Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy

Chad Sines

By Chad Sines
in Coping with Celiac Disease

Recommended Posts

Chad Sines Rising Star
Chad Sines
Posted

How many of you die a horrible death with soy? I just had some reese cups last night and felt like i was going to croak. Wondering if it was from soy content. I have felt the same way when i consumed vitamin D with soybean oil. Just recently realized that vegetable oil is often soybean oil. It seems like a bunch of little pieces may be falling in place. My issues with soy seem much different than gluten, assuming it really is a soy issue.

I am almost tempted to do a shot of soy vegetable oil one day to know for sure...prolly not a good idea.

Hmmmmm..

Very curious indeed.

I am about ready to replace my GI system. If you want to trade, just let me know. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I am about ready to replace my GI system. If you want to trade, just let me know. :)

As bad as it is, I think I will keep mine -- at least it is one I am familiar with :P

IrishHeart Veteran
IrishHeart
Posted

How many of you die a horrible death with soy? I just had some reese cups last night and felt like i was going to croak. Wondering if it was from soy content. I have felt the same way when i consumed vitamin D with soybean oil. Just recently realized that vegetable oil is often soybean oil. It seems like a bunch of little pieces may be falling in place. My issues with soy seem much different than gluten, assuming it really is a soy issue.

I am almost tempted to do a shot of soy vegetable oil one day to know for sure...prolly not a good idea.

Hmmmmm..

Very curious indeed.

I am about ready to replace my GI system. If you want to trade, just let me know. :)

oh honey, you sooooo do not want mine! :lol:

The only way to isolate a food to see if you are intolerant is to eat something plain.

A Reese's cup could mean soy lecithin or it could be the chocolate or the peanut butter or sugar, or, or, or ....and you'd just be guessing.

If you really, really want to know if soy is a problem, eat some edamame or tofu PLAIN. NOTHING else. That's how you tell.

Marilyn R Community Regular
Marilyn R
Posted

Hi Chad,

Soy hurts me hard. After several months of going soy free, I'm tolerating soy lecethin now. (That's in all chocolate I think, so that's pretty important.) :)

Hang in there!

Chad Sines Rising Star
Chad Sines
Posted
  • Author

I had not even thought about soy lecithin to be honest until just recently. I was more looking at soybean oil. D'oh.

mushroom Proficient
mushroom
Posted

I had not even thought about soy lecithin to be honest until just recently. I was more looking at soybean oil. D'oh.

Some people can handle the soy lecithin, others can't. Same for the soybean oil. I have added back soy lecithin but still avoid the oil.

sandsurfgirl Collaborator
sandsurfgirl
Posted

The lecithin doesn't bother me but soy flour or soymilk, major major pain. Soybean oil has been okay. I have no idea why.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I guess my body just cringes when I see soy or soya (unless followed by lecithin) :blink: May try oil someday, but in the meantime avoid anything that says "vegetable oil" because that includes canola, safflower and sunflower too and one never knows what one will get :rolleyes:

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I can't handle even traces of soya. I have neuro symptoms, the worst of which is a crushing depression, emotional confusion, temptation to self-harm. Then headaches, pain, reflux. Last time I got symptoms from eating a single piece of shrimp cooked in a jambalaya with soya-containing sausages. Before that I got symptoms from washing my face with a shower soap that contained soybean oil.

I avoid soya lecithin as well, because I feel like I reacted to it once upon a time. I've chewed pieces of gum with the lecithin in it once or twice without symptoms, but I don't chance it anymore. It's actually kinda nice that this rules out so many candies for me, because I used to have a raging sweet tooth, and having to avoid soya lecithin (which is in practically anything that contains chocolate) helps me rein it in.

in the States, vegetable oil = soybean oil. Crisco and vegetable shortening is all soybean shortening. I wish they'd just label the damn vegetables in the oil rather than hide behind "vegetable", especially considering most "vegetable oil" in the US contains ONE ingredient which is SOY.

here in Europe "vegetable oil" usually = rapeseed (canola) oil or sunflower oil. which is nice. I don't have to avoid things that list veggie oil or shortening or vegetable fat in the ingredients. (soya will be listed, due to its being an allergen, if it is contained in the product)

Austin Guy Contributor
Austin Guy
Posted

You will also find soy as part of the vegetable broth in canned meats and tuna. I found out the hard way. Soy hits me almost as hard as gluten and like gluten, it seems to be everywhere.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.