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Australian?


Di2011

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Di2011 Enthusiast

More and more surprised by the Aussies on this forums so just wonder who is and where you live?

What products work for you? Brands, stores etc?

I found the Coeliac Society wasn't for me due to my lack of diagnosis (financial rather than willingness or alternate situation) so would love to have some really good contacts for Gluten free.


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Saz Explorer

I'm in Brisbane. For finding new products I use the internet, or just check the health food stores/aisles of the supermarket.

I like the Freedom foods biscuits and some of the Woolworths brand are good as well. Some Kettle chips are now gluten free, otherwise a lot of flavoured rice crackers are good. Also Woolworths are stocking a new brand of crumbed gluten free fish called Kingfisher.

There is stuff out there, it's just finding it that can be the problem. Also I don't think we are quite there with the "convenience" food. As I've mentioned in other threads in the Uk it easy to find a variety of breads and slices in the supermarkets. You might not have a large variety but chocolate slice is better than nothing. Having said that Coles have made improvments in the last few months. I understand they have a bigger population but CLEARLY by the fact that health food sections here are expanding, we have the market for it. Personaly I would rather a few different varities of biscuits (for example) than say a choice of 4 companies who all do a choc chip biscuit.

+jasonparker Newbie

I'm from the Gold Coast.

Aldi's gluten-free bread is awesome. (for gluten-free)

Woolies at Coomera Springs has a huge range of Macro gluten-free foods.

Will add to this list shortly.

Jason

Di2011 Enthusiast

Freedom foods are one of my main production line foods that I buy. I seem to be super-super sensitive but the Freedom foods I have never had a problem with.

I didn't know Aldi stocked Gluten-Free bread. I might check that out.

Convenience fish I have missed!!! If I can't find it our local Woolies I might ask if they could stock it.

I live at Sutton a little village in NSW but just over the border from Canberra.

There is a great gluten-free bakery "Deeks" at Dickson,Canberra that does mailorders. I highly recommend (I'm in no way affiliated with them) Open Original Shared Link

Loads of notGFree people love to go there.

Saz Explorer

I'm not sure if the Aldis in NSW/ACT will stock the gluten free bread. The ones stocked up here are by a company called Wild Breads who are based in South East Queenslnad.

Also re the fish- A few of the woolies I've been into are stocking it in the "normal" frozen fish section instead of the gluten free one. It's in a blue and white box.

beebs Enthusiast

I went to the gluten free expo and taste tested until I could no more. Otherwise I just peruse the gluten-free isles and try whatever strikes my fancy. I'm currently in Sydney but about to move to the central west NSW.

Saz Explorer

The expo in Brisbane this year was combined with Good food and wine show. I reluctantly paid the $20 entry fee. It was such a waste of money.

The gluten free section was exteremly small and there was no gluten-free food available at the cafes. Most the exhibitors were ones whose products are easlily availble in supermarkets or health food shops. I have gone every year in the past but I won't be supporting the event again if it's going to be in the new format. It now costs twice as much to get in for somethng half the size or less.


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beebs Enthusiast

That is crazy Saz! The one in Sydney was completely gluten free and it was free to get in!!

Saz Explorer

It used to cost about $10 here. I was more than happy to pay that much because there were so many exhibitors and I could buy stuff that is usually hard to find. Nevermind I wiil go to the one run by the society in future, cheaper to get in and I can have everything.

I expect to pay more for gluten-free but it annoys me that some places now seem to be going with the "trend" and cashing in. Unlike vegan/vegetarian or similar this is not a "choice" for most of us. Pity eating is rather necessary to stay alive.

anabananakins Explorer

I'm in Sydney. I'm trying not to eat processed foods so I'm not really eating much special gluten free stuff anymore. But the australians and newzealanders thread is good, we usually post there when we find something that we like.

I google restaurants (if someone else chose them), or use the coeliac society's list. There are a few bloggers doing write-ups of gluten free options at restaurants in Sydney, it's very helpful.

Kjas Newbie

Another one here who lives in brisbane.

Choicesglutenfree have quite a variety of stuff (including garlic bread) and all sorts of pre packaged things to make at home or pre made. They also deliver for most items, which I find useful.

There's a good restaurant where literally half or more of the menu is gluten free called Food & Soul. I've never gotten sick there and the desserts they do are amazing (particularly the Roulade).

Coles now do gluten free snakes. Apart from that it's the marco whole foods range, freedom foods and the butter shortbread that I stick to. Over the last few years the range has definitely gotten better, particularly in the suburbs.

anabananakins Explorer

Oh, that butter shortbread is to die for. I took a short cut through the regular biscuit aisle in coles recently and I noticed they had it stocked there too. I thought that was a great idea because it tastes way better than any gluten-containing brand I ever ate and god knows I ate enough short bread back in the day. Next time the supply in the gluten free section is empty (people seem to stock up when they can) I'll be looking in the regular biscuit aisle.

Di2011 Enthusiast

I had Schar corn flakes this morning. I think it is in Coles. And no DH flare!! :D :D :D

Considering how little processed anything I can eat, every new additional is so exciting. The ingredients are very basic and no wheat derived gums etc:

Open Original Shared Link

I might even be tempted to try those shortbread!

It is mighty cold in Canberra at the moment. We are all in jumpers/coats!!! Crazy.

anabananakins Explorer

I don't generally eat corn, but I suddenly have cornflakes cravings!

It's pretty chilly in Sydney too. I'm getting lots of wear out of my winter clothes this year! (no complaints though, I hate the high humidity of summer)

beebs Enthusiast

Oh god yes! Those shortbreads are to die for! YUMMO! I just picked up the new Leda arrowroot biscuit - I wonder how they will be?? :)

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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