Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick Again

Booghead

By Booghead
in Coping with Celiac Disease

Recommended Posts

Booghead Contributor
Booghead
Posted

I was out of school not last week but the week before for 3 days (for colonoscopy and egd) and 2 weeks before that I missed 3 days. Now I have a cold thats being going around my family. I got it on last sunday and I was hoping it would be mostly over by this sunday. Its not. Its much worse. I've been glutened 2 times this weekend as well. I am not feeling well. I am not sure whether I should force myself to go to school tomorrow and continue forcing it all week. I feel like my teachers think I am a slacker even though I have told them about the celiacs. Among other things going to school will spread the cold (my parents could care less about that). I've had a really hard month and am completely overwelmed from the school work I have already missed. I think I need to transfer out of chemistry because I can't teach it to myself :( . I'm very stressed and my stomach is hurting, I am stuffy and my head is very congested. I'm not sleeping well. I feel like giving up on my grades at this point. I think I am going to lose attendence credit if I miss much more without a doctors note. What would you do at this point?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

I'd make some chicken soup (homemade), take a hot soak in the tub, and try to relax.

I'd think about if I could do school if I didn't have to take chemestry. Maybe drop chem if that's an otion and look at it later, when you're feeling better.

I'd probably go to school, only because when I'm not feeling well and don't go to work I tend to focus too much on what's wrong with me and frump out too much. That can, I imagine, lead to a downward cycle.

Make a deal with yourself to get up, get dressed, go to your first class. Then push yourself to go to your next class.

See if you can get through the day. Even if you have to go home early, it will be better than not showing up at all.

Good luck!

Di2011 Enthusiast
Di2011
Posted

You probably should start with a doctors note?!

Do you know how you got glutened? Are you eating well, plenty of fresh food otherwise? Drinking plenty of water?

Are any of your family/household members gluten free also?

Booghead Contributor
Booghead
Posted
  • Author

My stomach is getting so much worse. Got glutened at panda express. I was stupid. It was on saturday but I could have gotten glutend today too from applebees. I am never eating out again. My stomach hasn't hurt this bad in weeks. Ugh. I can't get a doctors note until I get the egd results back.

kareng Grand Master
kareng
Posted

As the mom of 2 boys, 15 & 18, I'm going to be blunt with you. I hope you show this to your parents, too.

If you were my kid, you would now be grounded, indefinitely. You have shown that you cannot be responsible to eat a gluten-free diet. Or you are not able to eat gluten-free due to a lack of knowledge. It is important as it is impacting your school work as well as your health. I know you want to be with your friends and not stand out but going to eat places where you cannot get a gluten-free meal and then eating is irresponsible and childish.

Don't try to tell me " but, Mom! Appleby's has a gluten-free menu!". You didn't read it as it plainly states that the ingredients might be gluten-free but they will cook it with gluten foods. It specifically mentions the fries as being cooked with all the gluten stuff.

Stay home. Catch up on your school work. You can invite friends over for gluten-free snacks and a video next weekend.

sandsurfgirl Collaborator
sandsurfgirl
Posted

You poor thing! It's so hard having regular colds and stuff when you're already dealing with celiac.

You need that doctor's note first of all. If you need rest then you need it. Only you know when and how far to push yourself.

Don't give up on your grades. Ask your teachers for help. Tell them what's going on and ask if you can have more time on some assignments if you need it. Hang in there! The cold will pass and you'll feel better soon.

Does Panda have gluten free options? I wouln't trust that place. The food flies everywhere and the gluten is all over the pans.

Di2011 Enthusiast
Di2011
Posted

What do you eat at home?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Booghead Contributor
Booghead
Posted
  • Author

I didn't purposley eat gluten. My family is really into eating out on the weekends. My father took me to panda express as a gift, it was a surpise. I ordered rice and beef brocoli. I am new to this and after eating it I found out it wasn't gluten free. As for Applebees my mom was being nice. I am just going to eat at home from now on. Its not their fault or mine. Accidents happen when you have only been gluten free for a few weeks. At home I drink plenty of water since it is all I can drink. I eat everything gluten free at home. Lots of Apples and Bananas.

kareng Grand Master
kareng
Posted

I didn't purposley eat gluten. My family is really into eating out on the weekends. My father took me to panda express as a gift, it was a surpise. I ordered rice and beef brocoli. I am new to this and after eating it I found out it wasn't gluten free. As for Applebees my mom was being nice. I am just going to eat at home from now on. Its not their fault or mine. Accidents happen when you have only been gluten free for a few weeks. At home I drink plenty of water since it is all I can drink. I eat everything gluten free at home. Lots of Apples and Bananas.

Sounds like I need to ground your parents, too. Not much of a gift or treat if they are feeding you poison. Are they not understanding? You should make sure the doctor talks to them.

Di2011 Enthusiast
Di2011
Posted

Booghead,

I also made a load of mistakes in the first couple of months. Don't blame yourself or your parents - in the end what is most important is that you have their support.

It is really important that you and your parents get reading/educating yourselves and fast!

I have to be super super strict with my food, at work, out anywhere else and at home. To be honest with you it sucks. And its hard. But in the end if you want to do well at school, learn how you can socialise with your mates gluten free etc and do it pain/illness free you've just got to do it. Just like Nike says.

I eat at one restaurant only and only rarely. I use to work there so I know the staff and they know my issue. I eat steak (cooked on a hot stone at the table) and salad.

They have a dedicated frier for fries but the fries are a bit hit and miss wrt gluten. I really really love my home made potato fries now. I am slowly learning lots of good tricks and things to replace what I can't have.

Do you cook at all? Help mum in the kitchen?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,316
    • Most Online (within 30 mins)
      7,748
    Steffieg
    Newest Member
    Steffieg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Ocd making gluten fears unmanageable. Need advice

      By Mari · Posted

      I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body does not use words it uses biochemistry and electric interactions. Celiac disease is not a killer disease so you are not going to die in the near future if you get glutened.  It can be a disabling problem unless you stay gluten free. For OCD attacks I have used spearmint or peppermint teas to relax. I also sitorlay down , relax as much as possible and review what I have been eating for the last few days and can usually identify that I have been eating too much of something and not enough of other foods that would balance my body. My body may have become too acid when it needs to be slightly alkaline. For me this means eating more vegetables and less starches and proteins. There are some websites that will list acid forming foods and alkaline forming food and many foods that are in between. Just admit that you are anxious about gluten being present in foods and anything that is used to prepare foods or even in your environment. When you eat anything that makes you anxious take a capsule of an anti-gliadin enzyme. I use a brand called GliadinX. It works in the stomach and will break down small amounts of gluten. Look up online the amount of plain water your body height and weight needs every day. Two years ago I was 5' 4" and weighed 100 lbs and needed 48 oz. every day.  Even if you can't drink the full amount if you just drink more water you will notice some improvement in your digestive system.  That's enough for tonight and it's way past my bedtime. Don't hesitate to ask more question or ask for more information.       
    • Scott Adams
      Canker sores

      By Scott Adams · Posted

      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      Ocd making gluten fears unmanageable. Need advice

      By knitty kitty · Posted

      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      Canker sores

      By Jacki Espo · Posted

      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
    • Dora77
      Ocd making gluten fears unmanageable. Need advice

      By Dora77 · Posted

      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
×
×
  • Create New...