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Can 24 Hrs Of Gluten-Free Make You Feel This Much Better?


silveylane

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beebs Enthusiast

I do not have *normal* GI symptoms either. Some people only have neuro symptoms, some celiacs don't have one symptom.

Yes you can feel better quickly, the day I quit gluten was the day that I stopped taking meds for GERD, and I had been on meds for years and they didn't even work - my reflux was bad, I couldn't swallow water. So anyhow - It was noticeable straight away how much better I was.

I would ask your husband to be tested. Honestly - what can it hurt?


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Korwyn Explorer

My primary symptoms and food linkages are below along with onset (there is some symptom overlap):

Gluten/celiac disease related:

  • Chest pain/Tachyacardia - age 19 (20+) years ago, would come and go for 20 years
  • Gradually developing fatigue, always tired - first observed 10 years pre-gluten-free
  • Insomnia - first observed 14 years pre-gluten-free
  • OCD issues - first observed 6 years pre-gluten-free
  • GERD - first observed 8 years pre-gluten-free
  • Diarrhea - Onset 6 years pre-gluten-free
  • Memory issues - Onset 6 years pre-gluten-free
  • Weight loss - Six months prior to going gluten-free
  • Brain Fog - Onset 6 years pre-gluten-free
  • Stomach pains of undetermined cause 8 years pre-gluten-free
  • Skin issues (infections, psoriasis) - Onset 20 years Pre-gluten-free
  • Anxiety - Lifelong
  • Depression - Lifelong
  • Rapid Mood swings - Lifelong
  • Vitamin deficiencies (D,B,K)
  • Mineral deficiencies (Sodium, Copper, Magnesium, Iron)

Soy related:

  • Panic Attacks - first observed 8 years pre-gluten-free
  • Anxiety - first observed 12 years pre-gluten-free
  • Night sweats - first observed 2 years ago 5 months post-gluten-free

Pasteurized Dairy(* See footnote):

  • Stomach pains of undetermined cause 8 years pre-gluten-free
  • Diarrhea - Onset 6 years pre-gluten-free
  • Nausea/Vomiting - Onset 6 years pre-gluten-free
  • Nasal Allergies/Sinus infections - Onset 20 years pre-gluten-free

Diagnosed (D), Diagnosed and treated (DT), Suspected/Tested for (T) I've received over the years (some multiple times) prior to going gluten-free:

  • IBS(DT)
  • Clinical Depression(DT)
  • Chronic Fatigue(S)
  • Bipolar(T)
  • Hernia (T)
  • Bowel Obstruction (T)
  • GERD(T)
  • Stress(DT)
  • Anxiety Disorder(DT)
  • Hypochondria(S)
  • Hypertension(DT)
  • Hyper-thyroid(T)
  • Hypo-thyroid(T)
  • Ulcer(D)
  • Atherosclerosis/Heart Disease (T) - Heart was perfectly healthy every time I was tested)
  • Vitamin Deficient (DT) - Supplements never helped of course because I wasn't absorbing them

Some interesting things to me: My GI symptoms were related to pasteurized dairy products and gluten both, but were only present near the end when I started getting really sick. I never had any GI issues until 6 years prior to my diagnosis. Both gluten AND pasteurized dairy will produce GI issues now. Pasteurized dairy produces violent uncontrollable vomiting and diarrhea, gluten produces diarrhea. Raw milk does not produce any negative issues.

Another interesting part is that my Dad also suffered from many of these same conditions and diagnosis. He was diagnosed with non-treatable chemical depression and on multiple meds much of his adult life. Within a few months of getting diagnosed with celiac disease and going gluten, casein, and soy free he was off all but one med, which he takes at half-dose on an as needed basis (for anxiety).

Also - Every one of the symptoms listed above either improved dramatically or is entirely gone after 2.5 years on a strict gluten, soy, and (for two years) cow dairy free diet.

* Please note that I am not recommending (in this post) that anyone drink raw milk products. I'm merely reporting what I have discovered for my own personal health. Raw milk is considered by the FDA to be unhealthy.

anabananakins Explorer
QUESTIONS: Were any of you overweight? Do any of you take antacids (Prilosec)? Do any of you have this high end anxiety and fear of dying before you were diagnosed? Did any of you have this lethargy and fatigue? (My extended family calls that "laziness"!) Do any of you have those dark shadows around your eyes? This nonstop belching, chest pain -- is that esophageal spasms?

Yes. I'm overweight. I used to take antacids all the time (not a one since I went gluten free). I've been anxious since a small child, always lethargic and tired and those dark shadows lifted considerably when I went gluten free. Also, not sure about the last bit but when I used to throw up I would throw up for hours (like, 12) uncontrollably. Likewise when I cough I have trouble stopping - I'll cough for 6 months. The chiro thought they were connected. I haven't had either since I went gluten free (though that may not be conclusive since I take any cough medication I can avoid starting to cough and I don't throw up after I drink as much now because I'm not coming home and lining my already delicate stomach with gluten-y toast)

All the best to you both.

Korwyn Explorer
QUESTIONS: Were any of you overweight? Do any of you take antacids (Prilosec)? Do any of you have this high end anxiety and fear of dying before you were diagnosed? Did any of you have this lethargy and fatigue? (My extended family calls that "laziness"!) Do any of you have those dark shadows around your eyes? This nonstop belching, chest pain -- is that esophageal spasms?

I missed this paragraph earlier. Yes, I was overweight (obese). I've lost over 50 lbs (healthily) after going gluten-free. I no longer need antacids. Yes on the anxiety (see my previous response), and no on the fear of dying. About a week before my 40th birthday (two weeks before I went gluten-free) I told my wife I was pretty sure I was dying. At that point I was so sick physically (I lost 13 lbs in one week) and mentally that I wanted to die. I wasn't suicidal (yet) but another few weeks and I would have been there. The lethargy and fatigue - most definitely. Common symptom. Dark shadows around the eyes are also common (almost classic I think), though mostly in younger people from what I have read.

These doctors think I am a (b)witch because I am soooooo demanding that they help this child and none of them seem concerned that he has missed a solid straight month of school.

What's your take? Thanks.

With this disease, unfortunately, you must be your own researcher and find physicians who will listen to you. We usually have to educate our medical health care providers.

Booghead Contributor

I will just say this: get a new therapist. Your child is severly depressed. He sounds so anxious and depressed it breaks my heart. Celiacs Disease is not a death sentence, espiecally since he is so young. I am 17 and found out about 2 weeks ago. Do not have a therapist pump him full of meds. He needs to talk and calm down. Really calm down. Keep him off gluten as that seems to have helped. I do think he has a gluten allergy or celiacs. I also think he has SEVERE anxiety and depression. Those get worse when you take him off of the meds. I know because I have done it. After going off anxiety meds and depression meds I was a jerk to everyone for a whole month. I cried at everything. He is 15 years old. A young adult. Talk to him. He shouldn't freak out from a diagnosis like celiacs. Give him some info. Me and my mother went through this process together and I think part of his anxiety is because you treat him like a child and tell him nothing. :unsure: It's ok to feel protective. But from what I can tell your son has 2 very big problems. The vomiting CAN be caused by anxiety and panic attacks. Same as Dihirea (sp?). His gastro problems could possibly all be caused by his anxiety tho I do not think so.Gluten is a factor in this case.

I am 17 so only a little older then he is. He is not a child so give him some respect to include him in your quest for anwsers. B)

Good Luck and I hope to not have offended you or anyone else.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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