Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Blood Test

eborzecki

Recommended Posts

eborzecki Explorer
eborzecki
Posted

My sister was diagnosed with celiac when she was 30, I am 22 and trying to find a reason to my hair falling out. My doctor did a lot of tests and everything came out okey except this one, and I don't see him till next week. Can someone tell me if it may mean I have Celiac?

Gliadin Antiabody IGA - 56 High

Value Explanation Results

<11 Negative

11-17 Equivocal

>17 Positive

TTG IGA Antibody - 111.6 Normal

Value Explanation Results

<20.0

What can this mean?

Please help!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

My sister was diagnosed with celiac when she was 30, I am 22 and trying to find a reason to my hair falling out. My doctor did a lot of tests and everything came out okey except this one, and I don't see him till next week. Can someone tell me if it may mean I have Celiac?

Gliadin Antiabody IGA - 56 High

Value Explanation Results

<11 Negative

11-17 Equivocal

>17 Positive

TTG IGA Antibody - 111.6 Normal

Value Explanation Results

<20.0

What can this mean?

Please help!!!

It looks as if you have a VERY positive IgA gliadin antibody and TTG. Although I'm not really sure why there is "normal" after your result of 111.6 for the TTG when normal should be less than 20 according to what you posted. The TTG is pretty specific for celiac. If you want to confirm this with a biopsy then stay on a normal diet. Given that you have a sister with celiac and positive blood work a scope really may not be necessary for a diagnosis(it can have around 20% false negative). My youngest son had only a positive IgA tTG and I did not do a scope for him. He is diagnosed based on his symptoms, positive blood work, positive response to the gluten free diet, return of symptoms upon gluten reintroduction and my celiac diagnosis(confirmed blood and biopsy). In my opinion a person should not be producing those antibodies unless they have celiac (barring they don't have another autoimmune disease that could falsly elevate it, but this is not commom). It's really up to you if you want to go through with a scope/biopsy. I had one because I wasn't as educated as I am now and I wanted to rule out other things in addition looking for celiac. My oldest boy is negative on all his blood work and scope/biopsy, but I put him gluten free as a trial. He has had improvement gluten free. So even if someone is negative on testing, they can still have a gluten problem. Welcome to the forum.

domesticactivist Collaborator
domesticactivist
Posted

Roda is right on. That looks like a positive for celiac to me. You have to keep eating gluten for an endoscopy, but my doctor would diagnose without it with positive blood work.

While it can really suck to get a diagnosis that will impact your whole life, it's also great to have something that is managed without drugs!

There are tons of great info on this board about how to be gluten free, other potential things to look out for, and peoples experiences. Happy reading!

Phayah Newbie
Phayah
Posted

I'm 27 and my hair is falling out too. The doctors have done all kinds of blood tests (except Celiac) and they've all come back normal. They are now telling me its just stress?! I have nothing to be stressed about, other than the possibility of going bald lol!

Anyway, I'm still waiting on results from a thyroid ultrasound, upper GI biopsies, and I have a neuro appointment in December. The endoscopy was not bad at all. The place I went to said they do 25 per day and they haven't had a single problem in four years. If you have a positive blood result I wouldn't worry about the endoscopy. I had one because of throat problems so I asked for a Celiac biopsy while they were down there.

I think different types of food have a much bigger impact on our health than doctors would like to believe. They don't know everything. No one does. Scientists are finding new things all the time!

Skylark Collaborator
Skylark
Posted

Gliadin Antiabody IGA - 56 High

Value Explanation Results

<11 Negative

11-17 Equivocal

>17 Positive

TTG IGA Antibody - 111.6 Normal

Value Explanation Results

<20.0

I don't understand why your TTG was flagged as "Normal" if it's over 20. Lab computers don't generally flag things incorrectly. Did you make a typo and it's 11.6? If you are SURE it is 111.6 and flagged as "Normal" you might need to call the diagnostic lab (or get the Dr. office to call) and ask what happened. You might need to be retested.

Positive anti-gliadin means you're gluten intolerant at the least. It's not a reliable marker for celiac autoimmunity but once you and your Dr. have discussed endoscopy you should go gluten-free.

My hair falls out when I'm hypothyroid. Gluten issues and thyroid trouble go hand in hand so be sure your doctor runs a thyroid panel too.

Phayah Newbie
Phayah
Posted

I don't understand why your TTG was flagged as "Normal" if it's over 20. Lab computers don't generally flag things incorrectly. Did you make a typo and it's 11.6? If you are SURE it is 111.6 and flagged as "Normal" you might need to call the diagnostic lab (or get the Dr. office to call) and ask what happened. You might need to be retested.

Positive anti-gliadin means you're gluten intolerant at the least. It's not a reliable marker for celiac autoimmunity but once you and your Dr. have discussed endoscopy you should go gluten-free.

My hair falls out when I'm hypothyroid. Gluten issues and thyroid trouble go hand in hand so be sure your doctor runs a thyroid panel too.

My thyroid tests keep coming back normal. I had one abnormal (0.25 TSH) a year ago. So confusing! Hopefully, the ultrasound will be definitive.

eborzecki Explorer
eborzecki
Posted
  • Author

I don't understand why your TTG was flagged as "Normal" if it's over 20. Lab computers don't generally flag things incorrectly. Did you make a typo and it's 11.6? If you are SURE it is 111.6 and flagged as "Normal" you might need to call the diagnostic lab (or get the Dr. office to call) and ask what happened. You might need to be retested.

Positive anti-gliadin means you're gluten intolerant at the least. It's not a reliable marker for celiac autoimmunity but once you and your Dr. have discussed endoscopy you should go gluten-free.

My hair falls out when I'm hypothyroid. Gluten issues and thyroid trouble go hand in hand so be sure your doctor runs a thyroid panel too.

I just don't understand because if 20 means over than for iga its under 17 positive and mine is over 17. I typed up the results exactly as they are on my sheet and my doctor is being an ass and not calling me and I am just getting so frustrated. How do I read this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

I just don't understand because if 20 means over than for iga its under 17 positive and mine is over 17. I typed up the results exactly as they are on my sheet and my doctor is being an ass and not calling me and I am just getting so frustrated. How do I read this?

High results are positive, low are negative. Your anti-gliadin is a very clear positive. It's over 17 and the lab has flagged it as "High". I don't know why they didn't use the word "Positive" but "High" is the same.

Your TTG makes no sense because it should not have been flagged "Normal" if it's really over 100. If 111 is definitely the number, you're probably celiac and the "Normal" flag is an error. Is there a number for the diagnostic lab who ran the test on your sheet?

eborzecki Explorer
eborzecki
Posted
  • Author

High results are positive, low are negative. Your anti-gliadin is a very clear positive. It's over 17 and the lab has flagged it as "High". I don't know why they didn't use the word "Positive" but "High" is the same.

Your TTG makes no sense because it should not have been flagged "Normal" if it's really over 100. If 111 is definitely the number, you're probably celiac and the "Normal" flag is an error. Is there a number for the diagnostic lab who ran the test on your sheet?

Yes there is and they said that anything over 20 is positive but as I said before it wasn't flagged and my doctor didn't call me yet so I am not sure what happened.

Skylark Collaborator
Skylark
Posted

Yes there is and they said that anything over 20 is positive but as I said before it wasn't flagged and my doctor didn't call me yet so I am not sure what happened.

The "Normal" flag is probably a mistake then and you are celiac. The positive TTG is supported by your high anti-gliadin, and it sounds like the lab believes the >20 number more than the flag. The thing to ask your Dr. when he finally calls back is whether he has seen other flagging errors from that lab on positive TTG tests.

You will likely be referred for an endoscopy and biopsy to see how severe the intestinal damage is. Keep eating gluten until your testing is completed. Then feel free to ask for help going gluten free! I really hope it resolves your hair loss and other symptoms.

eborzecki Explorer
eborzecki
Posted
  • Author

The "Normal" flag is probably a mistake then and you are celiac. The positive TTG is supported by your high anti-gliadin, and it sounds like the lab believes the >20 number more than the flag. The thing to ask your Dr. when he finally calls back is whether he has seen other flagging errors from that lab on positive TTG tests.

You will likely be referred for an endoscopy and biopsy to see how severe the intestinal damage is. Keep eating gluten until your testing is completed. Then feel free to ask for help going gluten free! I really hope it resolves your hair loss and other symptoms.

Thank you so much

Its just so annoying to be waiting and waiting and waiting. I really want to know as this hair loss has been going on for a long time and I am starting to think I might go bald :( I never thought celiac can cause this but I guess now I know it can.

Skylark Collaborator
Skylark
Posted

Thank you so much

Its just so annoying to be waiting and waiting and waiting. I really want to know as this hair loss has been going on for a long time and I am starting to think I might go bald :( I never thought celiac can cause this but I guess now I know it can.

Celiac can cause a LOT! Nutritional deficiencies from malabsorption can affect your entire body, plus the autoimmune damage can mess up your skin, gut, endocrine, and nervous system. You can have anything from GI problems to neuro damage to psych disorders to infertility and early menopause to eczema, psoriasis, or odd rashes.

I had hair loss when I started on depakote for bipolar (which was also celiac-caused). My Dr. said he had never seen someone in their 30s so deficient in panthenol and zinc that they lost hair on a low dose of depakote. This was before I figured out what was wrong on my own. I wasn't lucky enough to know to ask for testing because it was before celiac was all over the news.

I'm sorry for your diagnosis. The diet is hard. The good news is that once you finish any other testing you want and go gluten-free you will feel better than you probably ever have before.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,542
    • Most Online (within 30 mins)
      7,748
    CC324
    Newest Member
    CC324
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.