that can be done or prevented. Should stop living with regret. :unsure:

IrishHeart Veteran

Alice,

Read about celiac disease from a REPUTABLE SITE. From the nature of your queries, it is obvious you have no real understanding of it.

Knowledge is power. And with that knowledge, acceptance will come. Be healthy and be happy!

Open Original Shared Link

Best wishes,

IH

jswog Contributor

We use Merrick's BG--Before Grain.

A 100% RAW natural diet is the way to go!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

A 100% RAW natural diet is the way to go!

What are you feeding your cat? Raw chicken? Got a funny image of you letting some mice loose in the laundry room and putting the cat in. :D

jswog Contributor

What are you feeding your cat? Raw chicken? Got a funny image of you letting some mice loose in the laundry room and putting the cat in. :D

I don't have a cat, but I did raise a couple of generations of winning show dogs on a raw diet. The lady I bought much of hard to find foods from had several cats whom she fed a fully raw natural diet. She died of pancreatic cancer a few years back, but I believe her husband kept the business going. If you google 'My Pet Carnivore' you will see many articles she wrote about feeding her cats and dog raw.

Jen

  • 4 months later...
alicewa Contributor

I've ordered Gluten Relief! After hearing from 2 others who tried and said they did really well with it I couldn't resist. I took the first 6 today. I also got another thyroid product with it for Vitamin B12 absorption, so I'll let you know of my results. :)

If I were to run tests afterward which would you recommend?

Skylark Collaborator

Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect.

You've got to get over this denial before you give yourself neuropathy or another autoimmune disease from eating gluten. I really think you need counseling.

kareng Grand Master

Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect.

You've got to get over this denial before you give yourself neuropathy or another autoimmune disease from eating gluten. I really think you need counseling.

Skylark - I wasn't even going to comment. Sadly, there is no point.

Skylark Collaborator

Skylark - I wasn't even going to comment. Sadly, there is no point.

I keep hoping to get through to her... :(

Kamma Explorer

Yes, Alice, listen to Skylark.

Also, really think about this:

If Gluten relief enzymes actually worked, don't you think that they would be mass marketed to all the celiacs out there just dying to conveniently eat bread, buns, cookies, cereals, trips to MacDonalds and so on?

Don't you think that if these things actually worked, the manufacturer would be trying to make millions off them by marketing them via doctors, health care centers and so on?

You have been had twice, Alice:

1. Through your money.

2. Through your trust.

There's good, decent people on here who have been around the celiac block many times over and can offer good, sound support. It would really benefit you if you gave them some credence.

IrishHeart Veteran

If I were to run tests afterward which would you recommend?

I WOULD RECOMMEND THAT maybe you should HAVE YOUR HEAD EXAMINED. :blink:

Alice, I have the patience of a saint, but you've pushed even me to the wall with your silliness. I have begged you to get counseling for this denial you are in, haven't I? Haven't we all?

There is no cure or magic pill for celiac. You cannot keep risking your life by eating gluten and expecting a miracle cure to "wash it out". How many threads have you started with this nonsense? I saw your "poll" about giving your hypothetical children gluten. What was that all about anyway?

YOU NEED COUNSELING.

YOU ARE IN SERIOUS DENIAL.

YOU HAVE A POTENTIALLY LIFE-THREATENING AUTOIMMUNE DISEASE.

Do you even read what we write back to you on all these threads you start? I think you just post this nonsense and then laugh at us all working so hard to help you.

No matter what we say, you do the opposite. Just like a little kid would do. Last time, it was you threatening to eat a cupcake and we all tried to stop you and you ate it anyway. Then, against our advice, did a "salt water cleanse" that is dangerous. <_<

Do you think this is a joke? I do not find you funny.

Honestly, I am beginning to think you are just screwing around with us --and frankly, I am wondering what your purpose here is.

GET HELP.

Bubba's Mom Enthusiast

I ditto what SkyLark and Irish Heart have said..except I would have sworn some too! I'm beginning to wonder if you're just a shill trying to sell this rediculous product? SURELY you can't be that thick headed? :blink:

I'm just not going to respond any more to this nonsense!

alicewa Contributor

I'm sorry I wasn't trying to get everyone worked up. :(

I asked my MD what his thoughts were and he said sure, but be absolutely sure that I watch my symptoms closely and if I'm having none then I should redo the celiac panel periodically. Of course, he figured the chances of something working were slim.

I just wasn't sure if you'd have any additional ones like Cyrex Labs with Arrays that should be performed.

psawyer Proficient

Alice, you have heard from so many people who care about you and want you to know the truth about celiac disease.

"Of course, he figured the chances of something working were slim." Well, actually slimmer than that. Zero, based on current scientific knowledge.

This discussion is going nowhere, and is wasting the time of everyone involved.

Good luck with your quest, Alice. If it doesn't work, we will all still be here for you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.