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Where To Begin


seifertam

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seifertam Newbie

I've been devouring books, blogs, forum posts, and any other sort of information i can get my hands on about celiac disease and starting a gluten-free diet. However, every time i go to actually put one foot in front of the other and stop eating gluten i just feel so overwhelmed. i know i NEED to do it, and desperately want to, but I just have no idea where to begin. so, any suggestions? any baby steps that can help me just make the plunge?

i have full support from my boyfriend (whom i share most meals with) but he's at just as much of a loss as i am on where to start.


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beebs Enthusiast

Look through your cupboard and throw out any thing that has gluten in it and then start again. Get that book "Gluten free for Dummies" by Dana Korn -that is helpful. I'm in Australia and the coeliac society puts out a little card with what we can't have that fits in your wallet- If you can find something like that its helpful too!

Skylark Collaborator

First, have you been tested for celiac? The blood tests do not work if you go gluten-free and if the diet works, you won't want to go back to eating gluten. You need to know if you have the autoimmunity.

Once you throw away or give away all the gluten in the house, go to the grocery store and shop the OUTSIDE of the store, where the produce, milk, cheeses, meats, fresh fish, fruits, eggs, potatoes and other naturally gluten-free foods are. You may make a brief excursion to the middle for rice and plain beans if you promise not to linger. ;) Avoid the baked goods section entirely; it will only offer needless temptations. At the end of the trip you should have a cart full of naturally gluten-free whole foods. Stay simple at first. It's easy to tell that a potato, a banana, or a head of broccoli is gluten-free.

Make your meals from home-cooked meats, fresh vegetables, rice or potatoes, and have some fruit for dessert. Start simple, like a baked chicken, baked potatoes, and steamed broccoli. Have a big chef salad for lunch, with cheese, hard-boiled eggs, and olive oil and balsamic vinegar for dressing. Make eggs, fruit, and home-fried potatoes for breakfast. Snack on a handful of nuts or an apple.

Once you're more used to the diet, track down some gluten-free bread, learn to read labels to identify safe processed foods, or try your hand at gluten-free baking.

sandsurfgirl Collaborator

You can't take baby steps. Your health is at risk every bite you take of gluten. This is an autoimmune disease and it's serious. I don't want to scare you but you have to go cold turkey.

I'm going to make a list of products I like for you to try. Gluten free is overwhelming at first but after awhile it becomes old hat. If you think about it, most of the stuff you eat for meals is gluten free or pretty close to it. A salad for lunch with meats, cheese and dressing is pretty easy to get meat without gluten (most lunchmeats are safe) and salad dressing without it or just do oil and vinegar. For dinner if you cook a meat, some starch like potatoes or rice and a veggie that can get you going for awhile.

Eating out is much more tricky than cooking at home. Spend time reading the restaurants forum on here. Find a few restaurants in your area and check if they have a gluten free menu. If they don't, go in there or call when it's not busy and politely ask the manager to help you figure out what you can eat there.

Here are products I love that are kid tested with my celiac son and non celiac daughter.

Tinkyada pasta

De Boles gluten free pasta- great angel hair

If you get a good pasta under your belt that is huge because so many dishes use pasta and it's such a good quick food. I'm Italian so pasta was a must for me.

I love everything Glutino and Gluten Free Pantry.

Gluten Free Pantry Basic Sandwich bread makes a nice white loaf of bread that doesn't crumble and tastes very normal. I bought a gluten free breadmaker from Breadman but I made it in my mixer and a loaf pan for a long time. I let it rise much longer than it says on the box. It doesn't rise in half an hour for me.

Gluten Free Pantry French bread and Pizza mix is great pizza crust and you can make it in about 20 minutes.

Glutino has great pretzels, cookies, etc. I love their wafer cookies.

Gluten Free Pantry muffin and scone mix makes incredible flaky light scones.

Betty Crocker Gluten Free cake, brownies and cookies are really good. I keep the mixes on hand all the time.

Kinnikinnick has good donuts and muffins etc but they have a lot of complicated ingredients and it doesn't always settle with everyone.

There are lots of safe barbecue sauces so you can make barbecue chicken in your oven.

Lawry's seasoned salt is safe and I love to use that with lemon pepper to season beef or pork for pan frying or grilling.

Mexican food is super easy. Corn tortillas, beans, taco meat. Just be careful with seasonings you buy premade.

It also depends on how sick you are right now. If you are very sick, then you need to have a whole foods simple clean diet to promote healing. The intestines aren't producing all the enzymes you need if they are damaged and your body needs great fuel to heal all that damage.

I agree that you need to throw away all gluten in your house. Crumbs and flour will CC your kitchen.

Also check all your soaps, shampoos, etc. for wheat ingredients. You can PM me for product suggestions if you want to. It's very hard to make sure you wash off the gluten from shampoo, soap or lotion before you touch your food.

You CAN do this and we are here to help you. Jump in to the gluten free pool. The water's fine!

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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